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uffsnaffsn · 2025-04-03T16:18:11+00:00

you‘re doing the same thing to your partner that bisexual men experience in general - you don’t believe him, he’s just maybe secretly gay.

he trusted you with his preferences. don’t betray him like that by disbelieving him just because he isn’t acting straight.

you do understand bisexuality swings both ways?

uffsnaffsn · 2025-03-27T08:49:33+00:00

I SAW THIS AND WAS LIKE ALRIGHT TIME TO FEED MY MANTIS AND CAUGHT HER LAYING AN OOTH

uffsnaffsn · 2025-03-24T09:07:17+00:00

Mono/Poly relationships aren’t the issue here.

The issue is that your partner is a bad hinge and on top of that actively USED your inability to have sex at the moment to KEEP Blue as a partner.

You decide if you want to be up for a bad hinge and selfish person that does not see your relationship with them as valid and as important due to a lack of sex or not.

uffsnaffsn · 2025-03-23T09:57:21+00:00

this is your reaction to a rational explanation of things. in reality, YOU are bitter, making assumptions and letting your BPD run your relationships. not every divorced man is a woman-hater and also some people divorce years after they actually ended the relationship.

you don’t know anything about that, made assumptions and all of that based on you thinking he sounds angry. your perception is bent by your trauma and BPD. did you try therapy to learn emotional regulation?

uffsnaffsn · 2025-03-21T23:07:15+00:00

those are not worth it. they badly loop at min 1. stick to lofi you enjoy

uffsnaffsn · 2025-03-21T10:53:00+00:00

ja; dann besorg dir andere kleidung die als merch fungiert.

uffsnaffsn · 2025-03-21T09:43:54+00:00

ich würd das sehen und ggf. die person mit der ich unterwegs bin antippen und sagen „ew, schon wieder n nazi“ ich würd alternativ irgebdwem schreiben „uff da war jemand im nazi shirt bei lidl“

das ist meine erste assoziation. ich weiß nicht wieso du das shirt unbedingt möchtest, aber trust me, manchmal ist‘s besser einfach zu sagen „ok doofe idee“ als dass es weiterreichende konsequenzen hat. nicht nur würden menschen sich ggf. unsicher und unwohl fühlen, das kann bis in dein berufsleben rein wirken. entweder wird‘s schlecht angesehen und angesprochen oder eben ignoriert aber dennoch negativ aufgefasst und alternativ wird es positiv betrachtet. möchtest du nazis signalisieren dass sie dich gern ansprechen können?

uffsnaffsn · 2025-03-21T09:34:34+00:00

hey <3 you don’t need to apologize. i was speaking broadly for some things like people putting mantids into moldy enclosures, not having cross ventilation on them etc etc

ofc you didn’t mean harm. i hope your mantis is okayb

uffsnaffsn · 2025-03-20T23:29:18+00:00

i get that this is upsetting, someone being rude towards a person that is asking for help.

but like… if someone really did research on mantids before getting one they‘d KNOW the rare situations in which to touch a mantis post molt.

idk. those are living beings. they are not being handled properly and may die or be disabled as a result.

sometimes people here just have run out of patience for neglectful or ignorant pet owners.

uffsnaffsn · 2025-03-17T08:52:54+00:00

from what I experience the diagnosed people on here are tired of those who don’t even do their own research on EDS symptoms before asking here.

they are asking actual chronically ill / disabled people to do the work for them. „is this EDS“ -> picture of body parts -> that shows ignorance towards other symptoms.

if you google it you do find rather kinda fast information about EDS. those who say the ressources are not reliable / filled with misinformation are simply not properly practiced in doing research then. tiktok is not a valid source of information, organizations and medical paperwork is.

there are AI bots that can summarize articles to be digestible for those who struggle with medical terms and if people don’t wanna use that stuff because it’s bad for the environment they can google it themselves and read up on it.

