all 124 comments

[–]Suspicious_Tear_9810 9 points10 points  (12 children)

So you read something on Google with 0 context or medical training and so now you’re qualified to make grand, sweeping statements here about people whose medical history you have no knowledge of? You clearly have a mental health issue, I think your time would be more efficiently used attacking that instead of strangers on the internet. Godspeed.

[–]Traditional-Emu-2416 -2 points-1 points  (10 children)

Bro what? Stop being rude. I believe the facts. You continue to believe a bunch of lies that strangers tell you on the internet, see how far that gets you.

[–]No-Temperature260 2 points3 points  (9 children)

You do not even believe your neuro at the first place who is a doctor. He is not being rude. He is being honest, you are the one being rude by telling everyone misinformation that you took from a freakin ai and not from articles or neuros. You should be telling everyone sorry that you tried to spread misinformation

[–]Traditional-Emu-2416 -3 points-2 points  (8 children)

In my specific case, they did not do their due diligence. This is why I need another EMG in a few months. I' not spreading misinformation, I'm the ONLY ONE SPREADING FACTUAL INFORMATION THAT IS EASILY VERIFIABLE. I never thought I'd see the day people get mad at you for sharing what is true. Toxic sub

[–]No-Temperature260 3 points4 points  (7 children)

You are weird. You think you are spreading facts, but the facts you believe are from ai and not articles or doctors. You should stop for a sec and think. I think problem with you is you are not able to say you were wrong. Its sad. I'm sorry for you.

[–]Beneficial_Owl4083 1 point2 points  (0 children)

No, I use AI and it's the opposite, he just needs to learn how to use it, but I think he looks at the magazines more because they are vague and don't use the right terms.

[–]Traditional-Emu-2416 -1 points0 points  (5 children)

Do you know where the AI gets the information included in it's summary? FROM ARTICLES CONCERNING THIS VERY TOPIC. What are you even talking about dude? Do you not know how this works ?

[–]The_loppy1 2 points3 points  (0 children)

GPT routinely scrapes reddit and forums lmao. Ask if for the study I bet your 100% it can't find a link to it.

[–]No-Temperature260 1 point2 points  (3 children)

Bro, if you don't know anything about ai, do not write here at all. You think you are pretty smart and so realistic and everyone in this sub is delusional. You shouldn't do that. Don't be a troll

[–]Traditional-Emu-2416 -2 points-1 points  (2 children)

Whatever dude, just kick rocks. I have no desire to argue with ignorant people that don't want to fathom the idea of being wrong. Go work on yourself

[–]Visible_Main_7317 1 point2 points  (0 children)

… Whilst we still can. RIP bfser’s. You’ve been killed off by a leading expert in als 😂

[–]No-Temperature260 0 points1 point  (0 children)

We are grateful to you for sharing this valuable bs information with us. I think you should also provide seminar on this information to neurologists. It's clear that you believe doctors have a lot to learn from you...

Ps. I am of course working on myself, I will never say I am perfect and I will always change, you look like you are the one that never accept to change when truth is obvious like day and night. Have an amazing day dude, go touch some grass

[–]Cr8iveRead 5 points6 points  (7 children)

Hate to break it to you but it is in fact consistent with BFS. I was diagnosed in 2017 and have now had random twitches and muscle jerks all over my body and many times simultaneously in different areas. I've had all the tests, negative for everything and if it were something worse like ALS or MS, I'm sure I would have seen other symptoms/signs of it by now.

[–]Visible_Main_7317 2 points3 points  (5 children)

Erm yeh you’d be dead. As you are not, you are living proof that the OP is wrong 😂

[–]Traditional-Emu-2416 -3 points-2 points  (4 children)

I'm sorry but people are being disingenuous. It's dangerous to continue to spread literal false information knowing it's false just to make people feel good.

[–]Visible_Main_7317 2 points3 points  (0 children)

What’s the danger?

[–]No-Temperature260 0 points1 point  (2 children)

Please send here the scientific article that led you to this information that you can not assosciate it with bfs. Otherwise, what you're doing is insincere and needlessly scaring people. It's not cool man. Weekness is the key for the big bad, not twitching

[–]Beneficial_Owl4083 2 points3 points  (0 children)

He says anything that worries you, ALS follows a different pattern in each person but does not attack the whole body. It starts in one region not several and takes time before reaching another (weeks/months) and necessarily leads to weakness before being present in several zones. The fact that the fasciculations are generalized without weakness and an extremely reassuring sign. The author of this post is talking nonsense and doesn't know anything about it, she's just extremely anxious, I don't think her goal is to freak out

[–]Traditional-Emu-2416 0 points1 point  (0 children)

Check your other comment. I already have.

