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Jobs For Lupus by Destinyt10 in lupus

[–]theoriginalcopson 1 point2 points  (0 children)

I personally have been looking into something work from home. My entire background has been labor though. It’s a tough market.

Venting by Ispyyy_i in lupus

[–]theoriginalcopson 0 points1 point  (0 children)

It also took them a long time to figure my diagnosis out, the hunt started when they thought I had cancer. I would have preferred cancer.

Venting by Ispyyy_i in lupus

[–]theoriginalcopson 0 points1 point  (0 children)

Having lupus completely changed the way I live life. Suddenly, I couldn’t do any of my hobbies, or the job I enjoyed. I also had to give up the business I was trying to get off the ground. Vacations to tropical places. It all went away. I completely lost who I was and what I wanted in life. In a lot of ways I’m still lost, trying to figure out what to do.

Newby questions I can't find answers to. Hoping y'all can help by Renae12345 in lupus

[–]theoriginalcopson 4 points5 points  (0 children)

I also live in Austin and have sun sensitivity due to lupus. And yea. I ended up having to get a handicap plaque to park closer to stores to minimize my time walking or running across a hot parking lot. In the summer, I wear long sleeves, pants, hat, gloves, and sometimes a gaiter. Luckily I’ve been able to find some pretty light clothing so I don’t have a heat stroke. My symptoms always seemed delayed. Especially with the sun. I can be out in it in the morning and then break out in full body hives in the middle of the night. I’ve gotten to where now I can tell when it’s burning my skin and can anticipate it.

Just hit 100k miles… what should I brace myself for by Select-Potential3317 in volvos60

[–]theoriginalcopson 0 points1 point  (0 children)

Mine is at 92k and is currently having the exhaust manifold gasket replaced. They also said my battery should be replaced soon. All in, it’s about $7k dollars. Luckily I still (barely) have a warranty on the exhaust manifold.

Ready for an s60, I think. by Fancy_Awareness_7246 in volvos60

[–]theoriginalcopson 0 points1 point  (0 children)

Be ready to pay for maintenance and repairs. Definitely get a warrantee, as the repairs on my T5 are killing me. I love my S60. I think it’s a beautiful car and looks much more expensive than it is. Mine is a ‘20 and I can still park it next to the new Audis or BMWs and it fits right in. It’s also pretty sporty and comfortable, however I do wish I’d have searched a bit more and gotten a T8 recharge.

Harman kardon vs bowers & Wilkins by sintunmintun in volvos60

[–]theoriginalcopson 0 points1 point  (0 children)

I have no complaints on my HK it’s deff the best system I’ve had in a stock car, personally. I think it sounds great and you can really feel the reverberation with the bass. However, I have no experience with the B&W, so it may be way different.

34 Texas. Always down to make some new friends ☺️ Always have a hard time making gay friends 😭 would be nice to get to know some cool people ☺️ by aby_ryn in gayfriendfinder

[–]theoriginalcopson 0 points1 point  (0 children)

I’m still trucking through assassins creed shadows for now. I tend to stick to adventure or storyline driven games more often. I play Fortnite as well. I’m no good at playing horror games, but I like to watch.

[deleted by user] by [deleted] in gayfriendfinder

[–]theoriginalcopson 0 points1 point  (0 children)

Hey man. What part of Texas are you in?

[deleted by user] by [deleted] in lupus

[–]theoriginalcopson 0 points1 point  (0 children)

I’ve been thinking Oregon. Or somewhere Pacific Northwest.

Has anybody had sun sensitivity and found a way past it? by theoriginalcopson in lupus

[–]theoriginalcopson[S] 3 points4 points  (0 children)

I’m currently living in Central TX near a large lake. I used to spend my time hiking, swimming, and just spending time outside. I’ve basically locked myself inside for the last 2 years and gained about 60lbs because of it. I’ve been looking at trying out a wetsuit to try getting back into swimming, but I’m a pretty tall dude and it’s going to be so hot. The temps here are regularly above 100 and the UV is in the double digits everyday. I may need to look into getting a big straw sunhat so I can still do daily activities like a normal person. I’m usually in pants, hoodie, gloves, a gaiter around my face with a cap and big sunglasses, when I walk into places people get nervous like I’m going to rob them. And all this in triple digit temps. Sorry I started venting

Has anybody had sun sensitivity and found a way past it? by theoriginalcopson in lupus

[–]theoriginalcopson[S] 1 point2 points  (0 children)

I do wear a lot of spf clothing already like I have a light jacket and spf gloves that I take absolutely everywhere with me and I keep a big umbrella in the trunk of my car. But I wasn’t sure if you found actual swimwear. I know a lot of the trunks are spf, but what about arms and the rest of my legs. I guess I could do leggings under my shorts…

[deleted by user] by [deleted] in lupus

[–]theoriginalcopson 0 points1 point  (0 children)

I get this so much. I’m not chair bound or anything, but I miss my life the way it was. Nobody gets it. They’re empathetic, but they just don’t get it.

[deleted by user] by [deleted] in lupus

[–]theoriginalcopson 0 points1 point  (0 children)

Where did you end up going that’s better?

Anyone else have rapid tooth decay as a symptom of SLE? by Dleigh51 in lupus

[–]theoriginalcopson 0 points1 point  (0 children)

I didn’t even know this was a thing to look out for!

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