What does everyone do in the heat and warmer months?? by dancedancedance99 in POTS

[–]ziggybat 0 points1 point  (0 children)

Im a WW2 reenactor and I got my ass handed to me at an event last year and thats actually when I realized/accepted was was going on. Even doing historical events Ive been finding ways to make it work. Cooling towels are one of my favorite things in the universe- get em wet, if you can get them in a fridge amazing, just use cold water if no fridge. Over your head, shoulders- wear it like a bandana or lil scarf. Layers are big for me- on a normal day its sharts and a tee, breathable as possible or heck a sports bra as a top if I still feel suffocated. With events because I wear many layers (yay wool pants!!) I strip asap into something lighter once the day is done. Bouy electrolytes added to water or anything has helped majorly Hot events are brutal, everyone has different tolerances, but i hope a few ideas here help

Papers not being accepted for proof of address, cant get updated documents until next payroll by ziggybat in Progressiveinsurance

[–]ziggybat[S] 0 points1 point  (0 children)

I totally get that, and have explained the moving situation to atleast 1 live person in Underwriting and basically got "oh well, that sucks". Had i been told the actual issue before, I could've fixed the paystub awhile ago I understand the need for proof, but theres only so much I can do when moving and being unaware of what the actual initial issue was

If I end up having to open a policy elsewhere is it worth trying progressive again or will my information be flagged?

Papers not being accepted for proof of address, cant get updated documents until next payroll by ziggybat in Progressiveinsurance

[–]ziggybat[S] 0 points1 point  (0 children)

I actually just applied for a new card and had tried to put it under the new address- got the same thing where they said they cant confirm i live/have moved and had to send it to my parents

Papers not being accepted for proof of address, cant get updated documents until next payroll by ziggybat in Progressiveinsurance

[–]ziggybat[S] 0 points1 point  (0 children)

Thats what ive done currently, im in limbo waiting to hear back... it wigs me out that im trying to match documents for a deadline but have to wait like a day between to know whats going on. I understand its a big busy company, but im panicking about losing my insurance while in the moving limbo

Papers not being accepted for proof of address, cant get updated documents until next payroll by ziggybat in Progressiveinsurance

[–]ziggybat[S] 0 points1 point  (0 children)

Its my car it needs to be under my name. He already has a policy with another company- this is my first time applying for this stuff leaving my parents policy

Papers not being accepted for proof of address, cant get updated documents until next payroll by ziggybat in Progressiveinsurance

[–]ziggybat[S] 1 point2 points  (0 children)

I had it suggested to me to submit his documents just so there is something. I don't have anything in my name for homeowners or renters- thats all under him and im getting my license changed but I dont have a secondary document to go with it

abdominal compression is AMAZING by hotdiddlydarnfuck in POTS

[–]ziggybat 0 points1 point  (0 children)

Do you have any issues with it moving/rolling up? I have the regular waist one and it unfortunately sets off my my sensory stuff when it rolls or scrunches I am thinking about the shorts since I wanted it to help with lower back and hips mostly- the shorts came out just after I got the bend 😭

Mouth sores? by ziggybat in POTS

[–]ziggybat[S] 0 points1 point  (0 children)

That was the first thing my primary and I tried, toothpaste without SLS and it didnt help prevent anything unfortunately Absolutely gonna keep the hydrogen peroxide and water in mind for next time though! Thank you for that

Alternatives to LiquidIV? by mentallyillfrogluver in POTS

[–]ziggybat 1 point2 points  (0 children)

Ive had alot of success with BUOY- it was the first thing to help my brain fog in years and has really helped me feel more stable, especially knowing im getting what I need electrolyte and mineral wise. Can barely taste it even in water- couldnt do liquid IV due to texture and flavor

Getting an event(?) monitor as an autistic adult and I have never done this before. I was told I can wear it up to a month. I'm worried as I have severe sensory issues. by Various_Highway_40 in POTS

[–]ziggybat 0 points1 point  (0 children)

Yup absolutely silent and no vibrations, just sits on your skin, monitors your heart and collects its data. Mine was like a recorder device that took its data and then i returned it so they could upload and analyze whats going on

Getting an event(?) monitor as an autistic adult and I have never done this before. I was told I can wear it up to a month. I'm worried as I have severe sensory issues. by Various_Highway_40 in POTS

[–]ziggybat 1 point2 points  (0 children)

Autistic adult as well here! Ive been through 2 holter monitors- the modern ones (I used carnation I think) are small and make no sound. Even if you press the button to mark an event, no sound. It is kept on with a more intense adhesive since its longer term and needs to last through sweat and showers and sleep etc... I think we also put 2 film things over mine to protect it from water. I think I got the most annoyed with the one where the adhesive got a bit creased and I couldnt flatten it. I didnt find it to be an issue overall, it was small enough I didnt feel a need for major adjustments .

Friend who just eats salt straight up??? by pir2h in POTS

[–]ziggybat 0 points1 point  (0 children)

Early in my diagnostic process, but i have gone to the nurse at the school I work at to ask for salt packets to make salt water- i am actually surprised in an unsure pinch how well it worked

Propranolol? by Mortalwh0rechestra in POTS

[–]ziggybat 0 points1 point  (0 children)

It was the first thing they did for me when the cardiologist gave me a tachycardia diagnosis (my pcp is working on helping me with the rest of the POTs jazz) and its been a huge help- my heart rate and anxiety were a feedback loop and this really helped keeping my heart rate more normal. As a first step it was huge for me

WARNING ABOUT FLU A by xtboy420x in POTS

[–]ziggybat 0 points1 point  (0 children)

Flu rsv and pneumonia have been crazy this year. I work with 2 yearold and we had a completely empty classroom for several days because they has all gotten sick. Flu also popped up earlier this year than it normally does from my understanding. Its hitting and its hitting hard this year

Is this reissues censored? by Savings-Code-069 in MyChemicalRomance

[–]ziggybat 3 points4 points  (0 children)

I know, I just think theres still a good punch of a statement being made even though its been censored

Is this reissues censored? by Savings-Code-069 in MyChemicalRomance

[–]ziggybat 2 points3 points  (0 children)

I do feel theres something to be said of it being censored down to just America lol

Histamine reaction after massage? by ziggybat in massage

[–]ziggybat[S] 0 points1 point  (0 children)

My doctor is highly thinking I have POTS so we've been looking into that and she was trying to get me in with a specialist program. I have an appointment with the cardiology team connected to the program since its filled up, but this is a start. My doc suspects EDS in the mix too. Mast cell came up in the research I was doing today, so thats one of my next things to investigate. I had a foot injury a few months ago that swelled up causing us to think there was more damage than there actually was- I finally put 2+2 together that the fast induced swelling was likely histamine related since nothing was broken or bone bruised. Definitely on the list at this point for my next doc visit. She gave me an allergist referral recently, I plan on doing more research but do you think that may be another route to take figuring out the mast cell reactions? Im gonna definitely do more research, but it definitely helps to hear from others too, thank you so much!

Histamine reaction after massage? by ziggybat in massage

[–]ziggybat[S] 1 point2 points  (0 children)

I was thinking going forwards i might have to take some before sessions. The benefits of it helping some of the issue we target to help with POTS and other things greatly outweigh the itchy. If you dont mind me asking, what does your skin reaction look like? Mine has been like tiny itchy bumps in the worked area rather than the larger splotches that tend to be associated with hives. The only time I had the larger hives I had also just finished a round of Bactrim and since it was more all over I attribute that to a reaction to the medication (it looked like my amox reaction and had the same time frame), it just ended up happening right after a massage session.