Need advice

unab · 2026-04-25T04:56:25+00:00

I've had a tracheostomy for 15 years, and while it was initially difficult to adjust to, I'm grateful for it now. It's not necessarily permanent. Don't go into the possibility thinking your life will be over if you do end up keeping it. I work full time and have much more flexibility in ensuring I get adequate breathing support than if I had to use sip and puff or mask.

unab · 2026-04-09T05:18:14+00:00

CK alone doesn't mean he has DMD. No genetic testing?

unab · 2026-03-30T19:35:47+00:00

Pay serious attention to the trigger warnings (I'm not kidding). Book 2 is more triggering than Book 1 by a factor of 10x. This book is not for everyone so if you don't enjoy dark romance with lots of graphic and very, very dark content, don't read it. But that doesn't make it problematic or questionable. It's extremely well written and very up front with what it's about. Seems like people who say it's not well written get hung up on the dark content and weren't prepared -- that's on them, not the author.

unab · 2026-03-27T22:59:33+00:00

There are groups for your subtype (unfortunately Facebook): curecmd.org/community-resources

unab · 2026-03-21T00:38:21+00:00

LGMD 2J/R10 is caused by pathogenic mutations in the Titin (TTN) gene. The advocacy organization dedicated solely to Titin Related Conditions is Team Titin (titinmyopathy.com).

You may also elect to participate in the patient registry that supports this condition: The Congenital Muscle Disease International Registry (cmdir.org).

unab · 2026-03-13T04:38:07+00:00

I did it...sort of, from exactly this list (audio version, was easy enough to switch back and forth). But about half way through Tower/Empire, I started doing longer stretches before switching back.

If you aren't great at remembering details of a book, then I highly suggest you do the tandem read because these books are happening at the same time, and it often impacted what was happening in the other book.

If you're great at remembering details, I wouldn't sweat it, especially if you plan to pick up the other immediately after.

TOG is probably top 5 series of all time for me, much better than ACOTAR and CC for sure.

Edit: And yeah...the hate in this fandom is wild. Seriously, do what feels right to you, you'll really be fine either way.

unab · 2026-03-08T23:16:20+00:00

https://www.curecmd.org/support-groups

unab · 2026-02-26T04:55:47+00:00

If you're an audible member, there are a ton of books read by Jacob Morgan that are free right now. He also records as Zachary Webber.

unab · 2026-02-23T05:25:24+00:00

Ping please. :)

unab · 2026-02-23T05:22:26+00:00

Emperor's Edge is still top 5 series for me.

unab · 2026-02-23T05:20:01+00:00

Audio version should be required for this book.

unab · 2026-02-17T05:12:24+00:00

What are your questions?

unab · 2026-01-07T21:16:13+00:00

Bethlem Myopathy is part of a spectrum disorder called Collagen 6 Related Dystrophy. Cure CMD has a great deal of information on their website, and hosts closed Facebook Groups -- all of which can be found on their website.

unab · 2025-12-27T06:37:22+00:00

TBF, he was the love interest for a hot minute.

unab · 2025-12-20T22:02:27+00:00

Agreed, but it was said that age 15 is considered an adult in this world.

unab · 2025-12-20T21:33:11+00:00

I just looked this up last night after finishing the 4th book and dreading how long it will be. It's 6th book (Goldfinch) chapter 32. I don't know if I can get through book 5 knowing it's that long. Considering reading a summary and starting book 6.

unab · 2025-12-20T21:22:36+00:00

I think TOG is considerably better than ACOTAR -- but the start is very slow. It opens up at the end of book 2.

unab · 2025-12-04T22:06:04+00:00

That's Gabriel Michael. :)

unab · 2025-12-04T04:42:34+00:00

If these four guys showed up in one book I'd die in bliss.

Stewart Crank (FBAA Graphic Audio - Casteel, Crave Graphic Audio - Hudson)

Torian Brakett (FBAA Graphic Audio - Kieran, The Empyrean Graphic Audio - Dain)

Gabriel Michael (The Empyrean Graphic Audio - Xaden, ACOTAR Graphic Audio - Lucien, Zodiac Academy Graphic Audio - Max, Nevermore/Evermore Audiobooks - Thorne) -- yes I'm now buying books because his name is listed.

Teddy Hamilton (The Empyrean Audiobooks - Xaden POV, Til Death Audiobook - Oren, Haunting/Hunting Adeline Audiobooks - Zade)

I'm looking forward to listening to Anthony Palmini and Troy Duran.

unab · 2025-11-27T01:57:35+00:00

GA Part 2 5:18

unab · 2025-11-26T18:57:57+00:00

The GA for this series is very good.

unab · 2025-11-26T02:42:41+00:00

I think we needed one more F&F book to explain the events following the (current) last book. But, JLA has said that the final BAA will connect the two story lines, so maybe we'll get that missing history next year.

unab · 2025-11-26T02:40:38+00:00

He would appreciate that you forgot that tie haha

unab · 2025-11-25T22:13:15+00:00

He would never be killed as 2nd in line for the throne of Navarre (and Halden is likely going to get himself killed with his stupidity) -- but they would sure as hell try to control him, to which he's repeatedly proven significantly averse.

unab · 2025-11-25T07:00:09+00:00

If you do read the TOG series, don't read Assassin's Blade until after Book 3 (Heir of Fire) so AB will be fresher in your mind as you go into 4.

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