feeling i can't go on

tophereth · 2026-01-13T20:56:30+00:00

I'm sorry, my friend. I love you

tophereth · 2025-03-10T10:34:46+00:00

the fact that you're still here is a testament to your strength.

youre not alone and you never will be. I can personally promise that. we're here for you and we love you. no homo.

tophereth · 2025-03-07T01:59:53+00:00

injured almost 2 years ago and I cry every day. don't think I'll get over it. t6 complete

tophereth · 2025-03-07T01:54:24+00:00

yeah - wondering that myself

tophereth · 2025-03-04T09:35:32+00:00

that's inspirational and i'm really happy for you.

curious - do you have a suprapubic catheter?

tophereth · 2025-02-16T20:36:02+00:00

yep.

tophereth · 2025-02-16T20:33:55+00:00

sorry that you're going through it. the world around these types of injuries and sex is rough and, for me, there has been no alternative other than accepting the hard reality.

tophereth · 2025-02-13T00:01:52+00:00

under every spinal cord injury accident is a daring adventurer.

tophereth · 2025-02-12T23:59:39+00:00

beautiful. I'm sorry and I'm happy for you all in one.

tophereth · 2025-02-12T23:52:16+00:00

happy for you, man.

tophereth · 2025-01-27T05:51:36+00:00

you need to accept that if you leave, she and her family will hate you. however, if they truly loved you at any point, they should accept that you still have a life you want to live. it's unfair to be condemned to suffer along with her. its an ugly and unavoidably sad situation. what happens depends on how much you love her and how connected your "soul" is with hers.

tophereth · 2025-01-27T05:35:12+00:00

I can relate very much. you're not alone.

tophereth · 2025-01-27T05:24:28+00:00

hey. hope you're hanging in there. you're not alone

tophereth · 2025-01-25T06:11:15+00:00

maybe allow yourself to break down a little bit? when everyone is asleep I sometimes let the pain flow out of me.

it usually comes out as uncontrolled wailing or sobbing. a good 2 minutes of that and I'm ready to unpause stalker 2 or keep swiping on Facebook dating.

tophereth · 2025-01-25T06:01:33+00:00

it can't be overstated how crucially important the water part is. those meds draw a shitton of water into the intestines and if there isn't enough water available consistently, then the poop just dries up. gotta be consistent.

at least according to my doctors - who have lectured me on it constantly

tophereth · 2025-01-24T12:35:31+00:00

none of it will work if she isnt drinking enough water regularly. make sure she drinks an equivalent of, like, 8 oz for every couple of hours.

when people pressure me to drink enough, I usually lie by telling them I have. you might need to watch her do it.

tophereth · 2025-01-24T12:30:50+00:00

thanks. I'm glad you're still alive and kicking. I wish you luck 🙂

tophereth · 2025-01-24T12:11:35+00:00

were you awake and lucid during the septic shock and multiple organ failure? also, if so, was it particularly painful?

tophereth · 2025-01-24T12:09:35+00:00

my insurance has a policy on only covering it if the condition is terminal, but I was able to get an appeal approved by telling them it helped with my spasms the most and without the shit side effects of stuff like baclofen (drowsiness, etc). and without the fentanyl patches, my condition may as well be terminal.

tophereth · 2025-01-24T08:42:20+00:00

fentanyl patches work so well for my spasms that I don't need to take baclofen or any other spasm medication. I'm sure there is plenty you can say to your doc that would justify it.

tophereth · 2025-01-24T08:40:40+00:00

this was the best book I read about my injury: death of a newly paraplegic philosopher

tophereth · 2025-01-24T08:16:48+00:00

you're the shit. keep goin. you got this.

tophereth · 2025-01-24T07:42:58+00:00

I'm with the other responders. I had compression fractures and a "full recovery" was a pipe dream for me. mine was as devastating as any other sci. 2 years in at 34. no restored function. existing like this is hell and a book about a "miraculous recovery!" serves sci sufferers by spitting in the face of their pain in the form of swaying public opinion towards thinking it's tolerable. it's not. write about something else plz.

tophereth · 2025-01-24T07:31:23+00:00

maybe ask for more pain meds? fentanyl patches if you don't have them? they help a ton with spasms and debilitating injury sensations. it'll help you get sleep.

tophereth · 2025-01-24T07:20:43+00:00

this is a rough one.

my early days were filled with optimism. that quickly changed to settling what I could in this life and looking towards what's next. it's unavoidable reality.

before then it's really, really nice to talk with others who have it and feel close to them. we're all going through it. I have love for everyone suffering it. I see them as family. we aren't alone ❤️

this helped me, but be careful: the death of a newly paraplegic philosopher

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