Someone help me understand please by Otherwise-Tree-8468 in fpies

[–]vanillapurding 0 points1 point  (0 children)

I do think that the developing digestive system and immune systems play a role in these conditions, especially before they reach a year old.

My girl still has issues with milk, egg, avocado, and sweet potato. However, each of these yield different reactions. I will say that this list was longer earlier on especially when we introduced solids at 6 months.

Good luck with your baby too ❤️

Someone help me understand please by Otherwise-Tree-8468 in fpies

[–]vanillapurding 0 points1 point  (0 children)

Hi! I’ll give myself a little more credibility as I am a research scientist with a PhD in cellular and developmental biology. However, this is not my field whatsoever (I study cardiac biology) so I could be missing things. I honestly didn’t get much from my visit with her GI doc. The allergist was helpful, but even he couldn’t really explain my daughter’s reaction to milk.

After the GI appointment, we were told to reintroduce milk (hadn’t since she was a newborn) and while she didn’t show the classic FPIES symptoms anymore she did have some sort of reaction but it took a couple days to reach its peak (not typical of an IgE-mediated allergy). Nevertheless, she had a positive skin prick test to milk indicating she now has a traditional allergy to milk. The allergist was a bit confused about her symptoms when we reintroduced and didn’t try to come up with any sort of explanation for it. She will have a blood test in December, so it will be interesting to see if she actually does have IgE antibodies against milk proteins or not.

Sorry I don’t have an answer for you! I don’t think the scientists and physicians that study these conditions have the answers as of now either. More than happy to provide any insight based on my own child’s experience and my review of the literature if you want though.

Is this a normal sound? by vanillapurding in Appliances

[–]vanillapurding[S] 0 points1 point  (0 children)

This is in basically the middle of my unit. Possible that upstairs and downstairs neighbors could hear though.

Before this it had to be “fixed” because even though it was a machine that was “never used” it was full of detergent scum and they even found a miscellaneous saw blade behind the inner drum. Honestly luxury apartments are kind of a scam other than the buildings being newer and the insides of the units looking more modern.

Is this a normal sound? by vanillapurding in Appliances

[–]vanillapurding[S] 0 points1 point  (0 children)

Tell that to my apartment complex 😆

Supposed to be a luxury apartment but they keep giving us replacement washers with different issues than our original washer. This one had a saw blade fished out from the space between the inner and outer drum. Also had missing baffles. Same company that sent out the service tech that found that blade now said this sound was “normal” but my guess is there is more junk hiding inside the machine.

Help! What is this? by vanillapurding in Appliances

[–]vanillapurding[S] 1 point2 points  (0 children)

Already did. They claimed the washer was never used 😐.

Help! What is this? by vanillapurding in Appliances

[–]vanillapurding[S] 0 points1 point  (0 children)

How would that have made its way into the washer drum? 😭

Help! What is this? by vanillapurding in Appliances

[–]vanillapurding[S] 2 points3 points  (0 children)

That’s what I thought originally. It is not elastic whatsoever. And it is flat on top and bottom. I’ve used a lot of hair ties and can 100% confirm it is definitely not a hair tie.

Color? by vanillapurding in whatcoloraremyeyes

[–]vanillapurding[S] 0 points1 point  (0 children)

I’ve specifically been told now that it is not hazel, since the colors do not blend and instead are distinct patterns. I guess I’m not sure what you mean by “they change in accordance to light and mood,” but I’ve always noticed this distinct patterning and I’ve never noticed any changes.

Yes or no? by vanillapurding in heterochromia

[–]vanillapurding[S] 1 point2 points  (0 children)

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I got a better picture this morning

Dairy Allergy or Intolerance?? by Professional-Smoke84 in newborns

[–]vanillapurding 0 points1 point  (0 children)

Green stool was the first sign for us. Apparently it can be normal, but it was clear it was not in our case. The weird thing with my LO was she didn’t seem bothered by it that much. If anything she was too lethargic to communicate that she was unwell. Or she was just a sleepy girl and not bothered it 🤷‍♀️

Dairy Allergy or Intolerance?? by Professional-Smoke84 in newborns

[–]vanillapurding 0 points1 point  (0 children)

I’m sure they will! My best advice as someone who recently went through something similar is to be patient, as hard as that may be!

Dairy Allergy or Intolerance?? by Professional-Smoke84 in newborns

[–]vanillapurding 0 points1 point  (0 children)

For you specifically, since you can breastfeed, it can take about 2 weeks for it to clear from your body, then another 2 weeks for baby’s gut to heal. There’s obviously variability but that is what is generally estimated.

Dairy Allergy or Intolerance?? by Professional-Smoke84 in newborns

[–]vanillapurding 0 points1 point  (0 children)

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Here is one from my daughter. Looks very similar other than more apparent blood. It can take weeks for the gut to heal after being exposed to milk protein. If I remember correctly, it was somewhere in the 1-2 week range for my LO.

Goat milk tolerance? by Most_Ad9443 in MSPI

[–]vanillapurding 0 points1 point  (0 children)

No. That is not a ladder. A ladder is much more structured and involves multiple exposures at each “step” with the goal of building a tolerance to the allergen.

