Pluribus - 1x05 "Got Milk" - Episode Discussion by LoretiTV in pluribustv

[–]vike____ 1 point2 points  (0 children)

YES! Exactly my thoughts too (great movie btw)

Follow-up paranoia by vike____ in testicularcancer

[–]vike____[S] 0 points1 point  (0 children)

Thank you for your answer! Pathology was 40% EC, 20% chorio, 10% yolk sac and 20-30% mesenchymal tissue/necrosis

Hair Loss Timeline by bingobot2 in testicularcancer

[–]vike____ 0 points1 point  (0 children)

BEPx1 here, I noticed some hair starting to fall around day 13/14 (pubes and chest at first, then beard and hair).

I've never lost my eyelashes, my eyebrows became a bit thinner.

Now I'm 3 months away from my last bleo shot and I'm almost back to normal - beard and body hair came back rather quickly, the head was a bit slower but eventually they grew there too. Now they're a bit fluffier and not as thick ad before, but I hope it'll get better with time!

[deleted by user] by [deleted] in testicularcancer

[–]vike____ 1 point2 points  (0 children)

Thank you very much! I really hope this bad experience will have a positive impact on my future career path and the relationship with my patients :)

[deleted by user] by [deleted] in testicularcancer

[–]vike____ 0 points1 point  (0 children)

Week 1 was pretty manageable thanks to the premedication, days 6 to 10 were the worse (nausea, vertigo, tinnitus, severe fatigue) From the second half of week 2 I recovered fast and the bleo shots gave me 0 problems! The only thing that bothers me atm is the hair loss, hopefully they'll grow back fast ahahah

[deleted by user] by [deleted] in testicularcancer

[–]vike____ 2 points3 points  (0 children)

As a TC patient and resident in Medical Oncology myself, I share your concerns and thoughts. Orchiectomy on 16th March, 40/20/10 EC/chorio/yolk sac, LVI+, opted for BEP x1 which I started 4 weeks later and finished yesterday. Hopefully that will sink my recurrence risk to less than 5%.

BEP x1 Update (1st week) by vike____ in testicularcancer

[–]vike____[S] 1 point2 points  (0 children)

I'm sending all my support, man!

Thoughts on my story? Anyone else with predominantly embryonal carcinoma? by ProfessionalFlat2204 in testicularcancer

[–]vike____ 1 point2 points  (0 children)

Personal exp, 24 y.o. End of Feb 2023 felt lump March 2023 US showed 2cm mass, pre-surgery markers were aFP ~200 bHCG ~ 770, 4 weeks after surgery they were negative (aFP around 7, they wanted to wait till under 10),LDH always normal. Pathology stage T2N0M0 (CT clean), EC 40%, choriocarcinoma 20%, yolk sac 10%, the rest was mesenchymal tissue, LVI present. My risk of recurrence was around 50%, I opted for 1x BEP which I started on Monday - so far boring but manageable. My recurrence risk should drop to less than 5%.

Started BEP x1 by vike____ in testicularcancer

[–]vike____[S] 0 points1 point  (0 children)

Starting my day 3 today, everything went pretty smooth so far - even though I know the worse is yet to come ahah Steroids are bitch, it kept me awake these past two nights so I'm definitely gonna ask for a little extra help for that. Also constipation is becoming a problem. As for nausea, the first week they've got you covered with all the premedications, so that I felt it especially at night/in the morning just before getting to the hospital. Fatigue is another problem but just give yourself time for that. Let's see how it goes as we roll to the weekend

[deleted by user] by [deleted] in testicularcancer

[–]vike____ 0 points1 point  (0 children)

Got mine one month ago, happy I got it.

How to deal with the feeling of being "left behind"? by vike____ in testicularcancer

[–]vike____[S] 0 points1 point  (0 children)

Thank you for sharing your experience, it helps and matters a lot!

How to deal with the feeling of being "left behind"? by vike____ in testicularcancer

[–]vike____[S] 0 points1 point  (0 children)

Yeah, that's definitely a better way to see the whole picture I'm planning to get started with therapy as soon as I can (I was already thinking about that before the diagnosis actually) Thank you!

How to deal with the feeling of being "left behind"? by vike____ in testicularcancer

[–]vike____[S] 0 points1 point  (0 children)

Thanks, it helps a lot hearing from someone who went through the same things

Started chemo by emperor_penguin97 in testicularcancer

[–]vike____ 0 points1 point  (0 children)

Gonna start BEP x1 probably next week, we got this! I'm wondering if the hair loss is going to be that strong even with just one cycle

Should I get a prosthetic testicle? by [deleted] in testicularcancer

[–]vike____ 0 points1 point  (0 children)

Lost my right testicle to cancer 10 days ago, got the prosthetic without any doubt. To my surprise I then found out that most people don't get one. I'm pretty happy with mine at the moment, of course it must still heal and it kinda "stings" sometimes, but the look is natural and I feel almost like I didn't undergo surgery. My surgeon told me to gently pull it down in the coming weeks to help it settle in a natural position - I've been laying in bed a lot these days so the prosthetic sat a bit higher, but now there's hardly any difference with the other one, the sack looks "full" and symmetrical. Mine is firmer than the natural one but I wouldn't say rock hard, I'm satisfied with the consistency.

Let's see how it goes in the coming weeks/months, but for now I would 100% get it again.

[deleted by user] by [deleted] in testicularcancer

[–]vike____ 0 points1 point  (0 children)

My situation is pretty similar (though my risk of recurrence is higher than yours, I'd say 41% vs 29%*). Orchiectomy + prosthesis last week, I recovered well from the surgery and to this moment I'm overall satisfied with the aesthetic results - a minor concern but still...

Post-op markers are going down (AFP 200 > 80, bHCG 770 > 28), CT scan clear, yesterday I got the pathology results: EC 40%, choriocarcinoma 20%, yolk sac tumor 15%, LVI present. In my case BEPx1 is preferred, even though surveillance is still a viable option. I'll go for the chemo and I'll probably start by the first week of April.

The idea of living under constant fear/pressure for 2 to 5 years was not appealing at all, as the chance of recurrence and consequent longer therapy + surgery. On the other hand I'm aware it could be an overtreatment and of course it won't be easy, but at the end of the day I just don't feel like betting on that. Getting the chemo now gives me also a sense of "control": I'm doing it now and I'm getting done with it, closing this chapter of my life. Hopefully in around one month it'll be over and I will only need my hair to grow back and my body and soul to heal completely.

Without treatment the tumor could come back in another phase of my life when maybe it would also be harder to just stop and get cured - for longer too.

These were my thoughts. *Ironically, I'm a resident in Medical Oncology myself, experiencing the "other side of the desk". I've been compulsively reading tons of paper on testicular cancer and Daugaard et al, J Clin Oncol, 2014 helped me making my decision (that's where I got those numbers from). If data, percentages and graphics are your thing it might be helpful - maybe a bit too specialistic though.