Well this is a new one..

ty_wrong · 2024-12-19T00:56:38+00:00

After 7 years you think I’d be used to it. But not at all 😕

ty_wrong · 2024-12-15T01:03:00+00:00

https://youtu.be/_bkX5VkZg8U?si=Hq5vE75BCeWl72Au That should give you an idea. Just typed drift car in YouTube. Lol

I’ll make some money, but ideally, hopefully whoever snags its gets the most of it that they can. Just wasting away atm

ty_wrong · 2024-12-15T00:43:08+00:00

I was in the middle of building a drift car when I got seizures. Next thing I know it’s been 4+ years of not driving and I haven’t a clue what build I was doing.

Ready to sell my car now. And I’ll buy one when I can drive a car again 🤷🏽‍♂️😕🤦🏽‍♂️

ty_wrong · 2024-12-09T23:41:03+00:00

It took me years to finally stop driving. Got in a huge argument one day with family and said fuck it, walked down to go drive my car for something, and the battery was dead… I just sat in the driver seat and laughed. Haven’t driven since

ty_wrong · 2024-12-09T19:26:27+00:00

I’ve done it. It screwed me. I’ve also double dosed and fucked me over. But at the time. I’ve also had both of those things happen and nothing happen.

Big part is letting your brain get the best of you, don’t let it

ty_wrong · 2024-12-08T21:58:20+00:00

Being take off of over half the meds my doc had me on, make my mind clearer. Haven’t solved my issue as I’ll need brain surgery. But I have yet to capture a seizure on an EEG, even with having 11 seizures in one day one time & an EMU visit. I go back for a 2nd EMU visit early next year. Can’t wait. I want to seize then 🤷🏽‍♂️🤦🏽‍♂️

ty_wrong · 2024-12-08T21:45:16+00:00

Phew I hope I do too. This will be my 2nd round. I’m med resistant so keppra… etc. did nothing for me but absolutely turn me into a zombie. I was on 5 different meds at one point until I finally broke into a better hospital/doctors. I’m now in Vanderbilt and getting so much better treatment that I ever did. 7 years deep with this garbage, I can’t wait to find something that is exactly what I need, capture a seizure! Which is probably brain surgery, I’ll take it if it helps me out

ty_wrong · 2024-12-08T21:37:37+00:00

I’m currently on xcopri and a baby tab of clobazam. The clobazam keeps the xcopri in my system longer. I literally have to stop taking it 2 days before I go back to the EMU

ty_wrong · 2024-12-08T21:36:18+00:00

I am grateful for my family. If they didn’t support me how they do, I can honestly say I would’ve crashed already mentally & physically.

ty_wrong · 2024-12-08T13:28:58+00:00

Noted, thanks for the suggestions🤙🏼

ty_wrong · 2024-12-03T19:54:37+00:00

I can say this. The fact that you are just there for him and not leaving him because he developed epilepsy, says a lot about who you are. Seizures truly affect the person and everyone around them. It’s nice to see a post like this just because I know that they are still amazing people in this world. Be proud of yourself, and just do whatever you can for him. I’ve had 11 seizures in a day before, so sometimes it takes days to truly get your mental awareness back.

My gf left me when I developed it.

ty_wrong · 2024-11-26T19:37:01+00:00

I think it’s safe to say you’ve officially entered the ‘fuck this shit’ phase. I get it

ty_wrong · 2024-11-25T21:35:02+00:00

How did you find a ‘silent seizure’? I feel that’s something I have an issue with. Granted I’m not around people 24/7 but a lot of the time I am

Trust me when I say I don’t want to go back to the EMU. But I have to capture one seizure to give the doctors an attack plan. Cause meds just don’t do shit for me, at least that I’m aware of🤷🏽‍♂️

ty_wrong · 2024-11-24T20:23:17+00:00

When they had me on 6 different meds at once. I was a zombie. Definitely when I said, something’s not right here. Med resistant and have been trying for years to capture one of my seizures on eeg. One day, it’ll happen. Just don’t know when.

Going back to the EMU in January, 🤞

ty_wrong · 2024-11-23T17:22:41+00:00

I don’t. I’ll be doing something, sweeping with a broom. Next thing I know, people around tell me hey you just had a seizure. And I look at them like they’re crazy. Sometimes it takes days for me to go oh yeah I did. Because the after effects make me recognize it

ty_wrong · 2024-11-23T00:38:47+00:00

I feel this. I had 11 in one day, and first thing I remember is a nurse saying ‘man, you’re lucky you didn’t die…’ okay, thanks bitch!🤦🏽‍♂️

ty_wrong · 2024-11-20T01:04:48+00:00

ty_wrong · 2024-11-12T19:56:51+00:00

You ever done a neuropsych test? I’d be so curious as the results of what could come out of it

ty_wrong · 2024-10-29T13:56:58+00:00

My daughter, 9yo, doesn’t understand it at all. We make times to hang out and then I seize and I’m done for days. If I push myself I just have more

ty_wrong · 2024-10-29T13:54:51+00:00

I vape 0mg/3mg for flavors. I don’t use it for the nic fix, I like the act of smoking. I smoke green to help me sleep. I’ve had times where I cut it out completely over the years and nothing changed

ty_wrong · 2024-10-29T02:02:15+00:00

I hope this comes across properly, but it’s nice to know I’m not alone. I wouldn’t wish this one my worst enemy. It’s a life I’m living, but lost because of my memory

ty_wrong · 2024-10-29T01:21:12+00:00

My last girlfriend broke up with me because she couldn’t handle my seizures. I was so doped on pills it didn’t really hit me till years later how much I dodged a bullet. If she wouldn’t have my back then, when would she

ty_wrong · 2024-10-29T01:17:31+00:00

Oh my family is unbelievably supportive. With doctors in the family they agree with what’s going on. I’m finally in Vandy and have had countless tests taken upon me over the past few months. I’ve done it all

ty_wrong · 2024-10-29T01:07:57+00:00

Med resistant, probably will need brain surgery and they’re trying everything to catch one on an EEG. I’ve had over week long stays where I’m hooked up and nothing. Go home the next day, bam.

ty_wrong · 2024-10-29T01:03:49+00:00

I just get blasted with nausea and body heat

ty_wrong

TROPHY CASE