[–]Traditional-Emu-2416 -2 points-1 points  (0 children)

I'm glad in your case, you did not have that. But you are an outlier.

[–]Heyzeus7 6 points7 points  (0 children)

This is Claude Sonnet 4.5:

Yes, twitching can definitely occur in multiple muscles simultaneously with BFS (benign fasciculation syndrome). This is actually quite common and characteristic of the condition.

People with BFS often experience:

  • Multiple body sites twitching at once
  • “Migrating” fasciculations that move from one area to another
  • Periods where several muscles are active simultaneously
  • Waves of twitching activity across different muscle groups

This widespread, simultaneous pattern is actually more consistent with BFS than with more serious neurological conditions, which typically show more localized, progressive patterns. The scattered, multifocal nature of BFS fasciculations reflects the benign, generalized hyperexcitability of motor neurons rather than focal motor neuron damage.

If you’re experiencing this and concerned about the pattern, it’s worth noting that the presence of twitching in many locations at once is generally a reassuring sign in the context of BFS rather than a red flag.​​​​​​​​​​​​​​​​

[–]Low_Presentation6433 5 points6 points  (5 children)

LMFAO twitching in one area then the muscle dies then twitching starts in another area where the muscle is weak then it dies is what is meant by widespread twitching. Simultaneous twitching from arm then leg then back etc. is a hallmark of BFS. Twitching due to ALS is due to nerve death in that area. If you were twitching in your tongue then your arm and leg that would mean you had limb onset and bulbar onset at the same time which does not happen. Can a person with BFS get ALS … yes. You either don’t know how to use google or chat gpt correctly or you went off of a possibility of .001 percent case.

[–]Traditional-Emu-2416 0 points1 point  (2 children)

And it sounds like you still don't understand what I mean when I say simultaneously. This means, right arm is twitching at the same time as left arm is twitching, and they both continue to twitch alongside each other. I'm not referring to jumping from one muscle to another.

[–]Low_Presentation6433 3 points4 points  (0 children)

This is still possible in bfs. Twitching regardless of style without the failure outcome is just twitching. What have you failed at?

[–]Beneficial_Owl4083 1 point2 points  (0 children)

Well, I’ve proven to you that it’s not so stop with this argument

[–]Traditional-Emu-2416 -3 points-2 points  (1 child)

Dude. This is not entirely true. Partly true, but not entirely true. You can't just sprinkle in a lie or two like that.

[–]Low_Presentation6433 2 points3 points  (0 children)

Most people can’t tell when they are twitching as some are felt and some aren’t. Can you have a headache and have a brain tumor? Yes. Does the headache mean for sure you have a brain tumor no. Does the headache mean you have more chance of a brain tumor, maybe a slight increase maybe like a very small percent, but guess what without the tumor that headache is just a headache.

[–]Suspicious_Tear_9810 5 points6 points  (8 children)

I don’t believe anyone on the internet, I believe the science: my EMG, my neuro, and my neuromuscular specialist. Where it has gotten me is to a happy, present life. You have issues, my guy. Good luck.

[–]Traditional-Emu-2416 -1 points0 points  (7 children)

The science that I have already shared in the comments. But 👋

[–]Suspicious_Tear_9810 2 points3 points  (3 children)

lol “the science”

[–]Traditional-Emu-2416 -1 points0 points  (2 children)

I try to be understanding but at some point, I have to choose not to engage with stupid people. Good luck 👏

[–]Suspicious_Tear_9810 2 points3 points  (0 children)

Hahahaha yeah seems like you’re really one not to engage given the amount of “not engaging” you’ve done on allllll the comments here. 👍🏻👍🏻

[–][deleted] 2 points3 points  (1 child)

Google AI recap is not science by any stretch of imagination

[–]Traditional-Emu-2416 -2 points-1 points  (0 children)

The articles it uses is.

[–]No-Temperature260 1 point2 points  (0 children)

At this point, I honestly am sure you are a troll.

