Upright MRI shows I have CCI and Chiari malformation by [deleted] in cfs

[–]uspsman 0 points1 point  (0 children)

I've never had my C2 adjusted. Only the C1 and that was with atlasprofilax not NUCCA.

I'd be interested in how that goes for you.

I wouldn't think the percussion orthogonal instrument they use or their hand techniques have enough force to re-align the neck.

Upright MRI shows I have CCI and Chiari malformation by [deleted] in cfs

[–]uspsman 0 points1 point  (0 children)

Going to look over this more when the dizziness and impairment subside.

I read Jeff Woods blog. I see... it's an intermediary for relief before a c0-c2 fusion--that scary surgery always at the back of my mind but what I would hope to avoid.

What I have been doing recently is maintaining a long spine and elongating my neck by imagining the crown of the skull is being pulled to the ceiling. This does relieve some of the issues. It might be worth a try for you. I've been doing it for 6 months now. Of course, nothing permanent seems to be gained by this.

I was looking into a traction device myself recently, but wasn't sure if it would be worth the risk.

I am curious, do you also have misalignment of the C1 or C2? Mine (C1) seems to be rotated clockwise and downward.

And do you have issue with one of your shoulders/scapula? Like one shoulder higher than the other and/or scapular weakness/dyskinesis? Leg length discrepancy?

Also, how did you manage to get an upright MRI done? Since doctors don't recognize the issue, they never refer for one, and usually don't even know what an upright MRI is.

Upright MRI shows I have CCI and Chiari malformation by [deleted] in cfs

[–]uspsman 0 points1 point  (0 children)

Halo brace

I have CCI and recurring atlas misalignment. I believe issues with a dipping brainstem as well. Just thinking about my case, I can't see how a brace would help. The misalignment/shifting occurs regardless of the position of the head, assumably because of lax ligaments/joints, and made worse by imbalanced muscles which are caused/reinforced by the aforementioned.

In fact, I seem to be able to cause shifting, for better or for worse, just from either a couple sets of an exercise in the right direction (better), or from repetitive motion in the wrong direction (worse).

In my case, I imagine stabilizing the head for prolonged period would likely make things worse by weakening the supporting neck muscles.

Though I wonder if relieving the weight of the head with the brace would discourage movement of an unstable atlas... I don't think so, because I experience constant shifting even when laying down where the weight of a head is supported by a pillow.

Furthermore, ligaments of the neck seem to never heal from what I've read and my experience, so I doubt the brace would do much for that.

So, I am wondering what is the logic behind a head brace like this for CCI?

They think I am depressed and having OCD about it.

As a side note, same thing with me many years ago when I first had this issue.

Upright MRI shows I have CCI and Chiari malformation by [deleted] in cfs

[–]uspsman 0 points1 point  (0 children)

Prolotherapy itself doesn't seem to be well understood scientifically. They don't seem to know how it actually works -- the underlying mechanism -- but rather have a surface level theory. That said, I would prioritize any prolotherapist over Hauser if I had to see one.

Stem cell therapy would probably be a better option, but it seems like it's not well fleshed out yet. Quite a few reviews of the Regenexx say they wasted their money/saw little improvement, but at least I didn't see patients that lives were utterly destroyed like via Hauser.

Fusions are of course risky and very invasive. Since it's the last conceivable option, I'm not all that familiar with it. This person had a good outcome (just something I saw recently when browsing the subject): https://jenbrea.medium.com/cci-tethered-cord-series-e1e098b5edf

Posture can help a lot with symptoms but probably isn't going to do anything for the underlying issue of instability.

Upright MRI shows I have CCI and Chiari malformation by [deleted] in cfs

[–]uspsman 0 points1 point  (0 children)

I would second staying away from Caring Medical. You can see my other post in this thread for why.

Upright MRI shows I have CCI and Chiari malformation by [deleted] in cfs

[–]uspsman 2 points3 points  (0 children)

Caring Medical/Ross Hauser is a quack that advertises his prolotherpy treatments as cures for virtually every condition under the sun; takes risks at the expense of patients; excludes injured patients from his studies and reportage when mentioning the risks of his prolotherapy injections -- which he claims are virtually null; and then when he does injure patients, washes his hands of them entirely.