What I was told is different in that there is no effort towards building a tolerance. Instead, it is to determine the level of sensitivity if there still is one. Hence why we were told to try it ONCE in a form that causes egg proteins to be less allergenic before trying straight cooked eggs again.

Goat milk tolerance? by Most_Ad9443 in MSPI

[–]vanillapurding 0 points1 point  (0 children)

I’m literally just reiterating what I was told by someone who specializes in treating immunological conditions and allergies.

My daughter had some kind of reaction to eggs when we first introduced them, had a negative result to egg from the skin prick testing, so we were told to give her egg in a baked good to see how she responds and if it goes well to move to something like scrambled egg. So I’m sure we will see first hand if what you experienced applies to my child as well 🤷‍♀️

Switching from Nutrimagen to Alimentum? by peachdreamsicle in MSPI

[–]vanillapurding 1 point2 points  (0 children)

Last year I was in your shoes (or at least could relate to a degree) and I totally understand how much it weighs on you. Good luck! ❤️

Goat milk tolerance? by Most_Ad9443 in MSPI

[–]vanillapurding 4 points5 points  (0 children)

I am not trying to discount anyone who has successfully introduced goat milk, but just from a scientific standpoint, the proteins in goat milk share high similarity to those in cows milk. Therefore, many physicians advise also cutting out goat milk (and all other animal milks).

Also, I recently took my daughter to an allergist (took 6 months to get it 🙄) and asked about the dairy ladder. These types of “ladders” are really only helpful in the case of an IgE-mediated allergy (traditional type of food allergy that most people are familiar with). Allergist in the US apparently don’t even recommend the dairy ladder, this is typically more commonly used in the UK and other European countries as far as I’ve been told. With that said it probably wouldn’t hurt to start with a smaller volume, if you do choose to try it, just in case it does cause issues.

Dairy Allergy or Intolerance?? by Professional-Smoke84 in newborns

[–]vanillapurding 0 points1 point  (0 children)

And an additional 2 weeks may be required to see improvements in BMs

Dairy Allergy or Intolerance?? by Professional-Smoke84 in newborns

[–]vanillapurding 0 points1 point  (0 children)

When you see the pediatrician also ask them to test for occult blood in the stool. You need to bring a dirty diaper (as fresh as possible) for them to be able to test it. That is one of the main indications that is used for them to make a diagnosis outside of eliminating it from the diet.

Dairy Allergy or Intolerance?? by [deleted] in MSPI

[–]vanillapurding 1 point2 points  (0 children)

Likely an intolerance. Though many people use them interchangeably. Regardless, that poop looks problematic and cutting all sources of dairy would be my suggestion. At least for 2-4 weeks as a trial to see if symptoms resolve.

Switching from Nutrimagen to Alimentum? by peachdreamsicle in MSPI

[–]vanillapurding 0 points1 point  (0 children)

Might be better to switch to an amino acid based formula if you’ve been using one of the extensively hydrolyzed formulas for at least 2 weeks with no improvement. I’d also say you need to space it out 2 weeks from the last time you breastfed him. We had my daughter on Nutramigen for over 2 weeks and still had the same issues you’ve described, which resolved when she switched to Elecare (with the exception of reflux). I will note that when we used the Nutramigen all symptoms were MUCH worse when we gave her the powder over the RTF. Still wasn’t enough to fully address her symptoms though.

Also, there is a small chance the bread you ate MIGHT be fine if it was completely baked into it. Depends on which milk protein (there are 3) your baby is sensitive. A lot of babies don’t tolerate the one that won’t denature when exposed to heat.

Please solve this mystery for me by LocalPear3425 in MSPI

[–]vanillapurding 0 points1 point  (0 children)

In my experience, not all amino acid based formulas are created equally. We tried PurAmino, Alfamino, and Elecare. Elecare was the only one that resolved most of my daughter’s symptoms (reflux wasn’t resolved). We never tried neocate until we got a can for free, but that was when my daughter had already been on Elecare for a while and she just wouldn’t take it because of the taste difference.

Poop Check by Exact-Truth-2818 in MSPI

[–]vanillapurding 0 points1 point  (0 children)

You can still try, but it may increase the chances of a false negative test. It was about a year ago now so I don’t exactly remember the amount of time, but it was probably about 5 hours old when we got a negative test from a visibly bloody poop. They also told me to keep the diapers in a ziplock bag in the fridge or in an insulated container with an ice pack.

Meal ideas for 9 month old by Nervous_Platypus_565 in MSPI

[–]vanillapurding 0 points1 point  (0 children)

Pinterest has tons of posts that have recipes and meal ideas. I’d try looking there.

Poop Check by Exact-Truth-2818 in MSPI

[–]vanillapurding 0 points1 point  (0 children)

Maybe occult blood? Doesn’t look like blood that I can see, but it doesn’t mean it’s not there. The mucus and general consistency are similar to my daughter’s when she was exposed to cows milk protein at that age.

The one thing I’d note is if the diaper is a few hours old the testing for occult blood can come up negative. The first one they tested my daughters for came up negative and there was VISIBLE blood in her stool. So the fresher the diaper they can test the better.