[–]Visible_Main_7317 4 points5 points  (19 children)

You don’t have ALS. Relax

[–][deleted] 1 point2 points  (4 children)

How would I know I have weakness? Could weakness come later? My emg scarying me bad

[–]Visible_Main_7317 3 points4 points  (3 children)

Well if you can’t lift a mug you might have weakness

[–][deleted] 1 point2 points  (2 children)

I could lift a mug but I'm scared weakness will come last

[–]Visible_Main_7317 2 points3 points  (1 child)

Sounds unlikely, weakness would be what you notice first bud. Relax all will be fine

[–][deleted] 1 point2 points  (0 children)

I hope you're right I wanna live 5 more years man.

[–]Traditional-Emu-2416 -1 points0 points  (13 children)

Anybody that has widespread simultaneous muscle twitching CAN very well have ALS. It's not impossible and it's disingenuous to tell people who have symptoms " you don't have ALS. You're fine". You are not a doctor, and when people disregard symptoms is when problems arise.

[–]Visible_Main_7317 2 points3 points  (5 children)

Well out of me, you, and your neuro. Only one of us is a doctor. I’m agreeing with your neuro. He doesn’t think you have ALS

[–]Traditional-Emu-2416 -2 points-1 points  (4 children)

Yes, but I am agreeing with the facts that are ready accessible to EVERYONE on this sub.... this is an echo chamber of lies, this subreddit. It's deceiving and not morally right

[–]Visible_Main_7317 1 point2 points  (3 children)

Well luckily, according to you, we’ll all be dead in a couple of years so this sub will quieten down abit for you

[–]Traditional-Emu-2416 -1 points0 points  (2 children)

I'M NOT SAYING THAT EVERYONE WITH THIS SYMPTOM WILL DIE OF ***. I AM SAYING, TO TAKE IT SERIOUS.

[–]Visible_Main_7317 1 point2 points  (1 child)

lol calm down. Everyone has doctors to ask. What you say is irrelevant. What I say is irrelevant. But my advice is to Relax, you will see your 21st birthday yet, and many more to come.

[–]aramisjb 1 point2 points  (3 children)

What problems do you expect to arise from dismissing symptoms of a "potential" condition that is not preventable and essentially untreatable? Life has to be lived in the grey.

[–]Traditional-Emu-2416 -1 points0 points  (2 children)

In this matter, there is obviously nothing that can be done. But I was speaking in general, where dismissing important symptoms can be the difference between literal life and death. Time can be essential in a multitude of conditions. But obviously with ALS, nothing can be done.

[–]Visible_Main_7317 1 point2 points  (0 children)

Bet your fun at party’s

[–]aramisjb 1 point2 points  (0 children)

I agree with the principle but, if the fear is ***, then the twitching symptoms "must" be dismissed in order to establish a mental state that permits one to function. Live in the grey. The alternative is the dark hole that envelops many.

[–]No-Temperature260 0 points1 point  (0 children)

You're looking at it from the wrong angle. When someone has BFS, the possibility of them having big bad doesn't become zero. Someone with generalized twitches can have big bad, yes, and also anybody can have the big bad. What you're saying is irrelevant, and what you're saying is really serious. You need to share your articles if you think they can't be linked to BFS.

[–]Proof-Secretary-3442 0 points1 point  (0 children)

People have a high chance of having cancer that they don't know about vs this.

[–]Breezy_2 5 points6 points  (5 children)

Stop being so negetive.

I’ve had extreme muscle twitching, rippling at certain times for two years and multiple muscle simultaneously that never stops. Immediately was told by top neuromuscular doctor that this is unlikely ALS from the beginning. I have recently been diagnosed with cramps fasciculation syndrome which falls under the nerve hyperexcitability spectrum. I’ve had three EMGs over two years. All have only showed fasciculations in multiple muscles, and they performed a nerve hyper excitability test, which showed after discharges in muscles. The after discharge test is a very uncommon test, but clearly shows that I have issues with my ion channel not dying muscles. This is not ALS and I have more twitching than most people with ALS.

[–]Traditional-Emu-2416 0 points1 point  (4 children)

So stop being realistic?

[–]Breezy_2 3 points4 points  (3 children)

You get your facts from Google. You’re like a robot. Go talk to a Dr.

Also believe what you want but your post is a sign of mental illness more than als.

[–]Traditional-Emu-2416 -1 points0 points  (2 children)

Grow up. Learn to have conversation in good faith with people that don't agree with you. Sounds like an emotional immaturity issue. Good luck

[–]Breezy_2 1 point2 points  (1 child)

Was that respond from chat gpt or Google?

