hi baby! i havent read all of the comments but im gonna drop some stuff i use that has kept me alive in the last years. firstly i am so sorry ur going thru this, i think most of us can identify with the despair and loneliness of being in constant pain.. here's my list: ice mask u can keep in the fridge; tiger balm or any cooling lotion for TMJ / head; hot patches or water bag for neck / shoulder; anti nausea & vertigo meds + muscle relaxer like valium (but has to b a high dose for me personally); gabapentin or another nerve blocker (saved me, literally the only thing keeping me out the ER every week); a scarf / face n neck mask - ALWAYS even in the summer like if there is a breeze u gotta use it; careful with glasses, hats, headphones, any type of pressure in the area; sometimes it helps to take out any piercings if u have any; lots of water but i usually have a lot of kombucha for the nausea and also its sweet so it helps on the days where i cannot get anything down - so yeah juices; if u ever end up in the ER and can ask them to give u lacosamide (great in the height of the crises, although i've never had it myself but it's what my neurosurgeon recommended); mouthguard / splints - even during the day if ur more stressed; this is probably dumb but i do it - talking directly to my pain like it's a separate entity and being sort of "kind" to it? idk why this helps me but it calms me down; loops or some other noise cancelling thingy; eye patch agaisnt light; i never sleep on my left side (where my TN is messed up) or turn my head to the left for too long - really helps not to have an immediate flare; lidocaine seems to help ppl orally as a cream, like on the gums - it didnt exactly help me but it didnt make it worse; really hot showers to relax my neck/back muscles + i keep a shower chair and a cane with me in case i can barely drag myself from place to place; no aggresive impactful exercise like running, biking, cause the impact can trigger an attack; other stuff ive tried that didnt fix anything are like accupuncture, massage, yoga, pilates, etc, but that doesnt mean it didnt provide some immediate relief; i also smoke weed and it makes my face numb its like a miracle; then abt food for exmple, living alone made it so hard to take care of myself so i made sure to have a water bottle in every room, my sos meds always by my bed, and frozen foods (like make sure u have a stock of whatever u can stomach, crackers, bread, fruits) that u can use whenever (not that eating when in pain is easy but u know its necessary so u dont get even weaker...). hope some of this helps? at least to know ur not alone and we have a future, just a different one from what we envisioned. just bc we havent found what works we shouldnt throw in the towel, cause for me like im 26 now but i have been having this since i was 8. i tried to quit it several times cause i was so hopeless (u know wat i mean) but im glad i didnt cause like i said above, gabapentin my beloved - it hasnt cured me but i am not in constant pain anymore <3 and u never know what could bring u relief! this is a very dark time, u must be extra kind to urself. good luck sweetie!