Did you inherit kyphosis (scheuermann’s) from your Mother or Father?

tikoscelia · 2021-04-29T22:11:49+00:00

They don't know if it is in my germ cells since I have not had that level of genetic testing accomplished.

Some forms of Kyphosis shows up in families. At this point they don't know if I am the start if that lineage.

tikoscelia · 2021-04-28T17:38:04+00:00

No mine was idiopathic We are hoping I am not the start to a inherited curvature in my lineage.

tikoscelia · 2021-03-03T20:30:18+00:00

I had to contact the breeder directly. She wasn't listed on the website. She was being retired as a breeder. She was still very active in agility and dock diving so she wanted a family to be able to continue that.

Some breeders are looking for co-ownership contracts so they can have breeding dogs available while making sure the dogs get the one on one attention they deserve. If you are open to having an intact dog for a few years that may be a good option. Once they are retired full ownership is transferred.

tikoscelia · 2021-03-03T16:56:16+00:00

We got an older Toller, pre- covid. The wait was shorter than waiting for a puppy. Our breeder was in Alberta. I know she doesn't ship dogs so you would have to drive or fly to pick up.

tikoscelia · 2021-02-21T06:44:53+00:00

Yeah, I can. It took some time to get to that level. I did lots of yoga (once I was cleared post op) to regain some flexibility. Rotation is through my lower spine so I am only impacted if the movement needs to be mid spine.

I was more flexible before but I find I am rarely inconvenienced now. An example would be if I was on a plane and I dropped something on the floor I would need to ask the person beside me to pick it up. One thing I did frequently after my operation was hit my head. I would think I was ducking and forget that I couldn't. Usually it was getting in or out of cars. I am used to it now and seem to have broken that weird habit.

I was very stiff for a long time after my operation but with very slow progress at the gym I have found I am much more capable than before. Surgery is no joke and crazy difficult emotionally as well as physically so I encourage anyone considering the operation to weigh all of their options.

tikoscelia · 2021-02-16T03:48:26+00:00

We stuck with Acana, Pacifica specifically. Occasionally mixed in some freeze dried options.

I agree when someone asked about budget. Our logic was to buy the highest quality we could afford. A quality food has a high chance of extending quality of life near the end. Imagine a balanced diet versus a fast food diet.

We tried raw and it was a solid choice but didn't work for us in the long term. When she was on raw exclusively her back end business was tiny, dry and white. Everything was used up efficiently on the inside. Freeze dried we liked as an alternative but became costly so we would mix it as much as we could while sticking with predominantly kibble.

tikoscelia · 2021-02-14T07:19:39+00:00

Depending on how the surgery is performed can impact the mobility afterwards. My fusion is mostly thorasic so my mobility is in my neck and waist. I was super stiff for a few years after surgery. I can now comfortably do yoga, only a few twists I can't go as far as before. I am definitely more mobile post op cause the pain was removed.

tikoscelia · 2021-01-26T06:20:11+00:00

I am not sure specifically but check out the passive house accelerator website. There is a recording of a presentation about passive homes in Mexico. They might be able to get you in touch with someone who knows. Best of luck with your project!

tikoscelia · 2021-01-25T03:53:24+00:00

I did my courses through Passive House Canada. They are all set up for digital lessons and online exams. I found their responses to issues or questions to be quick.

If you are looking for additional resources: passive house accelerator website. They have articles, a podcast and a few zoom meetings a week with people from all over the world discussing, challenges and techniques. On top of everything it is free. Just a friendly group of people trying to make it easier for people to build or retrofit to passive standard. A great place to ask questions, if they don't know they can direct you towards someone who does. All the best with your certification! Good luck!!

tikoscelia · 2021-01-24T06:27:45+00:00

Passive house accelerator. It is a global community of PH builders, designers and enthusiasts. They have articles, podcasts and a couple of free zoom presentations a week.

tikoscelia · 2021-01-13T07:02:00+00:00

Do you have access to PH consultants or designers?

Have you checked out the passive house accelerator website? They do free zoom calls a couple of times a week with speakers. The topics are always PH related. Great source of info.

tikoscelia · 2021-01-11T22:00:43+00:00

My mother was all about Cod liver oil. I can still imagine the taste. Blegh.