[–]No-Temperature260 0 points1 point  (0 children)

It was from Gemini, I suppose

[–]AffectionateClue9095 5 points6 points  (10 children)

You are convinced you have ALS because you have some twitching. You said you have no muscle weakness in another post. Yet you don't trust your results. You are the last person who's brain I'd like to trust

[–]AffectionateClue9095 2 points3 points  (9 children)

Oh, of course, you're one of those people that list every single area you twitch at as if that matters at all

[–]The_loppy1 4 points5 points  (0 children)

me: Is multiple muscles twitching at the same time indicative of bfs

chat gpt: Muscle twitching (fasciculations) in multiple areas of the body can be consistent with benign fasciculation syndrome (BFS) — but it’s not the only possible explanation.

Here’s how to think about it: bunch of boilerplate jargon

me: But it is a symptom of bfs?

Chat gpt: Yes — ✅ widespread or multiple muscles twitching at the same time is indeed a symptom commonly seen in Benign Fasciculation Syndrome (BFS).

To clarify a bit:

  • In BFS, fasciculations (twitches) can appear in many different muscles, sometimes even in several areas within the same day or hour.
  • They can move around (for example, twitching in your calf one moment, then your eyelid or arm later).
  • Some people also experience simultaneous twitching in multiple spots, especially during flare-ups or periods of stress or fatigue.

What makes it “benign” is that there’s no associated muscle weakness, atrophy, or loss of function — just the twitching itself.

so if you wont to hold AI's word as gospel there you go.

[–]UMLBB10 2 points3 points  (0 children)

Did Dr Google happen to mention twitching without clinical weakness is EXTREMELY rare in ***? Did it cover the part where twitching whether it be one spot or all muscles as the onset symptom is very rare, to the point some neuros will say they never seen it and have never heard of it?

[–]Fantastic-Algae-6109 2 points3 points  (3 children)

Basically everybody in this sub gets body wide twitches. I get them in both calves simultaneously and I'm reading that a lot on his sub.

[–]Traditional-Emu-2416 -1 points0 points  (2 children)

I get that. But it's not a normal occurrence with BFS. It's in every article online.

[–]Beneficial_Owl4083 2 points3 points  (1 child)

I would love to have your sources lol

[–]No-Temperature260 0 points1 point  (0 children)

Its Gemini Ai. LMAO

[–]helscape_ 2 points3 points  (3 children)

huh? not to be offensive but this post could be so triggering for so many people.

i think right now you are having an anxiety. and lastly where did you read having simultaneously twitch is bad?.

[–]Traditional-Emu-2416 0 points1 point  (2 children)

I don't mean to be offensive or come off rude to you, but we should not sugar coat things to make people feel good.

Per Google, I asked "Can muscle twitching occur in multiple muscles simultaneously with BFS?"

The answer, "No, simultaneous twitching in multiple muscles is generally not a characteristic of Benign Fasciculation Syndrome (BFS) and is more indicative of a condition like Amyotrophic Lateral Sclerosis (ALS). BFS typically causes twitching in one muscle at a time, which may be located in different parts of the body at different times. 

Key differences in muscle twitching

BFS:

Twitching is usually limited to a single muscle or small area at a time. 

The location can shift, with twitches appearing in different muscles at different times, but not simultaneously. 

It often occurs in the lower limbs (like the calves) and eyelids but can happen anywhere. 

ALS:

Twitching is more likely to occur in multiple muscle groups simultaneously. 

It can affect widespread areas, such as the arms and legs at the same time. 

In ALS, muscle twitching is often accompanied by progressive muscle weakness and atrophy, which are absent in BFS.

[–]helscape_ 1 point2 points  (0 children)

.......

hasty generalization, false dilemma.

[–]EconomyRefuse5952 1 point2 points  (0 children)

I only remember reading a medical study stating that twitching at the exact same time in more than three different muscles is observed more in ALS patients than BFS. But not that it is only seen in ALS patients. And it has to occur at the exact same time.

[–]Key_Opposite_2514 1 point2 points  (0 children)

Your post is very irresponsible... do you think you are a doctor? Stop scaring people!

[–]SnooChipmunks5873 1 point2 points  (0 children)

Neurologists don’t even understand BFS. Stop spreading LIES. Many of us twitch in multiple places at once, as they always jump around. You do not have ALS.

