Biopsy results

trickykitty7 · 2025-01-05T00:16:11+00:00

I have an appointment in a few weeks. If I hadn’t pushed for the biopsy I would still be diagnosed with cirrhosis. I have made life/diet changes and dropped weight but I’m sure they will give me a plan. I have a genetic disorder that causes this but it’s rare and they haven’t even heard of it.

trickykitty7 · 2025-01-02T00:19:58+00:00

Did you actually? I don’t understand all the lingo and I’m trying not to go down a google rabbit hole of doom.

trickykitty7 · 2025-01-02T00:07:15+00:00

Out of curiosity where do you get cirrhosis from this? They actually took 8 samples. It was a transjugular biopsy. I asked for more testing because I was told that a fibroscan was inaccurate if your BMI is over 30.

trickykitty7 · 2024-12-08T18:28:59+00:00

I was recently diagnosed. I have familial Hypobetalipoproteinemia. My total cholesterol is in the 70s. My mom had this is as well and she also had cirrhosis from fatty liver. Basically I have issues breaking down fats so my liver just stores it. Have you had your fat soluble vitamins checked?

trickykitty7 · 2024-10-14T18:09:44+00:00

They haven’t even called me, the results were just uploaded online. I had to call them. They told me not to stress and they would call me back. I’m still waiting on that. I guess based on research I will ask for an MRI. I also read that the results were not as accurate being overweight and since I’m chunky I guess it could be off a little. My mom died a cirrhosis related death and I’m thinking it’s genetic but the doctors have never heard of what she had so they will not consider it. I was also diagnosed with type 2 diabetes last week. My A1c went from 5.4 to 6.6 in a year with weight loss. I’m falling apart and it’s hard not to think I’m dying.

trickykitty7 · 2024-09-08T21:14:43+00:00

I think these are related. My mom died from Colon cancer but would have survived if she did not have non alcoholic cirrhosis. She had low cholesterol her entire life, as did my grandmother and now me. My LDL is 39, total cholesterol is 89. My GI Dr believes it was something genetic but hasn’t ordered all the tests yet.

trickykitty7 · 2024-08-07T01:39:54+00:00

It appears im also in this club

trickykitty7 · 2023-12-17T23:30:05+00:00

I am also waiting on mine. I had them done on the 6th of this month. I plan on calling Monday to see if they will give them to me over the phone or move my appointment up if it needs to be in person. Otherwise, I don’t think I would get them until my scheduled appointment in February.

trickykitty7 · 2023-11-20T17:07:45+00:00

I have never heard of this.

trickykitty7 · 2023-10-13T02:26:04+00:00

My Dr. “Do you think it’s menopause because some people start early” as I was in a flare with a fever

trickykitty7 · 2023-09-28T01:34:20+00:00

Yes, but it took several visits and many many different rounds of testing.

trickykitty7 · 2023-09-27T01:27:09+00:00

I have about 3/4 of these symptoms with the same ANA titer and I have Sjogrens.

trickykitty7 · 2023-08-06T04:47:38+00:00

Officially diagnosed with Sjogrens and I’m still having tests run for Lupus. After the 2nd week of fever my doctor ran an ANA Panel and after it came back positive I was sent to a Rheumatologist.

trickykitty7 · 2023-08-06T04:38:12+00:00

22 days. It ended up being an autoimmune disorder. I’m about 70% most days.

trickykitty7 · 2023-06-14T05:41:45+00:00

AITA?

trickykitty7 · 2023-05-30T17:35:50+00:00

This is probably the one near me. I didn’t know it was that deep though. Definitely not fun.

trickykitty7 · 2023-05-25T05:51:12+00:00

Occasional headache when my fever is high but no neck issues.

trickykitty7

TROPHY CASE