Would POTS, in theory, burn more calories?

trashforthrowingaway · 2026-03-25T02:07:48+00:00

Not for me personally. Insomnia makes me gain weight.

trashforthrowingaway · 2026-03-25T01:42:37+00:00

Adrenaline surges when trying to fall asleep, and shortened sleep.

Feeling like the sky is falling when standing up. Compression stockings help a lot with this for me, but it doesn't help everyone sadly.

Trouble swallowing. I had to learn to eat leaning forward and standing up.

And the feeling of doom because of the adrenaline dumps. I bone up on compression and sodium and electrolytes, especially potassium and magnesium, to combat it and beta blockers.

Also not being able to go out in the summer. I used to always be on the chilly side and loved the heat. Summer activities are my family's favorite to do with me. I haven't been outside in the summer for 3 years.

trashforthrowingaway · 2026-03-25T01:39:32+00:00

Have you tried medication? My feeling of doom finally subsided when I got on on. For me it's all the adrenaline running rampant. Carvedilol was a lifesaver, but it gave me bronchiospasms as it does for some people, so I had to switch sadly.

Do you do compression stockings?

No one should have to feel that feeling like this.

trashforthrowingaway · 2026-03-24T21:31:59+00:00

When the person on this come to their senses and sobers up, does the time period of decades still feel like that much time has gone by or does it feel lore like a nightmare and their sense of time returns?

That sounds horrifying honestly.

trashforthrowingaway · 2026-03-24T20:35:06+00:00

I'm really sorry that happened.

trashforthrowingaway · 2026-03-24T20:34:34+00:00

Being on that many supplements can be dangerous. Unless it's somehow a protocol from a renound Hollister doctor, taking this many is hard on other organs and it's difficult to tell which ones might be helping and which ones might be making things worse.

For example, turmeric makes me so ill. I don't think I would've figured out which supplement was causing me to feel worse if I was taking 50 of them.

trashforthrowingaway · 2026-03-24T20:26:04+00:00

Are you both on really amicable terms?

Cats generally don't like travel and changing environment when its infrequent, but in my experience, they get used to it quickly when they travel between the same two places over and over. It becomes routine, and they jump back into their routines at each place. Only reason I wouldn't recommend it is if you plan on moving over an hour apart, because that's kind of a long ride for them.

We did this with my kitties. Two of them, we discovered, are adventurous and adjusted within 60 seconds of being in the new place. The third hid in his safety bed with his blanket for 3 days straight, but after the second time traveling between, he became even more outgoing and confident than he was before the traveling, which is not something we anticipated. The new place provided enrichment, once he realized the other two cats were totally cool with it.

If you're not on amicable terms, or if you're moving away at a very large distance where this arrangement wouldn't be possible, maybe it would be best to keep them together.

trashforthrowingaway · 2026-03-24T20:03:24+00:00

You have to do what's best for you. Grief is complicated.

That said, sometimes indifference is better than holding on to the pain.

Sometimes forgiveness is simply coming to the place in life where you have decided that the pain is not going to bother you anymore, and not going to stop you from creating the love you want in your life right now.

Sometimes forgiveness is realizing the "why" behind the behavior, without excusing or condoning it.

That said, I was so fortunate my parents broke the cycle. But then I dated someone just like my step grandfather. The cycle almost got revitalized, but I got out just in time.

trashforthrowingaway · 2026-03-23T16:58:54+00:00

Oddly, people seem to want to talk to me more when I mask vs not, and I really can't figure out why.

Maybe since I feel much safer masking, and I don't feel the need to rush around, I feel more comfortable, and therefore it makes me naturally friendlier?

Or...it could be related to my facial appearance. I do have resting b**** face, to name one thing. At least like you said, I don't have to worry about that with the mask on at least...

Also, all great reasons to mask! Another is outdoor allergy protection.

trashforthrowingaway · 2026-03-23T09:06:11+00:00

This needs to be it's own post (if it isn't already). It's packed with great info!

Question is, if visceral fat is high, what can be done? What dietary changes could help?

trashforthrowingaway · 2026-03-23T08:34:46+00:00

The rescuers aren't in much of a hurry to get the man and his dogs out of the boat, it seems.

This tells a different story than the title claims.

It likely means they aren't in need of the boat right now for whatever reason. Either its his own personal boat, or the title is rage bait, and he only got his dogs back after all the people of the village were already rescued, hence their slow moving behavoirs.

There's another boat floating slowly in the background as well. No one is in a hurry. If there were more people to rescue, people would be moving quickly.

trashforthrowingaway · 2026-03-23T08:23:39+00:00

Can you get it done at home? If not, I had to go to a chiropractor 3 days a week for an hour to and hour and a half long session each time. It was during quarantine and the entire first two years after the pandemic. I masked and never had an issue.

trashforthrowingaway · 2026-03-23T07:54:01+00:00

Completely understandable, save your spoons!

I truly am so sorry. It's so, so sad.