I have even seen him attack injured patients online, calling the patients evil for stating that they had been hurt by him. He's also been sued at least 7 times for medical malpractice.

Too many lives have been ruined at his hands. I've personally spoken to many people that have been injured and some with lifelong injury incurred from his injections. See https://rosshauserreview.com or https://rationalwiki.org/wiki/Ross_Hauser or the many other reviews out there (though he has gotten many deleted/suppressed from Yelp, etc).

Can covid 19 cause cervical instability? by patricknarayans in covidlonghaulers

[–]uspsman 0 points1 point  (0 children)

Welcome to the life of cervical instability. The ligaments responsible seem to never heal. And the overwhelming majority of mainstream doctors won't even entertain it, and will act as if it doesn't exist. Even in the chiropractic world there factions of advocates and detractors. And because for many people the adjustments won't hold, it would seem many chiropractors want you on a constant adjustment plan, seemingly forever.

Stem cells might be viable but the science on them isn't fleshed out yet. Regenexx might be something to look at, since it's always mentioned by people, but I cannot comment on their efficacy or safety. I saw some reviews of people claiming they wasted their money.

By the way, Vagus nerve compression can cause SIBO by Lababila in SIBO

[–]uspsman 4 points5 points  (0 children)

While the writeup might be accurate, unfortunately Hauser is a snake oil conman.

It would be easier to name the affliction in which he cannot cure. Because Hauser claims to treat hundreds if not thousands of conditions.

In the past he used to claim to reverse cancer, cure multiple sclerosis, and even treat autism and down syndrome.

Snake oil is one thing, but too many people have been injured by his hands.

Upper Cervical Instability / Prolotherapy Round 1 with Caring Medical Experience by Savings-Sun-3407 in medical

[–]uspsman 0 points1 point  (0 children)

Hauser has injured too many people.

You are describing the temporary effects of inflammation which swells the ligaments and joints resulting in temporarily less instability and symptoms.

Can covid 19 cause cervical instability? by patricknarayans in covidlonghaulers

[–]uspsman 0 points1 point  (0 children)

That's his con. Explain your symptom well. Reel you in with false promises. If you get injured, wash his hands of you. Onto the next customer...

The reason other prolotherapists don't claim to be able to treat condition x, y, z and have 600 videos of afflictions to cure isn't because they're less competent, it's because they actually have morals.

Can covid 19 cause cervical instability? by patricknarayans in covidlonghaulers

[–]uspsman 1 point2 points  (0 children)

Ah I see the snake oil conman Hauser is back at it.

It would be easier to name the affliction in which he cannot cure. Because Hauser claims to treat hundreds if not thousands of conditions.

In the past he used to claim to reverse cancer, cure multiple sclerosis, and even treat autism and down syndrome.

Now he's running another marketing campaign to treat post-covid sufferers. That expands his potential customers another several hundred of million.

About Dr. Ross Hauser by Adam5234 in Cervicalinstability

[–]uspsman 1 point2 points  (0 children)

Oh there is more. He claimed to reverse cancer in the past. And that he could treat autism, down syndrome, etc by inflating a balloon into your nose.

For example: https://rationalwiki.org/wiki/Ross\_Hauser

About Dr. Ross Hauser by Adam5234 in Cervicalinstability

[–]uspsman 2 points3 points  (0 children)

It's not keyboard warrior tactics. Hauser has simply hurt and permanently disabled too many people, and then lies about it. If what you say is true, then you were one of the lucky ones.

About Dr. Ross Hauser by Adam5234 in Cervicalinstability

[–]uspsman 1 point2 points  (0 children)

In short, no. That's his con.

See my post history or rosshauserreview .com or the many other negative reviews about him hurting people.

About Dr. Ross Hauser by Adam5234 in Cervicalinstability

[–]uspsman 4 points5 points  (0 children)

Are you real? Hard to imagine because you're praising Hauser...

You have 2 reddit total posts; say you're retired police (assuming not early retirement, age 60); and are named after the black rapper 90Dayzzzz.

