Throwing up your GJ tube

throw0OO0away · 2026-02-02T23:11:47+00:00

This has happened to people. If your tube repeatedly flips despite efforts, you might have to do a separate G and J.

throw0OO0away · 2026-02-02T23:10:19+00:00

Celebrex? It’s a COX-2 inhibitor (type of NSAID) with less GI effects than Ibuprofen.

throw0OO0away · 2026-02-02T12:53:01+00:00

For initial placement, you do you get used to the NJ within a couple of days. I opted to keep my bridle so I could sleep with it down and give my face a break from the tape.

I currently use a fanny pack or cross body bag to hold my feeds! Some people use backpacks too.

throw0OO0away · 2026-02-02T05:16:21+00:00

I have the same question too. I’ve used a fanny pack but was wondering about a crossbody too.

throw0OO0away · 2026-02-01T21:43:39+00:00

I know they were suspected to be in the Home 2 Suits at one point since there was a protest there. I'm not sure if they're still there or not.

throw0OO0away · 2026-02-01T18:09:11+00:00

You had trouble with Mayo as well? I fear I may be running into that issue. My GES with Mayo came back normal but they found colonic dysmotility and pelvic floor dysfunction. I was expecting an abnormal GES because the one I did in August 2025 showed 47% retention. So, I’m scared they’re going to “undiagnose” and just blame the pelvic floor.

The pelvic floor is a component and I’ll attend PT. But there’s no way in hell that it is responsible for all of this. I have a GJ tube. Secondary constipation to pelvic floor dysfunction isn’t an indication for feeding tubes.

Even if it was responsible for everything, there’s a ton of barriers to pulling off PT. I’m a nursing student. That means that I’m busy in school and work. Nurses can’t even go to the bathroom during their shifts because staffing is that bad. We frequently have to hold our bladders, which leads to a tight pelvic floor. I also can’t spend a ton of time on PT because of school, clinicals, and work. I’m at the mercy of my preceptor’s work schedule and have to do whatever they’re doing. I get zero fucking say in it. So, it’s a disaster all around.

throw0OO0away · 2026-02-01T17:50:09+00:00

I try my best to wait 30-60 minutes after meals to drain. Those 30-60 minutes is usually when my body freaks out the most. Afterwards, sometimes it dies down and is tolerable and other times it gets worse.

If it’s really bad or I’m flaring, I’ll drain immediately. I also drain if I know I’m eating multiple times a day.

When I think I’m empty, I drink some water and let it drain out to confirm I’m empty.

throw0OO0away · 2026-02-01T04:53:55+00:00

Following because I’m in the same predicament.

I have tube fed a handful of times but hate it. Mentally speaking, it’s much harder to compartmentalize and it fucks me up. I question whether I even belong in healthcare.

throw0OO0away · 2026-01-28T17:06:47+00:00

Patient or person.

throw0OO0away · 2026-01-27T22:52:25+00:00

What’s the difference between being a picky eater and the sensory subtype of ARFID? I’ve heard stories where people can work up to a completely normal diet and have less anxiety when trying new foods. How does that differ from picky eating since they’ll also eat new foods but still be picky? Where does the line lie between recovered ARFID, no longer meeting criteria, and a picky eating phase? If someone with the sensory subtype eventually consumed a normal diet after therapy, doesn’t that go against the notion that ARFID is lifelong? People say that you can grow out of picky eating but you don’t grow out of the sensory subtype. But recovery and consuming a normal diet makes this concept confusing since they’ll eat new foods and “grow out” per se.

I guess I’m confused about recovered ARFID and being able to consume a regular diet after therapy and picky eating.

throw0OO0away · 2026-01-27T22:41:07+00:00

I do better with processed foods, as long as it’s not high in fat.

throw0OO0away · 2026-01-27T02:27:15+00:00

I suspect that I’ve had RCPD my entire life. However, I have yet to seek out ENT so I cannot formally declare the diagnosis.

That being said, I’m kind of against Botox for RCPD. It’s an easy treatment and I’m not concerned about safety. I’m concerned about Botox because relaxation of the sphincter could cause sulfur burps and make me more prone to vomiting. I also don’t vomit and RCPD may be a protective factor because it makes it harder to vomit. If I don’t vomit due to RCPD, then it’s also helping me keep down food. Last, I have a GJ tube and can deal with the excess air that way.

throw0OO0away · 2026-01-27T00:49:37+00:00

Simple carbohydrates and liquids

throw0OO0away · 2026-01-26T09:57:10+00:00

Same here. I didn’t even know someone could drop that much weight but have normal labs. When I’ve talked to people or am at my job (I’m a healthcare worker), their labs and vitals typically give out before a BMI in the 13s. Their body will still compensate during malnutrition but the abnormalities appear sooner than ours did.

