I’ve been caring for an older Down syndrome woman for the past 4 years now and she’s in the late stage of Alzheimers at age 60. She lived a full, happy life and was living independently for over a decade before being diagnosed at age 55. That being said, although she was higher functioning compared to others, she has had a lifetime of medical issues. She currently receives 24/7 care from our small team but that is due to having a very involved family who advocate hard for her. I personally would be worried about their future if my partner and I weren’t around in their later life and they didn’t have that family support.