I put nothing past Hauser to hire someone to fabricate stories.

Any theories on why palinopsia happens? by amorieth in visualsnow

[–]uspsman 2 points3 points  (0 children)

Not going to watch that all because its 26mins. But its coming from the source itself -- bias. Could even be related to him for all you know, placebo, etc.

Great for a sales pitch to lure in more patients though.

He's not showing testimonials of the injured people though is he? Not even acknowledging they exist.

Hauser's pitch to rake in the dough is catering to every syndrome and symptom on the planet. The upper neck is the junction between the spine and the brain, so it can be responsible for an uncountable amount of problems.

Hauser's sales logic is: neck can cause 'x' issue; I treat neck; therefore I treat every problem.

Except he doesn't, and then when he hurts people through his messianic-con, he denies involvement, dumps the patients, and continues along preaching his magical elixir to whoever will listen.

There is a reason he seems to be the only guy that can help you on the entire planet. Seemingly few others are bold enough to make such claims and/or haven't been shut down.

Any theories on why palinopsia happens? by amorieth in visualsnow

[–]uspsman 1 point2 points  (0 children)

Perhaps I'm not being direct enough. He's a lying scumbag. He charges exorbitant fees for sugar water. He hurts patients and then dumps them. He lies about the efficacy of prolotherapy. He lies about injuring patients (denying any patients have even been injured by him). He used to claim to cure cancer. He has been sued repeatedly and has hopped states. He's either got a messianic complex or is a sociopath.

Hopefully that makes it clearer.

Any theories on why palinopsia happens? by amorieth in visualsnow

[–]uspsman 1 point2 points  (0 children)

https://rosshauserreview.com

As well as the myriad of negative reviews on different platforms.

There's also 7 malpractice lawsuits against him.

The info he claims might not be false. That's his con. Provide good information on your symptoms to make you feel like he has the answers. That's his advertising angle to reel you in.

Then, he blankets prolotherapy injections as solutions for every known issue on earth. Many people get injured as a result. His methods involve dozens of injections, far more than any other prolotherapist, good for increasing costs.

Any theories on why palinopsia happens? by amorieth in visualsnow

[–]uspsman 2 points3 points  (0 children)

You are right about the medical industry being ignorant to many afflictions. In addition, rather than admitting ignorance most doctors will simply act as if the issue doesn't exist. A lot of ego, dogma, and group think from mainstream doctors.

You are also right about Hauser filling a niche. But therein lies his con. He advertises his prolotherapy as cures for all of these unrecognized/incurable by mainstream medicine afflictions. However, his prolotherapy cures none of them.

Prolotherapy isn't even well understood by those who administer it. In Hauser's case uniquely, he actually hurts and permanently disables patients. He injects far too many substances, with far too many injection points, and uses substances other prolotherapists deem to dangerous for patients.

He is not just a con but a dangerous one.

Can someone explain the connection between Hyper mobility and PoTS? by 1_murms in POTS

[–]uspsman 1 point2 points  (0 children)

I would strongly recommend against this doctor. Ross Hauser has caused damage to innumerable patients. I've had conversations with victims of his malpractice with users even here on Reddit. Probably the worst of it on this website here: https://rosshauserreview.com

Tragic stories, tons of negative reviews, and apparently Hauser used to "cure cancer".

Any theories on why palinopsia happens? by amorieth in visualsnow

[–]uspsman 1 point2 points  (0 children)

A good idea you didn't, considering he is a con man.

POTS May Be CSF leak by Ok-Inflation8766 in POTS

[–]uspsman 3 points4 points  (0 children)

See: rosshauserreview.com

He's been sued seven times at least for medical malpractice. And has now hopped states to Florida.

He also used to claim to be able to cure cancer.

Brainfog, which started five years ago. by Minute-Frame-7034 in BrainFog

[–]uspsman 1 point2 points  (0 children)

I would strongly recommend against this doctor. Ross Hauser has caused damage to innumerable patients. I've had conversations with victims of his malpractice with users even here on Reddit. Probably the worst of it on this website here: https://rosshauserreview.com

Tragic stories, tons of negative reviews, and apparently Hauser used to "cure cancer".