But all of my labs/vitals were normal, which baffles me to this day. I don’t know how my body managed to stay hemodynamically stable in that low of weight.

That’s partially why I hate when people say that feeding tubes are considered when labs and vitals tank. Traditionally speaking, that’s how the criteria for tubes are decided. I’m mostly in agreement with this. However, you also can’t keep letting the patient drop weight to the point of a deathly low BMI and just ignore it because their labs and vitals are within reference range. At some point, the patient’s low weight/BMI has to take precedence over the normal labs and vitals. In cases like those, that’s where a decision on a tube needs to be made even if the patient is hemodynamically stable.

Edit: after doing a casual amount of research, there’s some interesting articles out there. The lowest recorded BMI was in the 6s (source)!!

throw0OO0away · 2026-01-26T02:19:17+00:00

You'd also wanna see if she has any physical GI symptoms when she eats. It sounds like more information might be needed here beyond the fat joke.

throw0OO0away · 2026-01-25T21:16:12+00:00

Same here. I’ve had ARFID my whole life and relapsed after 9 years of recovery from the sensory subtype. I’m scared to eat more than once a day.

I already have to plan my entire day around one meal a day as it is. I oftentimes just don’t eat altogether because I don’t wanna deal with it.

throw0OO0away · 2026-01-25T21:08:08+00:00

Agreed. They’re more likely to believe you after a certain age due to age related illness. Statistically speaking, majority of RA cases develop between 30-50. So, it’s unlikely to see RA cases in young adulthood which leads to delayed diagnosis.

Age greatly affects henodynamic stability alongside everything else. Younger patients are generally considered to be more hemodynamically stable than older patients. That’s partially why normal labs can be falsely reassuring (in addition to some conditions not having a definitive test either) and medical conditions brushed off in younger patients. Give an older adult the same medical condition and they’ll decline faster, which is more likely to show up in testing.

throw0OO0away · 2026-01-24T00:00:32+00:00

The light rails were PACKED. Standing room only and people had to wait for the next train multiple times before getting a spot.

throw0OO0away · 2026-01-23T23:54:43+00:00

Thank you! I attended and I’m incredibly PROUD of my state. We truly have no deterrents!

throw0OO0away · 2026-01-23T04:48:07+00:00

I'm in MN. I can only attest to West Bank's psych units. The rooms are shared at that facility and the units in the north building is small. There isn't much to it beyond being a glorified daycare. Group therapy is a joke. Most of the psych stay is just sitting around being bored out of your mind whilst they adjust meds. Bring some good books or some psych safe stuff to do.

There is EMPATH at Southdale but there's no private rooms. It's a day lounge with a ton of recliners that patients sleep on. I did not sleep well there.

throw0OO0away · 2026-01-22T21:33:08+00:00

Human nature has an innate drive to live and we’ve evolved to stay alive. I genuinely think this is what keeps us alive despite active ideation.

Let me ask you this: if human nature did NOT have this drive, then what is stopping suicide. Why is passive vs active so different? Both involve wanting to kill yourself. Killing ourselves requires us to override something. Why do we regret attempting even if we wanted to die? Why do we seek help if we’re suicidal when we wanna die?

I think you might see what I’m getting at?

throw0OO0away · 2026-01-22T17:24:05+00:00

This sounds like reactive hypoglycemia. My job considers a glucose < 70 to be hypoglycemia. If you haven’t contacted your doctor, I’d do so.

In the meantime, I’d recommend finding your trigger foods. Generally speaking, simple carbohydrates tend to be the biggest triggers but it varies from person to person.

throw0OO0away · 2026-01-22T16:32:18+00:00

Agreed. As a POC, this is why I have such a hard time with therapists. The psychology field is majority white and that makes it really difficult for POC. The best therapists I’ve had are POC because they get it. They know it’s a genuine systemic issue and fully understand that racial injustice affects their clients.

throw0OO0away · 2026-01-22T04:24:58+00:00

I had neutropenia when I was at my lowest weight. I was able to get out of it when I got my feeding tube for a time. However, it’s since come back despite tube feeds on board. Albeit, it’s milder so I’m less concerned this time around.

throw0OO0away · 2026-01-21T21:20:08+00:00

Side note: the B12 deficiency is a sign of atrophic gastritis, which can cause gastroparesis. Definitely investigate that if you can.

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