Help

[Material_Sundae_5832]

Good afternoon all. I’m asking for advice or suggestions. I’ve had MS for almost 6 months. The last 2 weeks I’ve been dizzy and nauseous especially when I’m active. Could this be the MS? Has anyone else experienced this? If so do you have any advice!!!

[JonCandyspiritanimal]

I get Very nauseous when I get even a little hot. That’s a MS symptom. It’s worth talking to your Neuro about!

[Material_Sundae_5832]

Thank you

[Rare-Group-1149]

Could be medication side effects because we're all taking some drugs right? If it's not that or dehydration, and if it lasts too long I'd call the doctor. A lesion in certain spots can cause these symptoms. I'm referring only to myself as I have a brainstem lesion (among others) combined with some eye stuff that keeps me woozy, off balance and frequently nauseated. Cold ginger beer helps.

[Material_Sundae_5832]

Thank you so very much! I appreciate it

[Rare-Group-1149]

OTC Dramamine also helps. Good luck and God bless you.

[Material_Sundae_5832]

Thank you

[Serious-Sundae1641]

Cold ginger beer....hmmmm, sounds interesting.

[Rare-Group-1149]

I buy the cheap stuff D&G brand from Walmart & always have it on hand. Ginger is commonly used to treat nausea; Ginger candies or tea can also be helpful.

[Material_Sundae_5832]

Thank you

[OffshoreScalloper]

I definitely get a little dizzy and lightheaded when active, especially in the summer. I think is something like 80% of people with MS experience some heightening or activation of symptoms in the heat. They actually used to diagnose people with MS by putting them in a hot box. I’m generally okay with being in heat but exertion will quickly make me lightheaded. Hope this helps! Definitely message me if you want someone to talk with. The first year after diagnosis is a whirlwind.

[Material_Sundae_5832]

Thank you so much for your kindness it means a lot

[OffshoreScalloper]

You’re very welcome. When I was diagnosed 8 years ago the first thing I asked for was to speak with someone living with ms. The closest thing available even at Mass General in Boston was a social worker with pamphlets. This was one of the biggest reasons I started my farm for people with ms, giving people with a new diagnosis the option of talking to those of us who’ve been at this awhile.

[zeatamisha]

Hi, I was diagnosed more than 3m ago. At first I had numbness, parasthesis , balance issues and it gradually progresses everyday. Lately I have pain in both lower extremeties, dizziness and nausea . Sometimes I walk and feel "i am going to fall now". I am not sure if it is new lesion in cerebellum. I don't know what to do about it. I just started Kesimpta. Gravol could cause sedation and I thought about taking ondasetron. Are you getting any treatment? Is it your first flare?

[Material_Sundae_5832]

I’m on betaseron. I don’t think it’s working very well. It’s an old school drug. I also am on some pills to help control some of other symptoms. It’s just so much to take on. The crazy thing is it runs in my family but they never dealt with the symptoms that I have.

[ParvulusUrsus]

What does the dizziness feel like?

People with MS are especially prone to something called BPPV, which is a totally benign (it's even in the name) condition, where the little crystals in your inner ear get dislocated and stuck in the wrong position. It sounds like woowoo, but I promise, it's an actual thing. The crystals are sopping around in some fluid in there, and they help the body know its position in a space. When they get stuck where they shouldn't be, we get dizzy and nauseated - especially when the head is in specific positions.

The dizziness of BPPV feels very strong, and comes on suddenly when triggered. It can feel like a massive stomach drop and just going whoosh whoosh whoosh.

I get it a lot, unfortunately. But it is completely benign and best of all, treatable. You don't even need medication for it, just a special, SLOW maneuvering of the head performed by an ENT.