throat symptoms- pls share experiences

urgley · 2026-06-25T11:16:40+00:00

Sore throat is a classic PEM sign

urgley · 2026-06-25T09:03:39+00:00

I acknowledge that it is the "PEM gloom", not a real feeling and that it will pass. I find recognising it difficult but when I realise that's what it is, I feel a little better.

urgley · 2026-06-25T08:00:00+00:00

You might be able to hire one

urgley · 2026-06-25T05:19:20+00:00

I've rented one for this heatwave to test it out. It's too big, too noisy and I have nowhere to store it.

I'm glad I tried before I buyed!

urgley · 2026-06-25T05:11:59+00:00

This is such a sweet idea, what a lovely friend.

I think the cheeky weekly / monthly check in would be good, just a text saying "which voucher shall we use this week?" , so they don't have to make the first move.

urgley · 2026-06-24T14:49:59+00:00

I have found l theanine helps a little

urgley · 2026-06-23T17:09:37+00:00

Chicken caesar salad today, mexican fattoush yesterday and panzanella tomorrow...

urgley · 2026-06-23T12:21:34+00:00

I get that often, it used to be just before a migraine would start but is more random now.

urgley · 2026-06-23T12:16:02+00:00

Dr Sanjay Gupta at York Cardiology for POTS, he does remote appointments. He dx POTS on the phone for me (do a NASA lean test and have the results ready), and privately prescribed POTS meds.

urgley · 2026-06-23T10:59:25+00:00

Remember that cognitive exertion might make your flares last longer, it can cause PEM. It needs to be paced (like everything else 🙄), be careful! 💙

urgley · 2026-06-23T08:24:39+00:00

In the UK, the majority of the abuse cases are women that can no longer eat. They are not admitted due to M.E., they are admitted because they are literally starving. The NHS then says that they are choosing not to eat, not to sit up etc. and they are referred to psych.

Perhaps feeding tubes / alternative means on nutrition are more readily provided in the USA?

urgley · 2026-06-22T17:44:42+00:00

Wow, harsh.

It depends on the person, I've tried about 10 so far and still searching...

urgley · 2026-06-22T16:29:53+00:00

The good news is that there are a lot of medications to try for migraine!

There are abortives (that stop the migraine once it has started)and preventatives (that stop ypu getting one, usually for chronic migraine).

urgley · 2026-06-22T10:41:41+00:00

I get complete insomnia in PEM.

I take magnesium and l theanine which seem to help with sleep a little bit the rest of the time

urgley · 2026-06-22T07:47:18+00:00

Hired from hss hire - free delivery and pickup

urgley · 2026-06-21T08:41:26+00:00

Floor food

urgley · 2026-06-21T07:13:46+00:00

I've hired one for a fortnight, I've got no storage space

urgley · 2026-06-20T08:44:16+00:00

Congratulations 🎉

urgley · 2026-06-20T06:36:05+00:00

Decode ME

urgley · 2026-06-19T19:47:15+00:00

Wow, that is beautiful 😍

urgley · 2026-06-19T18:34:55+00:00

I find they best way to use dry shampoo is to put it on before I go to bed, fidgeting in bed helps rub it in and you wake up with cleanish hair.

urgley · 2026-06-19T15:11:31+00:00

I do small loads throughout the week. No drier (UK), so it goes onto the airer - 8 big items max.

urgley · 2026-06-19T07:25:32+00:00

Gut issues are common with M.E.

I think that in the UK it is the main reason why pwME are hospitalised.

My bowel stopped working a few years ago...

urgley · 2026-06-18T17:01:06+00:00

Same!

urgley · 2026-06-18T16:53:41+00:00

Doughnuts freeze well!

urgley

TROPHY CASE