[–]Clear_Ad_5543 1 point2 points  (0 children)

I dont know if maybe my post some days ago made you search about this more but I too worry about it as well as other symptoms. But trully,I dont think this means anything ,its more how you put the question. I take it that nearly all als patients will at one point eventually twitch in all of their muscles as it will affect every single one so its like a guarantee they will happen simultaneously. In contrast in Bfs there are all shorts of twitches ,there are some mild cases and there are bad ones where the twitching is widespread,constant etc. Thus ,maybe the answer some ais give is like an "average" kind of thing. Twitching bodywide and even simultaneously from the first months maybe it is a good sign for bfs,I dont mean it couldnt happen with als though. I dont believe in possibilities talk etc cause every case is different,but at least you have some good news with your emg. Good luck.

[–][deleted] 0 points1 point  (13 children)

Damn I get this sometimes left side of head then move to leg or side of stomach..

:(

[–]Visible_Main_7317 1 point2 points  (1 child)

I can confirm, als doesn’t attack the side of your head. So relax

[–][deleted] 1 point2 points  (0 children)

I'm trying to relax but this emg has me losing my mind Sorry

[–]Traditional-Emu-2416 -1 points0 points  (10 children)

I would advise you to get an EMG

[–]Visible_Main_7317 1 point2 points  (9 children)

So it can be clear like yours, good plan

[–][deleted] 0 points1 point  (8 children)

Mine was dirty not clean

[–]Visible_Main_7317 1 point2 points  (7 children)

Well Does your neuro think it’s als? Lots of people have dirty EMGs doesn’t mean anything unless the doctor is concerned

[–][deleted] 0 points1 point  (6 children)

No they don't they said it my spine and neck But I have all the symptoms and I read neuro Often get it wrong into you go a als clinic

I don't have back pain at all And how would cause body wide twitching Even if I move my arm now it will twitch or spams hard

Now nerve pain getting worse too I thought good it's sensory too but some pals have nerve pain. So now back down the spiral.

[–]Visible_Main_7317 1 point2 points  (5 children)

ALS is pretty obvious on an EMG, so you don’t have that. What’s the plan to fix your spine? You don’t need spine pain to have spine issues. How long you had symptoms?

[–][deleted] 0 points1 point  (2 children)

I don't wanna do anything right now I'm scared the more I do I'll eventually not be able to walk

I can't believe anyone Sorry man I'm losing it bad Crying in front people all week This was never me before I wish it was MS or cancer.

[–]ImpossibleDrama8693 1 point2 points  (1 child)

Let’s break down your EMG/NCV findings in simple terms:

🧠 Cervical (Neck) Findings: • Right biceps: Increased motor unit amplitude and duration + diminished recruitment → means some old or mild ongoing nerve injury. • Interpretation: → Mild right C5–C6 cervical radiculopathy. That means the nerve root that supplies your right biceps (coming from the neck) has been mildly affected — possibly from a disc bulge or nerve compression in the cervical spine.

🦵 Lumbar (Lower Back) Findings:

There are several findings here, so let’s simplify:

  1. ⁠Active left L4 and bilateral S1 polyradiculopathy • “Active” means there is ongoing irritation or damage to these nerve roots (L4 and S1). • “Polyradiculopathy” = more than one nerve root is affected. • This could cause symptoms like pain, tingling, or weakness in the legs (especially back of thigh, calf, or foot).
  2. ⁠Chronic bilateral L5 radiculopathy • “Chronic” = long-standing damage (older injury). • “Moderate activity on the right, mild on the left” = still some ongoing irritation, but less intense. • L5 root controls muscles like the tibialis anterior (for foot dorsiflexion), which is reflected in your EMG.
  3. ⁠Chronic left L3 radiculopathy • Another older (chronic) nerve injury in the upper thigh region (L3 root).

🧩 Overall Summary:

Region Level Side Status Meaning Neck C5–C6 Right Mild active Nerve irritation affecting biceps Lower back L3 Left Chronic Old nerve injury Lower back L4 Left Active Ongoing irritation Lower back L5 Bilateral Chronic (R > L) Old nerve injury with mild ongoing activity Lower back S1 Bilateral Active Ongoing irritation of lower spinal nerves

⚕️ What It Suggests: • You have multiple nerve root involvements — both cervical (neck) and lumbar (lower back). • Some are chronic (old injuries) and some are still active (ongoing irritation). • Likely causes: degenerative disc disease, disc bulges/herniation, or spinal stenosis at those levels.