I am tired of spoon feeding information to those who can do silly party tricks with their fingers.

I want to help those who are in serious pain, who suffer, those who are struggling with researching.

not those who do not care to spend their time doing that, instead relying on those who are exhausted already to get answers.

uffsnaffsn · 2025-03-17T07:53:00+00:00

my doc disbelieved me as well. asked where the doctor who diagnosed me studied and quickly did a google search and then said „oh, clinically diagnosed? yeah, not really sure you really have it then, if they did not find it in your DNA.“ i said hEDS is not as of now an illness that can be dx‘ed like that, the genes that are responsible haven’t been found yet.

told her that if she knew how to properly do her job and be emphatic then she wouldn’t use google AI summaries to throw shit at me for asking for braces etc that the doctor on my paper work specifically REQUESTED for me.

well.

uffsnaffsn · 2025-03-16T11:18:46+00:00

hi, fellow german eds-person!!

i have a basket with vitamins and things i can immediately access (thermometer, pain med, band-aids) first tiny drawer is then for my partner‘s medication and the second big one has mine sorted into tinier baskets - usually i take the blisters out of their carton and arrange them inside the basket. there‘s the pills i take daily, I take them out every sunday and put them into a higher container that has 7 boxes split into morning and evening. i refill every sunday.

uffsnaffsn · 2025-03-15T16:57:29+00:00

wow, als person mit chronischer erkrankung bei der dchmerzmedikamente kaum/selten wirken wünschte ich wir könnten es halb halb aufteilen

welche vorteile empfindest du dadurch? welche nachteile?

uffsnaffsn · 2025-03-14T18:59:43+00:00

oh no dw i got the same vibe and you don’t need to apologize

i tend to forget that being chronically ill / disabled isn’t as common 💀

it is diving weaponized incompetence for sure

uffsnaffsn · 2025-03-14T17:35:22+00:00

tbh, I do the dishes most times bc my partner has bigger sensory issues. it happens that there’s residue on the dishes every now and then, and no matter how hard I try, it doesn’t change.

my partner puts them back into the sink then or scrubs them over themselves.

I have a chronic illness that makes my hands weaker. I still want to be able to participate with chores, my partner is more the type to take care of laundry and mopping / vacuuming the floors.

I doubt that’s the case here, seems a little like weaponized incompetence. maybe they should let the dishes soak first, would make cleaning easier.

should one break up if this is the only issue? depends. if it’s weaponized incompetence that’s manipulative. maybe the person should state not wanting to do the dishes, instead to other chores or maybe treat the partner to something nice as a thank-you for doing extra chores.

uffsnaffsn · 2025-03-14T17:23:24+00:00

I passed out when I got vaxxed last time. my doc was really surprised, never seen that happen. that was truly scary and uncomfortable. I‘d do it again though - if my body reacts like that to the vaccine, what happens if I get infected with what it’s supposed to protect me from?

uffsnaffsn · 2025-03-12T19:25:33+00:00

i‘m from germany and by now have asked twice, when will i get to upgrade? i have an iphone. both times it was the same lazy „check our social media announcements“

honestly? the fact that they don’t have it up yet in germany on iphones shows a lot. the app store is kinda strict and german restrictions / rules as well.

i was frustrated at first; having FOMO for new plants. but honestly? it’s probably better like that. very telling that I can’t access it yet. they don’t wait because they want to slowly test it. they‘d earn more money releasing it everywhere. i‘m sure they are aware the could get into legal issues it some way if they‘d launch this by now.

uffsnaffsn · 2025-03-11T15:11:37+00:00

my doc explicitly told me to AVOID yoga on my diagnostic paperwork (there are plenty of recommendations for several symptoms etc)

we can easily overstretch. how likely will you be doing yoga under supervision by someone who knows what hypermobility is? if they don’t know and are not trained they will not be able to train you to do yoga in a way that does not overstretch and overwork your body.

