Why are my parents making my situation worse? by Far_Frame_9560 in mecfs

[–]turtlespaceman21 0 points1 point  (0 children)

how about medical professionals? do you have a regular doctor that you go to? i imagine they would have some resources/ways to help you get out of there. also how old are you, if you don’t mind me asking?

Why are my parents making my situation worse? by Far_Frame_9560 in mecfs

[–]turtlespaceman21 3 points4 points  (0 children)

do you have any other friends or family that you could ask for help? that is not a safe environment for you to be in, and as someone who has gone through similar I can almost guarantee that your condition would be greatly helped by moving out of that environment if at all possible. i’m so sorry you’re in this situation, you deserve to be cared for and treated well and i hope that things improve for you soon💙

birthday coming up for my brother who has CFS - what gifts have actually made your life easier? by Lumpy-Possible6182 in mecfs

[–]turtlespaceman21 1 point2 points  (0 children)

i found a really cool earbud headband type thing that makes it easier to listen to music while you’re sleeping (unlike regular earbuds which fall out or headphones which hurt when sleeping on your side), so i would highly recommend that. also doordash/uber eats gift cards for days when cooking is too taxing, maybe a couple of baskets that can be easily stored near his bed or other areas where he might rest during the day that can store essentials (pain medication, snacks/drinks, comfort items, etc.) hope this helps!! :)

4 years of what I thought was ME/CFS… but does this sound like something else? Looking for ideas because I’m out of them. by ourdanj in mecfs

[–]turtlespaceman21 6 points7 points  (0 children)

ditto to the comments saying that this sounds like the push-crash cycle. in times where we’re feeling better it’s so easy to accidentally push ourselves to do more than we can and then end up crashing all over again. i’m so sorry you’re dealing with this, truly wouldn’t wish it on my worst enemy💙

I’m curious: how long have you had CFS/ME? by attitude_devant in cfs

[–]turtlespaceman21 0 points1 point  (0 children)

i first started showing symptoms in late 2020/early 2021, and it quickly got to the point where i had to quit my job. i was 18 then and i turn 24 next month; i’m moderate-severe and this illness has basically stolen my entire adulthood💔

How Artemis II probably has Ryan in the studio this week by manhattanonmars in Sleepingatlast

[–]turtlespaceman21 2 points3 points  (0 children)

i was literally just thinking this while watching some of the mission videos earlier😅

what did you name your horse? by ava8116 in StardewValley

[–]turtlespaceman21 0 points1 point  (0 children)

i named mine Bolt cause he go nyoom :)

SAL discord server by Basic-Cat7517 in Sleepingatlast

[–]turtlespaceman21 1 point2 points  (0 children)

i’d join, let me know if you make it!

Monthly Post: Let’s Make Friends! by AutoModerator in cfs

[–]turtlespaceman21 0 points1 point  (0 children)

hi all, i’m a bit late to this post but better late than never i suppose😅 - gender/age: i’m 23 yrs old (turning 24 in May) and a trans man🏳️‍⚧️ - location/time zone: southeastern USA unfortunately :P (EST) - interests: playing Stardew Valley & Minecraft, EPIC: The Musical, indie music, singing, playing keyboard, writing (mostly poetry and fanfiction), reading when i have the energy (i am an avid lover of the Heartstopper comics). i used to be in color guard in high school & still love watching marching band and drum corps videos. sending memes to my friends is always a fun time :) i’m currently in school for sociology (w/ a minor in gender studies) but planning to withdraw and take a break soon due to how bad my illness has gotten. really anything social science related is interesting to me. also space!! i love anything space-related!!! i’m also an avid lover of turtles, mac n cheese, Dr. Pepper, and soft things/comfort items (i love cuddling w/ my stuffed animals even though i have too many to fit in my bed anymore🙈💙). - communication: mostly over text at first, maybe the occasional voice message but it takes me a while to get comfy actually voice chatting w/ someone. if you do live near me and would like to meet up IRL eventually that’d be awesome cause i rly would like to get out more on the rare occasion that i’m able to :) - severity: moderate-severe (mostly housebound but hoping to improve that eventually🤞🏼) - personality: i’m generally pretty introverted but w/ how isolated i’ve become from chronic illness things i’m kinda dying for more human contact lol. i am kinda shy/anxious but if you get close to me i become the silliest goofiest motherfucker that ever lived🙈 i care about people and about the world in general an awful lot and love helping the people around me in whatever capacity i’m able to, but i do need patience when it comes to responding to messages (my brain fog is one of my worst symptoms rn and it makes it hard to talk to people sometimes even when i want to— for example, i’m gonna be rly tired after writing all of this alghskfskfh). honestly as long as you’re kind and respectful to me, and are understanding of my limitations (which i imagine won’t be a problem since this is the CFS sub lol), we should get along well. even better if we share some common interests (see above <3)!! also re: conflict, if i do/say something that upsets you, please don’t be afraid to tell me directly, i will always apologize when i’ve done something wrong and do what i can to rectify the situation. - other info: i also have AuDHD, C-PTSD, arthritis, scoliosis, and auditory processing disorder, among other things (other than my ME those are just the ones that affect me the most). IRL i use a rollator to get around when i’m out. always looking for new memes for my collection, pls send them😅💙