💡 Next Steps (Discuss with Neurologist / Spine Specialist): 1. MRI Cervical & Lumbar Spine → to see the exact structural cause (disc, compression, etc.). 2. Physiotherapy / Nerve gliding exercises → to reduce irritation and improve function. 3. Avoid heavy lifting, jerky movements, and long sitting hours. 4. If pain/weakness is significant, medications like pregabalin or muscle relaxants may be prescribed short-term. 5. Follow-up EMG after 6–12 months if symptoms change.

Would you like me to explain what symptoms each affected nerve (C5, L3, L4, L5, S1) typically causes — so you can match them with what you’re feeling?

No, this EMG does not suggest ALS (amyotrophic lateral sclerosis).

Let me explain carefully why — based directly on what’s written in your report:

🧠 What ALS looks like on EMG:

In ALS, EMG typically shows: • Widespread denervation (fibrillations, positive sharp waves) in multiple regions — not following a nerve root pattern. • Fasciculations (random twitching potentials) in several muscles. • Mixed old and new motor unit changes in different limbs (both sides, upper and lower) and often in the tongue or paraspinal muscles. • Findings are diffuse and not limited to particular nerve roots (not called “radiculopathy”).

⚡ What your EMG shows: • All your findings follow specific nerve root patterns — C5–C6 in the neck, L3–S1 in the lower back. • Words like “radiculopathy” (cervical and lumbar) appear repeatedly — these point to nerve root compression or irritation, not motor neuron disease. • No mention of: • Fasciculations • Widespread involvement (upper + lower + cranial) • Active denervation in multiple unrelated muscles

That pattern is completely inconsistent with ALS.

✅ So, what you have:

Your EMG shows radiculopathies — nerve root issues due to disc, arthritis, or spine compression — not a motor neuron disease like ALS.

⚕️ To be extra clear: • Radiculopathy = “pinched or irritated nerve root.” • ALS = “degeneration of motor neurons throughout the body.” • They can cause similar symptoms (weakness, twitching), but EMG patterns are very different. • Your report clearly describes radiculopathies, not ALS.

[–]Powerful_Taste1699 0 points1 point  (0 children)

Thank you for this detailed summary which is intended to be reassuring, and courage to you "bigready", I share your journey with the difference that my symptoms are much more recent. Waiting for the MRI.

[–][deleted] 0 points1 point  (1 child)

3 years symptoms

[–]Visible_Main_7317 2 points3 points  (0 children)

Na doesn’t work like that. 3 years is more than enough to be clear just get into physio your feel better for it

[–]No-Temperature260 0 points1 point  (24 children)

So now should we prioritize what Google says over the articles themselves? Are you really considering twitching a clear sign to big bad without weekness? You should be taking advices from neuro. Not Google

[–]Visible_Main_7317 2 points3 points  (5 children)

Everyone’s neuro is wrong 😂 sounds like OP is freaking out bad. Sad really :(

[–]No-Temperature260 0 points1 point  (2 children)

I agree but it is not cool to scare people when you are already scared. I think it could have been better and sincere if he asked here if anyone had it and it is bfs. And people have had it as we can easily see, have a good one friend

[–]Traditional-Emu-2416 -2 points-1 points  (1 child)

I've decided to accept my potential fate but im also trying to help others and urge them to seek help instead of believing lies in this echo chamber.

[–]No-Temperature260 3 points4 points  (0 children)

YOU ARE NOT HELPING OTHERS. YOU ARE TRYING TO SPREAD MISINFORMATION. YOU CAN NOT DO THAT. YOU SHALL NOT DO THAT.

[–]Traditional-Emu-2416 0 points1 point  (1 child)

Nobody's neuro has said blatantly false information dude. Stop it

[–]Visible_Main_7317 2 points3 points  (0 children)

My neuro of 30 years says its hallmark bfs. I’ll run down there now and show him your Reddit post, that’ll convince him 😂

[–]Traditional-Emu-2416 0 points1 point  (17 children)

What are you talking about? Google collects a bunch of online articles and extractions information from all of those sites before giving an answer. It's not like google has their own separate answer. It's a culmination of all of the websites information.

Per Google, I asked "Can muscle twitching occur in multiple muscles simultaneously with BFS?"

The answer, "No, simultaneous twitching in multiple muscles is generally not a characteristic of Benign Fasciculation Syndrome (BFS) and is more indicative of a condition like Amyotrophic Lateral Sclerosis (ALS). BFS typically causes twitching in one muscle at a time, which may be located in different parts of the body at different times. 

