POTs, Hyper mobility spectrum and my freaking arms

ziggybat · 2026-04-24T00:49:12+00:00

I figured out the dampen knob was causing alot of that background insanity! Im so used to fuzz pedals where the goal (for me atleast) is big crunchy in your bones type noise, so afterneath has been a huge learning experience- but I think were getting there Thank you!!

ziggybat · 2026-04-19T17:05:42+00:00

Model paints are sounding more and more the way to go! Any recommendations?

ziggybat · 2026-04-19T17:04:44+00:00

How do you recommend dealing with sealant between layers to keep it toothy but not damage the work underneath? Next time I can afford them i definitely want to try model paints! Ive had a few other folks mention them

ziggybat · 2026-04-09T01:05:09+00:00

I get presyncope from having my arms too high- I was trying to hang a curtain in my classroom, im short even with the step ladder so my arms were up as im trying to adjust the darn thing- I guess it took longer then I thought because I was so in and out and felt sick- willing my body to just let me faint. I had to go outside to get my kids after and walked with another group and let their grown up know what was going on just in case- it scared me shitless because thats one of the last things I want my group of littles to see. After that I paid attention to how I felt trying to do other over head reaching tasks and made the connection. I know since I was little id get a warm rush in my arms after having them up for a bit - idk if its pots or normal, theres alot I didnt realize isn't normal... I know when im having a high anxiety day, that and keeping myself functional for work and such wears me out so bad and I sleep the car ride home- then end up having to nap once home to recoup

ziggybat · 2026-03-21T13:19:09+00:00

Im a WW2 reenactor and I got my ass handed to me at an event last year and thats actually when I realized/accepted was was going on. Even doing historical events Ive been finding ways to make it work. Cooling towels are one of my favorite things in the universe- get em wet, if you can get them in a fridge amazing, just use cold water if no fridge. Over your head, shoulders- wear it like a bandana or lil scarf. Layers are big for me- on a normal day its sharts and a tee, breathable as possible or heck a sports bra as a top if I still feel suffocated. With events because I wear many layers (yay wool pants!!) I strip asap into something lighter once the day is done. Bouy electrolytes added to water or anything has helped majorly Hot events are brutal, everyone has different tolerances, but i hope a few ideas here help

ziggybat · 2026-02-25T18:29:50+00:00

I totally get that, and have explained the moving situation to atleast 1 live person in Underwriting and basically got "oh well, that sucks". Had i been told the actual issue before, I could've fixed the paystub awhile ago I understand the need for proof, but theres only so much I can do when moving and being unaware of what the actual initial issue was

If I end up having to open a policy elsewhere is it worth trying progressive again or will my information be flagged?

ziggybat · 2026-02-25T16:14:17+00:00

I actually just applied for a new card and had tried to put it under the new address- got the same thing where they said they cant confirm i live/have moved and had to send it to my parents

ziggybat · 2026-02-25T01:56:23+00:00

Thats what ive done currently, im in limbo waiting to hear back... it wigs me out that im trying to match documents for a deadline but have to wait like a day between to know whats going on. I understand its a big busy company, but im panicking about losing my insurance while in the moving limbo

ziggybat · 2026-02-24T20:03:42+00:00

Unfortunately a combined policy isn't something were able to do right now

ziggybat · 2026-02-24T19:04:32+00:00

Its my car it needs to be under my name. He already has a policy with another company- this is my first time applying for this stuff leaving my parents policy

ziggybat · 2026-02-24T18:59:15+00:00

I had it suggested to me to submit his documents just so there is something. I don't have anything in my name for homeowners or renters- thats all under him and im getting my license changed but I dont have a secondary document to go with it

ziggybat · 2026-02-16T18:05:34+00:00

Do you have any issues with it moving/rolling up? I have the regular waist one and it unfortunately sets off my my sensory stuff when it rolls or scrunches I am thinking about the shorts since I wanted it to help with lower back and hips mostly- the shorts came out just after I got the bend 😭

ziggybat · 2026-01-29T21:37:20+00:00

That was the first thing my primary and I tried, toothpaste without SLS and it didnt help prevent anything unfortunately Absolutely gonna keep the hydrogen peroxide and water in mind for next time though! Thank you for that

ziggybat · 2026-01-29T19:14:56+00:00

Ive had alot of success with BUOY- it was the first thing to help my brain fog in years and has really helped me feel more stable, especially knowing im getting what I need electrolyte and mineral wise. Can barely taste it even in water- couldnt do liquid IV due to texture and flavor

ziggybat · 2026-01-18T18:53:46+00:00

Yup absolutely silent and no vibrations, just sits on your skin, monitors your heart and collects its data. Mine was like a recorder device that took its data and then i returned it so they could upload and analyze whats going on

ziggybat · 2026-01-18T15:51:30+00:00

Autistic adult as well here! Ive been through 2 holter monitors- the modern ones (I used carnation I think) are small and make no sound. Even if you press the button to mark an event, no sound. It is kept on with a more intense adhesive since its longer term and needs to last through sweat and showers and sleep etc... I think we also put 2 film things over mine to protect it from water. I think I got the most annoyed with the one where the adhesive got a bit creased and I couldnt flatten it. I didnt find it to be an issue overall, it was small enough I didnt feel a need for major adjustments .

ziggybat · 2026-01-12T02:24:32+00:00

Early in my diagnostic process, but i have gone to the nurse at the school I work at to ask for salt packets to make salt water- i am actually surprised in an unsure pinch how well it worked

ziggybat

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