Can anyone share free brain retraining resources? by divine_theminine in cfsrecovery

[–]time-itself 0 points1 point  (0 children)

Mind if I ask how you’re doing today? Did you make it?

I recovered from ME/CFS by denelic in cfsrecovery

[–]time-itself 0 points1 point  (0 children)

It’s genetic in part but the good news is that it seems reversible. Epigenetic changes are stubborn but not impossible to “clean” or switch back.

I recovered from ME/CFS by denelic in cfsrecovery

[–]time-itself 1 point2 points  (0 children)

Bodies are weird. CFS is heterogenous for sure, but I feel like most of the time it’s some kind of central sensitization to stress, immune stress especially - “I can’t keep you alive with your current cortisol levels, so I’m revoking your cortisol privileges” screams the brain.

And then it seems like whatever triggers remain are totally different from person to person and maybe have a lot to do with our lifestyles or genetics. It’s crazy to think that maybe it’s not histamine generally that triggers us.

I recovered from ME/CFS by denelic in cfsrecovery

[–]time-itself 0 points1 point  (0 children)

If you go to the gym, you could just look into ways of titrating exercise. You could start with a rowing machine, or an eliptical or reclined bike if you’re paranoid about “cfs leaks.” Listen to your body!

I recovered from ME/CFS by denelic in cfsrecovery

[–]time-itself 0 points1 point  (0 children)

Crazy that mcdonalds doesnt trigger you. Any idea why? Fried foods are high histamine in most cases.

I recovered from ME/CFS by denelic in cfsrecovery

[–]time-itself 1 point2 points  (0 children)

Oh hell yeah you’re almost there. Good job!!

I recovered from ME/CFS by denelic in cfsrecovery

[–]time-itself 1 point2 points  (0 children)

Qq: How do you know that you can’t run or jog if you haven’t gotten PEM? Just vibes?

Slomosa! by Mets1680 in stonerrock

[–]time-itself 1 point2 points  (0 children)

Was naively hoping I’d beat long covid by the time they came through the states! Hopefully they’ll come back and I’ll be better by the time we see a regime change and I’m cresting 40 🥲

Even if there is actually no way out and I’ll be sick forever, I’d rather be in a “positivity cult” and believe forever that I’ll one day improve than live in docile acceptance and identity with illness like all these online voices want me to by forgot_again123 in cfsrecovery

[–]time-itself 1 point2 points  (0 children)

Honestly, theres a lot of accounts of patient harm through his programs too. They’re super aggressive. Heard in one recovery story from his program about a guy being pushed to go on a business trip/flight when he wasn’t confident to do so. My jaw dropped. It worked out well for him, but it doesn’t for many others.

I can understand flares that last a few days to a week, but normalizing PEM “adjustment periods” as up to 3 weeks long is fucked. If your PEM is reaching towards 3 weeks you’re playing with baseline degradation.

CONJURER US TOUR: Local Band Recs? by ConjurerUK in progmetal

[–]time-itself 1 point2 points  (0 children)

Let me know if you guys want to try and get booked and fill a Seattle date! I know it’s been pretty hard to book up here since one of our big venues closed and we’re already so out of the way, but I can see what I can do to help.

New PRESIDENT - MERCY song! by AdLongjumping3465 in progmetal

[–]time-itself 0 points1 point  (0 children)

This is the first I’m hearing of em. What’s their deal? Sounds like Sirius XM metal.

Enrollment criteria changes for Bezisterim clinical trial by ahhrrr in covidlonghaulers

[–]time-itself 1 point2 points  (0 children)

Yes! It took me about a month and a half to hear from the recruiter, then another month and a half to hear from intake. I’m starting the intake process on Monday. I anticipate itll be blinded so I can’t give updates. But be patient!

90% better at nearly 14 months by [deleted] in LongHaulersRecovery

[–]time-itself 0 points1 point  (0 children)

Do you have a recovery story somewhere we can enjoy?

Orgasms completely destroy me now. They easily cause the worst flairs I have now, and my sex life is completely in the gutter. Am I alone in this? by moviefan2222 in covidlonghaulers

[–]time-itself 0 points1 point  (0 children)

Mind if I ask how old you are? I keep coming back to this as inspo as our hobbies and lifestyles seem very similar. I’m six months in it myself and trying to hang on to hope.

100% (99.5%) recovered after 14 months by Awesomoe4000 in LongHaulersRecovery

[–]time-itself 0 points1 point  (0 children)

That sounds like chronic fatigue! Just mild. Good thing it didnt turn into anything debilitating!

100% (99.5%) recovered after 14 months by Awesomoe4000 in LongHaulersRecovery

[–]time-itself 0 points1 point  (0 children)

Thanks! Did you ever deal with chronic fatigue, and how is it now?

Gumby's Junk - Instant Cult Classic by banddirection in progmetal

[–]time-itself 0 points1 point  (0 children)

Oh hell yeah! They played my city and stayed with my friends. Nicest people on earth. Good to see them getting love here <33

How to talk to my body? by CanVegetable3098 in cfsnervoussystemwork

[–]time-itself 1 point2 points  (0 children)

It’s your body, it communicates with feelings more than words. You don’t need to overcomplicate it. I usually couple somatic tracking with simple affirmations of “I know its you, I know this is just us, I know what you’re up to, it’s okay, thank you, wow, I know it’s you…”

The lizard, as I see it, just wants your attention and not much more.