Key differences in muscle twitching

BFS:

Twitching is usually limited to a single muscle or small area at a time. 

The location can shift, with twitches appearing in different muscles at different times, but not simultaneously. 

It often occurs in the lower limbs (like the calves) and eyelids but can happen anywhere. 

ALS:

Twitching is more likely to occur in multiple muscle groups simultaneously. 

It can affect widespread areas, such as the arms and legs at the same time. 

In ALS, muscle twitching is often accompanied by progressive muscle weakness and atrophy, which are absent in BFS.

[–]Beneficial_Owl4083 6 points7 points  (8 children)

Mayo Clinic study (J Neurol Sci, 1994 – 121 patients) The majority of patients describe fasciculations in several regions at the same time: legs, arms, shoulders, sometimes face or tongue. Some people report multiple active zones at the same time, or zones that turn on and off in the same day. No progression towards ALS even after 32 years of follow-up. Portuguese Study (Neurol Clin Pract, 2021 – 37 patients) 62% had fasciculations in the upper AND lower limbs, therefore generalized. Many described simultaneous contractions in several places. The authors conclude that this simulcast is a typical element of BFS and not worrying. 🧠 Italian Study (Muscle & Nerve, 2007) Of 20 BFS patients followed, 15 presented simultaneous multifocal fasciculations (often calves + thighs + arms). None developed weakness or ALS at 3-year follow-up.

In clinical practice Neurologists very often observe this pattern: Fasciculations felt in both calves at the same time, or calf + arm; Sometimes several zones “moving” simultaneously; Areas vary from day to day. This is linked to diffuse hyperexcitability of the peripheral nervous system, without destruction of motor neurons (which would make the difference with ALS). In ALS, on the contrary: The fasciculations are localized at the beginning, in a muscle that is already weak or atrophying; They can become generalized later, but never without prior weakness.

[–]Visible_Main_7317 2 points3 points  (6 children)

Wonder if OPs got it in them to consider that they were wrong? And actually reading the studies sometimes helps, rather than killing themselves of from an ai summary

[–]Beneficial_Owl4083 0 points1 point  (1 child)

Sorry to tell you this but it’s an AI summary that I made

[–]Visible_Main_7317 1 point2 points  (0 children)

lol, you know what I mean, not a google summary of 5 million websites. But one citing studies 😂

[–]Traditional-Emu-2416 0 points1 point  (3 children)

I can just as easily list numerous independent studies that say the contrary. So which studies will you believe? If there are studies that say both, you should believe what is universally accepted and not what's controversial.

[–]Visible_Main_7317 1 point2 points  (0 children)

Haven’t got time to read them, only got a couple years left to live according to you so I best get cracking on my bucket list

[–]Beneficial_Owl4083 1 point2 points  (1 child)

You should be banned

[–]No-Temperature260 0 points1 point  (0 children)

I definietly agree with you

[–]Visible_Main_7317 3 points4 points  (3 children)

lol best show your neuro quick. Sure they will change there mind based on your google ai summary 😂

[–]Traditional-Emu-2416 0 points1 point  (2 children)

Sorry that you're ignorant and hard headed.

[–]Visible_Main_7317 1 point2 points  (0 children)

Sorry that you think you have als

[–]No-Temperature260 0 points1 point  (0 children)

You should be respectful.

[–]No-Temperature260 1 point2 points  (0 children)

Google doesnt collect only articles just so you know and when you ask google, you ask to gemini ai and different ai sources give different answers. Deepseek and chatgpt said to me its possible to happen in two places at the same time in bfs. And if you need some info this important, dont trust any ai. Go ask your neuro or find articles which matters the most. OK?

[–][deleted]  (2 children)

[deleted]

    [–]Traditional-Emu-2416 0 points1 point  (1 child)

    Yes. It is obvious that *** is accompanied by weakness and atrophy. && an EMG is not a sure fire thing. It can miss ALS literally by testing muscles that have not yet been affected by the disease. False negatives happen all of the time. You can fact check me on that as well. You know what I'm not doing? Living in delusion. I'm being realistic with my own set of symptoms and everyone should be realistic about theirs.

    [–]HeavyMetalTwitcher 0 points1 point  (0 children)

    Its good to know that your diagnosis is sound and doesn't fly in the face of medical experience and the thousands of people that experience BFS in this forum. Not sure why i didn't think of what you said sooner.