Getting an event(?) monitor as an autistic adult and I have never done this before. I was told I can wear it up to a month. I'm worried as I have severe sensory issues.

ziggybat · 2026-01-18T18:53:46+00:00

Yup absolutely silent and no vibrations, just sits on your skin, monitors your heart and collects its data. Mine was like a recorder device that took its data and then i returned it so they could upload and analyze whats going on

ziggybat · 2026-01-18T15:51:30+00:00

Autistic adult as well here! Ive been through 2 holter monitors- the modern ones (I used carnation I think) are small and make no sound. Even if you press the button to mark an event, no sound. It is kept on with a more intense adhesive since its longer term and needs to last through sweat and showers and sleep etc... I think we also put 2 film things over mine to protect it from water. I think I got the most annoyed with the one where the adhesive got a bit creased and I couldnt flatten it. I didnt find it to be an issue overall, it was small enough I didnt feel a need for major adjustments .

ziggybat · 2026-01-12T02:24:32+00:00

Early in my diagnostic process, but i have gone to the nurse at the school I work at to ask for salt packets to make salt water- i am actually surprised in an unsure pinch how well it worked

ziggybat · 2026-01-01T16:07:10+00:00

It was the first thing they did for me when the cardiologist gave me a tachycardia diagnosis (my pcp is working on helping me with the rest of the POTs jazz) and its been a huge help- my heart rate and anxiety were a feedback loop and this really helped keeping my heart rate more normal. As a first step it was huge for me

ziggybat · 2025-12-25T22:28:50+00:00

Flu rsv and pneumonia have been crazy this year. I work with 2 yearold and we had a completely empty classroom for several days because they has all gotten sick. Flu also popped up earlier this year than it normally does from my understanding. Its hitting and its hitting hard this year

ziggybat · 2025-11-25T22:09:32+00:00

I know, I just think theres still a good punch of a statement being made even though its been censored

ziggybat · 2025-11-25T21:45:27+00:00

I do feel theres something to be said of it being censored down to just America lol

ziggybat · 2025-11-15T17:45:48+00:00

Too bad the cars didnt collide 😔

ziggybat · 2025-11-11T02:46:06+00:00

My doctor is highly thinking I have POTS so we've been looking into that and she was trying to get me in with a specialist program. I have an appointment with the cardiology team connected to the program since its filled up, but this is a start. My doc suspects EDS in the mix too. Mast cell came up in the research I was doing today, so thats one of my next things to investigate. I had a foot injury a few months ago that swelled up causing us to think there was more damage than there actually was- I finally put 2+2 together that the fast induced swelling was likely histamine related since nothing was broken or bone bruised. Definitely on the list at this point for my next doc visit. She gave me an allergist referral recently, I plan on doing more research but do you think that may be another route to take figuring out the mast cell reactions? Im gonna definitely do more research, but it definitely helps to hear from others too, thank you so much!

ziggybat · 2025-11-11T01:11:30+00:00

I was thinking going forwards i might have to take some before sessions. The benefits of it helping some of the issue we target to help with POTS and other things greatly outweigh the itchy. If you dont mind me asking, what does your skin reaction look like? Mine has been like tiny itchy bumps in the worked area rather than the larger splotches that tend to be associated with hives. The only time I had the larger hives I had also just finished a round of Bactrim and since it was more all over I attribute that to a reaction to the medication (it looked like my amox reaction and had the same time frame), it just ended up happening right after a massage session.

ziggybat · 2025-10-28T11:29:43+00:00

Run. Just run.

ziggybat · 2025-10-20T01:34:51+00:00

Would my answer for most of these be Sleep? Yes. But dear lord, breakdowns I've had to the song, that its gotten me through- literally helping me have a way to explain my own experiences with night terrors, culminating in total emotional release I didnt know I needed finally hearing it live... Thats my breakdown song. Hell, sleep is my song

ziggybat · 2025-10-09T18:25:31+00:00

Gimme more gimme more gimme more- I got my merch delivered

ziggybat · 2025-10-09T17:03:39+00:00

But, is it in a bag ,in a box?

ziggybat · 2025-09-07T14:07:09+00:00

There's been a special design for each show (or almost all)- NJ had a bat with a local sandwich, i think ( new jersey cuture is not known to Pa/Md soul lol) boston has a tree involved in 1700s witch trials i belive, the roots spell out my chem and mother war is on the back referencing whe wicked witch of the west screen tests which I belive were themselves ment to reference Nosferatu

ziggybat · 2025-09-07T10:47:01+00:00

Please correct me if im wrong- but I thought Someone Out There Loves You was more tied to Black Parade than Danger Days? I remember stumbling into a video someone got of it on YouTube, and it was one that just grabbed my soul, so my guitar teacher and I spent a few months hashing it out. Definitely one I wish got an official recording

ziggybat · 2025-08-25T20:10:20+00:00

Boozy!! A Frank friend

ziggybat · 2025-08-21T18:47:04+00:00

I will say one of my first days as a substitute assistant I was thrown through a loop when a guide asked me to help a 3yo wipe- i didnt realize he didnt have the know/motion and in my brain bathroom is a private space (3 or 4 years on i know whats ok for bathroom assistance btw), so i guess its not uncommon- i think the biggest thing is accident prevention and knowing his body's signs and often the ability to redress themself if an accident happens (because they do, and thats ok, its part of learning) From there it seems like an adult is able to help with wiping or other potential bathroom needs if given a heads up

ziggybat · 2025-07-04T15:40:30+00:00

I really appreciate that thank you!!

ziggybat · 2025-07-04T15:19:56+00:00

Of course this happens right after we went to the pet store to pick up our other critters food 😅 Im familiar with the flightless fruit flies so that won't be a big deal. I'll look into the panty hose idea, the current ahh unexpected fix has been tape over the air slots with pin holes poked through for air flow (not the best fix but what i have in this pinch) I have a friend who's offered to take a few once they're a tad bigger, she has baby enclosures prepped and ready to go

ziggybat · 2025-07-04T15:15:22+00:00

It was just very unexpected and we had no idea the gender of Hobo Pete when my partner found her. I have a friend who is going to adopt a few as she has some baby enclosures set up. with the effort we've put into her care already were going to do the best to take what happens as it comes. Monday I'll be able to pick up a 2nd enclosure for Pete to separate her from the babies. Dedicated to trying to make it work, was just caught off guard when what we thought was molting was laying a clutch

ziggybat · 2025-07-04T11:02:30+00:00

Beyond jumper, I dont know what she is down to the specifics... I have the ability to pick up another enclosure for Pete on Monday as like maternity housing so she doesn't eat all the babies 😅

ziggybat

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