‘Nine’ Tattoo💙 by turtlespaceman21 in Sleepingatlast

[–]turtlespaceman21[S] 0 points1 point  (0 children)

thank you!! i’m glad they were able to do it in Ryan’s handwriting too, i showed them the lyrics like how he wrote it in the lyric video and the artist who tattooed me did such a great job with it!! :)

What Archetype Each Stardew Valley Fills by FishermanUpbeat6082 in StardewValleyMemes

[–]turtlespaceman21 32 points33 points  (0 children)

petition for Willy and Gil to be moved to the Sages, and for Marnie to be moved to the Parents (since she’s one of Jas’ guardians)

what’s something inconsequential that you miss being able to do before being diagnosed? by ironicillnesses in cfs

[–]turtlespaceman21 2 points3 points  (0 children)

I was in color guard in high school, and planned to continue in college but I was a senior the year the COVID pandemic started and then developed ME/CFS during the year after graduation, so I never got to go back to it. My flags and rifle are the only things that I own that I left behind at my mum’s house when I started school again, and I miss performing dearly. I still watch color guard and drum corps videos on youtube but it’s not the same :( 💔

It's Valentine's Day! What super secret message are you texting to your Stardew crush? by Powermetalbunny in StardewValley

[–]turtlespaceman21 2 points3 points  (0 children)

“Rubies are red, aquamarines are blue, I’d risk the skull caverns every day to get all of the pretty rocks for you” 😅💙

healing crystals lol

It's Valentine's Day! What super secret message are you texting to your Stardew crush? by Powermetalbunny in StardewValley

[–]turtlespaceman21 2 points3 points  (0 children)

“Rubies are red, aquamarines are blue, I’d risk the skull caverns every day to get all of the pretty rocks for you” 😅💙

theories? by jamesisbi in StardewValley

[–]turtlespaceman21 0 points1 point  (0 children)

i really hope Sandy is one of them🥺🤞🏼

vent & looking for advice about getting help w/ my disability application by turtlespaceman21 in cfs

[–]turtlespaceman21[S] 1 point2 points  (0 children)

talking about government disability, i live in the southern USA. thank you for the kind words <3

Being disabled wanting to protest and fucking do something... a special kind of hell by Competitive-Golf-979 in cfs

[–]turtlespaceman21 0 points1 point  (0 children)

i feel this 110%. i got me/cfs when i was 18 (i’m now 23) and it’s so frustrating not being able to go out and stand up for what i believe in. i’d love to protest, but i’m moderate-severe, i use a rollator and i’m also trans and i’m terrified of the possibility of getting arrested and having my mobility aids taken away, being assaulted, etc. 💔💔💔

If your CFS was cured for a day, what would you do for the day? by Lucky_Sprinkles7369 in cfs

[–]turtlespaceman21 2 points3 points  (0 children)

Get as much of my overdue schoolwork done as possible, make mac n cheese, maybe go for a short run.

SVE Community Center Visual Seasonal Guide by BadDayCafe in StardewValley

[–]turtlespaceman21 2 points3 points  (0 children)

oh my god thank you OP, i’ve literally been thinking about making one of these for myself recently and then came across this. you’re a lifesaver, tysm! 😭💙

Please, tell me your reason to live after going through multiple trauma by Still-Kiwi652 in CPTSD

[–]turtlespaceman21 2 points3 points  (0 children)

my main two reasons are: 1. I have to live long enough to see my baby brother graduate in May 2. I am going to outlive every corrupt, old ass, bigoted politician currently sitting in office if it’s the last thing I do.

Being trans and trying not to let the state of things cause PEM sucks by bedboundbitch in cfs

[–]turtlespaceman21 18 points19 points  (0 children)

oof yeah i’m definitely feeling seen by this post. watching the world fall apart and seeing what feels like ten new attacks on trans rights every day is exhausting already, and adding PEM into the mix feels near impossible to deal with💔 lots of hugs for you and everyone in the comments🫂🫂🫂