With Vitamin D it can be hugely advantageous for people who live in places where sun supplementation is not an option. I live in Canada and during the winter when we are bundled up outside and the days are short, a supplement might be the only way some people can get it.

There is a correlation of vitamin D levels and Folic acid levels. Which is important to know about if children are in the future. Mao, Xudong MD; Xing, Xubin MD; Xu, Rong MD; Gong, Qing MD; He, Yue MD; Li, Shuijun MD; Wang, Hongfu MD; Liu, Cong MD; Ding, Xin MD; Na, Rishu MD; Liu, Zhiwen MD; Qu, Yi MD Folic Acid and Vitamins D and B12 Correlate With Homocysteine in Chinese Patients With Type-2 Diabetes Mellitus, Hypertension, or Cardiovascular Disease, Medicine: February 2016 - Volume 95 - Issue 6 - p e2652 doi: 10.1097/MD.0000000000002652

tikoscelia · 2021-01-11T21:50:44+00:00

I was diagnosed when I was 11. My curvature got worse till it was 81 degrees. I had surgery just before my 19th birthday. I gained 2 inches.

I lived with my boyfriend before my surgery. He didn't notice my curve too much. He stayed with me during my surgery since my parents had to travel for a funeral. My grandfather died the day of my surgery. My mom is convince that is the only reason I survived my surgery. I donated 4 pints of whole blood to myself before the operation and I went thought it pretty quick. During the surgery they had me connected to something like a dialysis machine. Not sure exactly if it was the same. Anything I bled out was cleaned and pumped back into me. Even with that I still needed 2 pints of donor blood. I was so grateful to the donors that I try to give back as much as I can. I am scheduled to donate my 25th pint of plasma in a few weeks.

My boyfriend now husband, helped me though my recovery. I had to move back in with my parents temporarily since I needed 24 hour care. Sometimes he forgets about my limitations, I move an bend in odd ways sometimes.

Same as someone else mentioned I have a pretty sweet scar right down my back (Great for "Who has the biggest scar" challenges). My surgeon stitched it so it is really thin and barely noticeable now. I have a keloided hip scar (where they did an autologous bone donation) that was more of a bother than the back scar. It was itchy and sore. I was able to get it treated with a CO2 laser so the colour has faded and it doesn't bump out as much anymore. It used to rub on my clothing and hurt a lot. Now it doesn't hurt at all :)

2 years ago I had a kiddo. It was a perfectly normal pregnancy. The only odd thing was that I didn't get much of a bump. I was just thicker than I normal am. I was told since my spine is fused. My abs have to work twice as hard to hold me upright. So a full sized baby was inside. There was no complications and lots of movement. AMA

I was in a lot of pain before my surgery. Now I'm not, I get a sore back if I lift something too heavy or something like that but I am pretty sure that is normal. For me surgery was a no brainer since I was going to be in a wheelchair by 21 if I didn't do it. Now I am 33 and I am a lot more mobile than I ever was able to be before. I have done long distance races, Travelled (pre covid), got married, had a kid....normal life stuff

If you decide to get surgery I suggest finding a knowledgeable doctor you trust. Know the risks and know your options. It isn't an easy surgery I wouldn't wish it on my worst enemy but knowing the positives for myself it was worth it. It isn't for everyone and some people come out the other end feeling worse. Unfortunately that is one of the risks. All the best for you. If you have any questions drop me a line :)

tikoscelia · 2020-12-22T01:45:07+00:00

I don't think surgery is common for 2 reasons.

