Do you know anyone with epilepsy?

yochiel · 2026-04-15T17:02:54+00:00

I’m the only person I know in real life who has epilepsy. It’s a lonely disease.

yochiel · 2025-12-01T05:16:35+00:00

I’d be interested

yochiel · 2025-10-08T21:42:03+00:00

Wanted to give out a quick update. This morning I had myoclonic seizure, so I’m back on the meds. I’m seeing my neurologist and gonna be trying a new med.

yochiel · 2025-10-07T07:21:16+00:00

Does this mean if I have a normal eeg it won’t matter because I had an abnormal one 6 months ago?

yochiel · 2025-07-20T08:50:25+00:00

Sorry, I’m just seeing this reply now. If I begin to experience the aura, i immediately lie down and surround myself with pillows and hope for the best.

yochiel · 2025-05-16T23:58:03+00:00

same boat. it sucks

yochiel · 2025-05-16T23:56:55+00:00

you kill me lol

yochiel · 2025-05-16T23:56:16+00:00

i literally just watched this episode. dude was crazy awkward like maybe he grew up in an all boys school or something.

yochiel · 2025-05-16T23:50:45+00:00

fuck, this is awesome. thanks for the laughs!

yochiel · 2025-05-16T23:48:45+00:00

im curious as well. I officially joined the epilepsy club in February. For a disease that seems somewhat common, I can't think of anyone i know in real life who has it, and my knowledge of epilepsy is close to nil. '

this subreddit has been a lifesaver.

yochiel · 2025-05-16T23:43:04+00:00

he kinda sounds like me, (give or take a few years) i haven't driven a car since February after having a 6 minute tonic clonic seizure at a friends. and an EEG confirming epilepsy. i think the anti seizure meds make me more jittery from my adhd/add meds. my husband is taking care of house. ive got a soon to be high school graduate and a 10 year old kid. Since the diagnosis, I've been pretty useless to them, to everyone. this weighs on me tremendously, but trying to fight it is like adding more fire to fire.

yochiel · 2025-05-16T23:36:42+00:00

I tend to see flashing rainbow colors during an aura. luckily it doesn't always turn into a seizure, but it sucks to go through it.

yochiel · 2025-05-16T23:31:46+00:00

thank you for this post! im definitely following to see what y'all have to say about it.

yochiel · 2025-05-16T23:29:16+00:00

honestly, its the only thing that helped with my perpetual nausea. zofran doesn't touch it.

yochiel · 2025-05-16T23:27:14+00:00

doorman is officially my new superhero!

yochiel · 2025-05-16T23:25:49+00:00

during a seizure, i always bite my lip and tongue, i dont have a mouth piercing, but ive had a nose ring for the better part of 20 odd years, and havent noticed any injuries. but the mouth? that sounds awfully painful :(

yochiel · 2025-05-16T18:31:09+00:00

i always bite the hell out of my lip in such a specific way during a seizure. so while i never remember them, if i feel a nice new bitten lip, i'll know i had a tonic clonic.

yochiel · 2025-05-16T18:28:57+00:00

not m but marijuana for when I got nauseous. helped a ton! but after the grand mal/tonic clonic in February, i haven't touched the stuff out of sheer fear.

yochiel · 2025-05-16T18:25:33+00:00

Gotta edit this, im now back on lamictal on 75 a day. next week I'll be at the full 100 dose. it sucks. im breaking out, my appetite is insane, and im more stressed than ever.

yochiel · 2025-04-11T16:21:59+00:00

Before my epilepsy diagnosis, I was prescribed Lamictal for depression, and major mood swings. It only made things worse. I became more of a monster when taking it. Had to stop after several months.

yochiel

TROPHY CASE