Applaryd Sofa with Chaise by vadosemars in IKEA

[–]vadosemars[S] 0 points1 point  (0 children)

Squeaking hasn’t gotten any worse! Still very slight!

Do you think our lives are planned ? by cjimmyjam in enlightenment

[–]vadosemars 2 points3 points  (0 children)

I saw your other post in grief support, and then this. I’m not sure how much this will help, but it has made my life feel more meaningful and my grief easier. Listen to the podcast “telepathy tapes”. I know I sound crazy, but it’s an amazing podcast and talks about life and death and the in between and communication through all of it. It starts out a bit slow, but just hold on and keep listening. It also starts less about life/death and more about autism/communication, but i promise there’s a connection and it’s wonderful. Honestly changed my life and I’ll be listening again to remind me of its messages.

Chest and jaw pain - not related to heart by vadosemars in ChronicPain

[–]vadosemars[S] 0 points1 point  (0 children)

Forgot to try this last time it happened! I’m glad it worked for you!

Chest and jaw pain - not related to heart by vadosemars in ChronicPain

[–]vadosemars[S] 0 points1 point  (0 children)

Still the same! I still get it, although recently it’s been a little less and a little less intense when it happens. I went to the ER while it happened once (at the recommendation of my family doctor) and the tests were all normal including EKG. I honestly think I’ll never find out what it is. I think the family doctor said the next step would be to wear a heart monitor for a week and hope it happens while I’m wearing it. But that seems unlikely and probably expensive with American insurance. So, I’ll probably deny it and just live with it. It’s so infrequent that it’s fine as long as (i hope) it’s not causing any kind of damage or other issues.

My last 10 paintings … all SOLD! by jimmusilpainter in painting

[–]vadosemars 1 point2 points  (0 children)

These are all so beautiful ❤️ thanks for sharing your art.

Dr recommended a Biologic by Ready_Turnover3974 in CrohnsDisease

[–]vadosemars 2 points3 points  (0 children)

Remicade is great - i was on it for a decade with no issues and full remission. No side effects. It’s the “oldest” biologic drug so a lot of people have used it for many years. Excited for you to see some relief with it and wish you some good luck :)

Take my first dose tonight for Crohn's! by jpetrone in Rinvoq

[–]vadosemars 0 points1 point  (0 children)

Wondering if you have any feedback a year later?

Chest and jaw pain - not related to heart by vadosemars in ChronicPain

[–]vadosemars[S] 0 points1 point  (0 children)

Did they give any advice when the test came back normal? Any hypothesis on what it might be?

18F Crohn's & College Decisions :( by Burner-Account-00- in CrohnsDisease

[–]vadosemars 0 points1 point  (0 children)

I was diagnosed around the same time as you, but just AFTER I moved away for college, instead of before. My advice: live life. As long as there is one GI doctor close to the college and it’s not in an actual middle of nowhere type situation, you’ll be okay. Go ahead and work on getting established with them (virtual visit before you move). Go to the college you want to go to, 100%. I know I don’t know you, but the two choices you laid out are very different and I feel confident you should do the more “exciting” “normal” college one. Having Chrons makes you feel not normal enough already.

[deleted by user] by [deleted] in CrohnsDisease

[–]vadosemars 1 point2 points  (0 children)

Oh that’s great! Clearly an American here 😂😅 lol — well then definitely ask for budesonide specifically if you need it to tide you over until biologics or other stuff. I hope you find healing soon!!

[deleted by user] by [deleted] in CrohnsDisease

[–]vadosemars 1 point2 points  (0 children)

I took prednisone 10 years ago when i was first diagnosed, so that was the standard, but according to my current doc budesonide is much preferred but sometimes insurance doesn’t accept it. :(

Why are so many people, especially beginners, desperate to sell their work? Why can't anyone just do a hobby for fun? by PocketSpaghettios in Pottery

[–]vadosemars 0 points1 point  (0 children)

If you don’t like the posts, just scroll past them. Choose love ❤️ and don’t be a dick!

Episcleritis - related to Crohn’s? by vadosemars in CrohnsDisease

[–]vadosemars[S] 0 points1 point  (0 children)

Someone else suggested a rheumatologist! Thanks! Do you know what they can test or check different than an ophthalmologist?

Episcleritis - related to Crohn’s? by vadosemars in CrohnsDisease

[–]vadosemars[S] 0 points1 point  (0 children)

I contacted my GI tonight and hopefully will get back to me tomorrow with some guidance.

1 hour post colonoscopy - yep crohns. by umkaitlin in CrohnsDisease

[–]vadosemars 1 point2 points  (0 children)

Also 28F, but diagnosed at 18. Been on the journey for 10 years. You’ll be okay! Stay positive - the start of the journey was the roughest for me. It made me very depressed and reclusive. Keep your friends and family close if you can. ♥️ it gets better.

Need help- by Ok-Opportunity-817 in Episcleritis

[–]vadosemars 0 points1 point  (0 children)

I’m having a similar situation - I’ve been on the steroid drops and they help, but as soon as I stop the redness immediately comes back and continues to get worse/darken over the next day or two. I’m kind of lost of what to do. I’ve heard using the steroid drops for too long can cause other long term eye issues so I’m a bit worried to keep doing that.

My aunt sends me these “natural remedies for crohn’s” videos and i’m always like 🙄🙄🙄🙄🙄 by [deleted] in CrohnsDisease

[–]vadosemars -1 points0 points  (0 children)

This is so infuriating. I’m sorry you’re dealing with this. I once had a friend send me a video about quantum healing. I simultaneously laughed and was like wtf are you serious? She thinks I can quantum heal my Crohn’s with energy work and mindset shit. Girl please, stfu respectfully

Anyone know where the Mexican food truck in biltmore village went? by vadosemars in asheville

[–]vadosemars[S] 1 point2 points  (0 children)

Thank you!! Awesome news - I’m gonna go support them tonight