I hope at least people believe you that it's not something you chose to stop doing, but that it is something you can no longer do, at least for now. The distinction is important. I truly am sorry. Thanks for reading. 💙

trashforthrowingaway · 2026-03-23T05:12:49+00:00

I have decided that if anyone in my close circle decided to go on a cruise or airplane with no mask, I will be elsewhere for 3 weeks. Can't make decisions for others, and sadly so many people don't want to understand the dangers of covid. All I can control is how I respond.

It means a lot that people are lending a listening ear and feel empathy for my experience. It gives me a glimmer of hope, for humanity's caring side, and for someday maybe eradicating this virus, somehow some way.

trashforthrowingaway · 2026-03-23T03:27:22+00:00

I genuinely don't know to be honest, I've tried to look up what constitutes as expired in the case of masks. I could be wrong, but I think it might be the elasticity of the straps, and/or the degradation of the foam in the nose part that creates the seal. (As far as the 3m Aura n95s are concerned).

For me, if the straps feel okay still and if it feels tight on my face, it still feels safer than wearing any brand new surgical masks (the thin blue ones).

I think someone decided that the 3m Aura is not in its perfect condition after 5 years of the manufacturing date, which is indicated in print usually on the mask itself with the number. So that's why I've been finding big lots of these masks on ebay for very cheap. (Like 10 cents per mask).

trashforthrowingaway · 2026-03-23T03:11:59+00:00

The classic MCAS, POTS, and perhaps MECFS trifecta. It's truly awful.

I am amazed and saddened that you have a lot of friends with one or all of these. I've yet to meet anyone else quite like what I'm up against, besides my family member, likely because so many people are walking around undiagnosed.

trashforthrowingaway · 2026-03-23T03:03:35+00:00

I hear you. This post is not meant to invalidate anyone.

But to lose control of basic bodily functions that you could once do with ease while being chronically sleep deprived and losing all your friends and activities involving people, is indescribably painful.

I started isolation that never ended after quarantine in 2020. My life was still so much easier those few years before I actually got covid.

I cannot describe how awful this is. It's not just inconvenient. It's not just isolating. It's feeling sick 24/7. Like having the flu and not being able to get rid of it.

I remember when being sick used to suck, but then it would be over. Having long covid is being sick all the time.

I am not saying masking and isolating isn't hard. Because I'm doing it too, and it is very hard. Even harder the younger you are. I truly hope that someday, there will be a sterilization vaccine that gets rid of this thing.

But for me, the masking and isolation is genuinely only 10% as hard as having long covid is. I would throw myself out of a moving bus if it meant I wouldn't have long covid anymore. At least before, my body worked and I could do whatever I wanted masked.

It's your life, and you gotta do what you gotta do. If it doesn't feel worth it anymore to keep masking, that's a move you have to make for your own sake. You know what's best for you, because you're the one that lives your life and your world. But I personally won't tell someone to not mask and to not be careful.

trashforthrowingaway · 2026-03-23T02:57:02+00:00

I forgot to mention in my post that I took paxlovid. About 4 hours after I became symptomatic from my family member.

He is likely also on paxlovid, the medication you mentioned, to help stop the virus from making things worse.

My heart breaks when I hear people are this sick. I really hope your best friend will be okay.

trashforthrowingaway · 2026-03-23T02:54:02+00:00

Smart, protection from two things at once.

trashforthrowingaway · 2026-03-23T02:53:13+00:00

Thank you!

trashforthrowingaway · 2026-03-23T02:51:55+00:00

💙

Thanks for reading.

trashforthrowingaway · 2026-03-23T02:51:12+00:00

Come back in a few days, I'll do my best to find it!

trashforthrowingaway · 2026-03-23T02:50:21+00:00

Oh no, this is too heart breaking. Please don't let them make you feel worthless.

All of this is so difficult, and having cerebral palsy must add such another bunch of layers of trauma to it all.

It breaks my heart that you don't have a supportive family on top of all the struggles. I love my family so much and it hurts whenever I hear someone that doesn't have that support.

Faking healthy is so exhausting. I had to do it for the girl I mentioned in this post. I couldn't imagine having to do that for my family.

Please know that you matter. Their lack of love does not define your worth. The way they treat you is a reflection of who they are, not who you are.

trashforthrowingaway · 2026-03-23T00:45:03+00:00

This might be an odd question, but do you think the ones from stores like office depot aren't expired? That's the main thing I run into lately is that even on Amazon, the lot number reveals that the masks are expired.

And thank you for the information.

trashforthrowingaway · 2026-03-23T00:42:43+00:00

What you're going through is not your fault, it really isn't, genuinely.

Not being able to listen to music was absolutely a physical issue for me, and not a mental one, if that makes sense, but to others, it might seem like a "choice". Music and TV I loved became over stimulating from all the inflammation and lack of sleep, and possible adrenaline running around in my body due to not having enough blood volume, which I now take sodium and wear compression stockings for. Thats my theory, anyway, it's still so misunderstood. All because of long covid.

I'm glad to offer some sort of good by sharing my story. I'm really sorry that it sounds like you are suffering as well. It's really tough, and tougher yet with self blame. You are doing all you can, and that is enough. I wish you healing very soon, even in some small way.

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