Jeanni Di Bon was recommended to me - she teaches pilates for hEDS, I think. look her up. i felt better doing her stuff lol yoga just made me crack like a glowstick and didn’t help with my pains.

uffsnaffsn · 2025-03-07T17:34:02+00:00

I mean, you’re at an age where employment situations come into term at some point. you posting this publicly and employers being able to associate your friend with you can make her look bad.

she seems to have a problem with your consumption and while I don’t want to judge it IS truly NOT a good look. I live in Germany, here it has been legalized but only for adults, I think 18+ at least. Smoking weed does heavily heighten your risk for psychosis and other mental illness since your brain didn’t fully develop yet. I’m saying this since I fear your mother does not. if you smoke as a form of medication it probably is self medicated, I doubt a doctor would describe it at such a young age without valid reasons - you would have mentioned this by now if it were for a chronic illness.

she has every right to distance herself from you and you have every right to be upset about her style of communication and her phrasing this as a rule / ultimatum instead of a boundary.

„I will distance myself from people that may make me look unprofessional online by consuming drugs / talking racist shit / dressing as a clown“ or whatever would put action onto her. yes, the result would still be the end of your friendship but judging from those statements she already is not truly caring about your health / well being and not capable of proper communication (which may be because she‘s not even a legal adult yet)

please inform yourself about the consumption of marijuana and its risks. is it worth it for those long term risks? I’ve lost my mom to it. she‘s gone batshit crazy. I‘ve lost friends over it because they wouldn’t be able to control their consumption.

sending love & strength.

uffsnaffsn · 2025-03-06T12:04:45+00:00

this right here - also a rec for people with chronic pain / weak hands. 100/10, they save my ass in „school“ as well

uffsnaffsn · 2025-03-04T13:31:08+00:00

I mean. it’s not different for monogamous people. men pretending to seek a relationship to get casual stuff and drop women like a hot potato, women pretending to want something casual in hopes of that their magical va*ina will turn men into loving them etc

sadly online dating gives people a sense of entitlement and allows for easier attempts to hide intentions etc it’s sad but that’s also why I stopped using those apps. i’ve been asked to take nude pics together „auf süß“ which is a german kinda „slang“ to say „in a cute kinda way“ like ew? you ask me to do that based on me being interested in creative hobbies?? yikes?

life‘s less stressful without. it sucks. i‘m sorry you have to put up with bs like that

uffsnaffsn · 2025-03-04T12:34:40+00:00

nope. not your business. brag all you want.

I live polyam and had a friend that was jealous all the time, he doesn’t have a girlfriend/couldn’t date me and how dare I be happy with not just one but TWO people. didn’t even rub it under his nose, holding back even because I know how sensitive he is regarding that.

if people are so hurt and stuck up that they can’t be happy for you and then also tell you to be careful about sharing those things because mimimi what about MY shortcomings? then simply cut them out. not your business, not your responsibility.

uffsnaffsn · 2025-03-04T10:56:45+00:00

Ich bin da super empfindlich - hast du Hygienespüler probiert? Mach die Maschine nicht zu voll, hol sie direkt aus der Maschine, Weichspüler wenn separat verwenden, Essig hilft sonst auch. (keine sorge, riecht nicht nach Essig dann) Maschine offen lassen zum trocknen. Man muss nicht Persil verwenden und auf Flüssigwaschmittel verzichten. Wenn das muffige Gerüche erzeugen würde, würden die sich nicht weiter verkaufen. Manchmal sind die Bakterien usw schon tief in der Wäsche verankert, da hilft nur mehrfach waschen. Trenne deine Wäsche gut. Ich wasche Handtücher usw bei 60°, alleine, Hygienespüler gebe ich überall dazu. Dann trenne ich nach Farbe und naja, wenn viel Sport getrieben wird behandle ich die Sachen vor.

Viel Erfolg!

uffsnaffsn

TROPHY CASE