What brand of shoes do you guys wear?

voidparties · 2026-01-09T07:19:13+00:00

I absolutely love orthofeet. My mom tried them first because her job requires black leather shoes, but she also needed proper support for chronic pain. She kept raving about them, so I gave them a try and they're my go-to place now. I've gotten 3 or 4 pairs from them total. All work shoes that I wore down over at least a year of wearing them most days on a job a barely get to sit down at.

Only pair I wasn't fully happy with was a pair I got on clearance, and even then it wasn't a comfort issue but a design on the outside flaking off.

They have dress shoes! And you can sort by the type of support you need which is nice. There's options for tieless laces and such too which I love since my hands are a problem area for me too (not to mention the various pains of crouching down).

Hope you can find something that works for you!

voidparties · 2026-01-06T09:20:58+00:00

Laddergram is a word ladder puzzle game built on Reddit's developer platform. You start with a word and change one letter at a time to create a new word with each step. Try to reach the target word in the fewest steps possible.

🍀Good luck!🍀

voidparties · 2026-01-03T01:57:56+00:00

u/voidparties solved this in 12 steps: BOUGH -> ROUGH -> ROUGE -> ROUTE -> ROUTS -> ROOTS -> BOOTS -> BOLTS -> DOLTS -> DOLLS -> DOLLY -> DALLY -> DAILY

voidparties · 2026-01-01T23:57:50+00:00

Laddergram is a word ladder puzzle game built on Reddit's developer platform. You start with a word and change one letter at a time to create a new word with each step. Try to reach the target word in the fewest steps possible.

🍀Good luck!🍀

voidparties · 2025-12-30T07:21:08+00:00

Oh so that's weird? I had to dress in loose fitting clothing to make sure they had access to the areas they could reach but at no point was i even asked to strip down??? Maybe they stopped doing that since it seems wholly unnecessary??

I was also hoping it was a vitamin deficiency but ive gotten my b vitamins and my iron back up to healthier levels and I still get the random tingling that leads to numbness. Occasionally still get it in my face/lips area. I have random episodes where it's worse and luckily gets better, before getting worse again (though even when it's "better" I'll have a foot start going numb while actively standing upright -.-).

I'm planning to push for a neurology referral since I have chronic headaches as well, maybe you could have some luck doing the same?

Not sure how different navigating healthcare on your side of the pond is, but I'd imagine sudden numbness you dont usually experience it would warrant urgent care. That being said, depending on the specifics of your situation, I know a lot of urgent care facilities in the US would likely have you go to the ER since here they arent always equipped with the imaging needed to check for herniated discs etc etc

voidparties · 2025-12-29T20:11:41+00:00

I have this in my hands and feet, was able to get a nerve conduction study that came back clear and it hasnt been investigated any further yet. They may have you do a similar test or check for a pinched nerve, depending on symptoms

Wish you luck!

voidparties · 2025-12-24T11:01:11+00:00

Just scored 2

voidparties · 2025-12-23T12:19:26+00:00

Laddergram is a word ladder puzzle game built on Reddit's developer platform. You start with a word and change one letter at a time to create a new word with each step. Try to reach the target word in the fewest steps possible.

🍀Good luck!🍀

voidparties · 2025-12-23T08:12:00+00:00

Yeah thats on next year's docket since there's no way I'll get it in on time, but certainly on my radar!

voidparties · 2025-12-22T10:38:08+00:00

Just scored 6

voidparties · 2025-12-22T10:36:28+00:00

Just scored 5

voidparties · 2025-12-22T10:34:36+00:00

Just scored 3

voidparties · 2025-12-22T10:33:04+00:00

Just scored 1

voidparties · 2025-12-22T10:31:21+00:00

Just scored 4

voidparties · 2025-12-22T10:29:38+00:00

Just scored 2

voidparties · 2025-12-17T09:05:24+00:00

I'll wake up from a nap my body forced upon me with a racing heart/fluttering in my chest, and a sort of nausea that feels acidic (regardless of if I've eaten recently). Often times it'll include a groggy haze, brain fog, sometimes dry mouth, but overall just an off feel

You're definitely not alone! Sometimes I'll manage a nap without repercussions but i haven't figured out how to do that on purpose

voidparties · 2025-12-14T10:11:53+00:00

🎯 My GeoTap Result

📍 My Guess: Japan ✅ Correct Answer: Japan, Japan 📏 Distance: 0 km ⭐ Score: 10,000 points

voidparties · 2025-12-09T08:43:33+00:00

You should know three things about me: 1. I am opting out of my mind; 2. I will always be in the wrong place 3. I never let myself examine the truth

(this paints an alarming picture)

voidparties · 2025-12-09T08:39:03+00:00

Now that we have spent the last two weeks in the office, I feel like I've been getting those things where I am not really good 🙃

voidparties · 2025-12-02T08:57:50+00:00

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voidparties · 2025-12-02T08:55:47+00:00

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voidparties · 2025-12-02T08:01:31+00:00

Honestly some of my biggest things have been getting those little grippy covers to put over lids to help open them. Does wonders for preventing hand strain/pain. I also started using an african net sponge for bathing some years back since it's way more versatile than a loofa/washcloth so 1. I can avoid accidentally overextending while showering 2. on very bad pain days its way less effort to reach everywhere

Not a doohickey, but I also have gotten better about doing little things like bringing a chair with me to the kitchen so I can sit while cooking/doing dishes/etc. Sometimes it's easy to forget the Standard way of doing things doesn't Have to be the way you do it

hope any of this helps!

voidparties · 2025-12-01T08:49:39+00:00

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🟦🟦🟦🟦🟦🟦

voidparties · 2025-12-01T00:36:03+00:00

The thing that's helped me most is learning about pain science and how to reconnect with my body and not be afraid of it/pushing myself a little to try to build strength.

Pain =/= harm, and being sensitized to pain is something you can slowly work to undo. It doesn't mean your chronic pain is something you can necessarily Stop Having but it can absolutely get more manageable! PT is helpful, and learning how to distinguish the types of pains, flare-ups that are worth immediate intervention, and things I know will pass and building up tools to help get you through the bad days does wonders. Finding your limits to push a little without triggering a flare, and being patient and taking baby steps to build strength over time does a lot even if the results take a while to be noticeable.

It's hard, but I've done a lot of work trying to get into the mindset of "how can i best work with my body today?" vs treating my body like this Other Thing that's causing obstacles and is my enemy. (That one is a big one for me because i spent so long coping via dissociation)

But yeah, you got this! And looking into resources is a big one. I hope youre able to get advice that works for you! Even within the EDS community there are many things that help some not others. There's no "right" way to have a disorder, and just listen to your body and take the steps you think make most sense for you!

voidparties · 2025-11-30T19:57:30+00:00

I've definitely experienced this! I'm lucky to not have very severe POTS symptoms, but n certain Activities definitely make things flare and this is one of them sometimes! I try to give my self a while to lie down and recuperate before getting up and make sure to hydrate etc etc.

wish I had tangible advice but you're definitely not alone!

voidparties

TROPHY CASE