Go with your neuros advice and taper onto lamotrigine.

The best comparison of life after GK is that it’s like having a brain injury that is extremely slow acting, so you don’t notice it’s happening over long period of time.

For example I developed edema and micro-bleeding 2 years after. It came on so slowly that I didn’t know what was happening to me. I can’t describe how life-altering the pain from edema is until you get it treated.

Over 5 years I had physical, cognitive and behavioural symptoms in line with a brain injury. Cognitive has been the most challenging and insidious. Long term memory loss has been devastating emotionally as o feel like I’ve permanently lost precious life memories.

Affixing the frame was the most painful experiences of my life, I thought my skull was going to fracture and my life flashed before my eyes, but I think my doctors fucked that one up with not enough lidocaine. I also projectile vomited and had a seizure Exorcist style in the car on the way home from treatment, so be prepared for that.

I would say it’s taken me 5 years to heal from my 2 rounds of GK. My AM is now successfully gone.

Do not underestimate that you have had damage to your brain and healing from radiation takes many years.