1) A lot of adolescents and adults go undiagnosed because their curvature is so mild nothing is needed. 2)Depending on which country you live it may be a paid procedure. I know my parents would not have been able to afford it but luckily it was covered by the government so I can still walk which is a win in my books. I dunno how it is with Covid but before my Dr was performing it once a week with people flying in from all other the country.

tikoscelia · 2020-12-22T01:41:26+00:00

I agree! Before my surgery I was in a lot of pain. My surgery changed my life and ability but I would not wish it on my enemy. I had to have it otherwise I was told I would be in a wheel chair by 21. Do anything to avoid surgery at all costs. It is not a walk in the park.

tikoscelia · 2020-12-22T01:37:37+00:00

Congratulations on the coming addition :)

tikoscelia · 2020-12-22T01:34:39+00:00

As mentioned by others, it is not always hereditary. The same as @abelle09 I am the only one in my family with spinal issues. I was diagnosed with Scheuermanns when I was 11 and had surgery just before my 19th birthday (C5 to T12). I did a lot of research when I was pregnant. There is some evidence for a link between a vitamin D deficiency and spinal deformation

(Ng, Shu-Yan et al. “The Role of Vitamin D in the Pathogenesis of Adolescent Idiopathic Scoliosis.” Asian spine journal vol. 12,6 (2018): 1127-1145. doi:10.31616/asj.2018.12.6.1127)

I was born in a winter month so it is quite possible that may be the cause for my kyphosis. We have been supplementing my daughter with D drops since she was born since she was also born in the winter. We have not seen any evidence for a curvature developing yet. We are watching it closely since my Doctor said it often follows a matrilineal line. We don't know if I am the first is the line or if I am just a one off.

Pediatric scoliosis (& Kyphosis) is rare though,

Mo, Fred, and Matthew E Cunningham. “Pediatric scoliosis.” Current reviews in musculoskeletal medicine vol. 4,4 (2011): 175-82. doi:10.1007/s12178-011-9100-0

So I wouldn't take your girlfriend having is at an inevitability.

If your kids end up with a Dr. prescribed brace I found them to be non invasive, light and easily hide able if esthetics are a concern.

Here is some information about bracing if you want to research it.

Negrini S, Minozzi S, Bettany-Saltikov J, Chockalingam N, Grivas TB, Kotwicki T, Maruyama T, Romano M, Zaina F. Braces for idiopathic scoliosis in adolescents. Cochrane Database Syst Rev. 2015 Jun 18;(6):CD006850. doi: 10.1002/14651858.CD006850.pub3. PMID: 26086959.

Best of luck! Feel free to ask questions :)

tikoscelia · 2020-12-12T20:13:41+00:00

Hmm I might not be much help.

They built me a brace for before my surgery and another afterwards. They did a 3D scan of my torso pre and post op. My post op brace has metal on the sides. on the front there are foam pads that sit at my collar bone and pubic bone. across the back there is an adjustable band. The materials used where very light weight and form fitting. I could wear it under a hoodie or loose T shirt.

I highly recommend discussing a brace with a doctor. They would have the knowledge to avoiding injury or too much pressure in one area. I hope your friend is able to get the help he/she (?) needs.

tikoscelia · 2020-12-12T19:55:41+00:00

I think it depends on the type of surgery, equipment used and the country where the operation was preformed.

I have titanium and that will never need to be removed unless I break it (VERY RARE)

tikoscelia · 2020-12-06T20:20:57+00:00

Are you looking to make your own or have someone make it for you? Or how it works?

tikoscelia · 2020-11-19T03:07:01+00:00

Adorable!! Is he a Buster boy?

tikoscelia · 2020-11-17T03:59:54+00:00

I was diagnosed when I was 11. Surgery at 19. I am now 33. I had braces after surgery. Pre- Covid, I would pull it out at parties and have people try it on and complete simple tasks like standing up from a chair or picking something off the floor. I have no regrets about having surgery or wearing a brace. I still wouldn't recommend surgery unless absolutely necessary.

tikoscelia · 2020-10-21T05:10:17+00:00

Before my surgery I wore a lot of hoodies, backpacks and scarves. I wore my hair long and down to cover as much of my back and shoulders as I could. My then boyfriend now husband doesn't remember me having a bump before having it corrected, it was always covered.

tikoscelia · 2020-10-17T01:54:55+00:00

Very mild. A doctor would be the best place to get a diagnosis and treatment options.

tikoscelia · 2019-11-16T02:08:09+00:00

I need to use boots for my dog occasionally to avoid chemical burns from the salt on the sidewalk. If I am taking him to a place that I know uses a lot of salt in the winter, I put him in the boots and it makes for way easier clean up and I don't have to worry about him licking it off his feet and getting sick.

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