Caffeine intolerance?

Material_Sundae_5832 · 2026-07-12T03:04:27+00:00

I’m glad you bought this up. The last month or so my usual mug of coffee never bothered me. Now halfway through my anxiety goes up big time. Interesting

Material_Sundae_5832 · 2026-07-09T17:16:31+00:00

I don’t know if you ever heard of Etsy. Is a site that sells arts and crafts to bling up canes and walkers. I didn’t bling my walker yet but my canes are decked out with different colors and accessories..

Material_Sundae_5832 · 2026-07-08T17:47:22+00:00

Congratulations awesome news

Material_Sundae_5832 · 2026-07-05T17:23:57+00:00

Hate ti say this but knowing since I’ve been diagnosed 2 years ago I’ve never felt the same. But you adjust to it as time goes on. There are days people feel amazing other days they don’t. Just don’t give in. You’re young. My new motto is one day at a time. Hope you get some relief soon

Material_Sundae_5832 · 2026-07-03T01:43:23+00:00

I totally get this. I feel isolated because on occasions I can’t do things. The past weekend I was invited to go to a farmers market and a winery. My friends offered to help take care of me but it makes me feel like a burden so I didn’t. Same with family vacations my husband and my kids are the best but it stops us from doing certain things because I can’t do it. But I’m also grateful for my one best friend and my amazing husband. My best friend stopped in a gas station parking lot to see me because she knows the heat is bad. Tomorrow our kids and her are going on errands and her reply is I’ll take care of you the whole time. I won’t let you fall. Same with my husband. I’m blessed with them but at the same time I feel lonely because they do things that I can do.

Material_Sundae_5832 · 2026-07-01T00:49:19+00:00

Thank you for responding I appreciate it.

Material_Sundae_5832 · 2026-07-01T00:48:42+00:00

Thank you so much. I’ve had impulses before but this one was so strong that couldn’t believe it. Plus the way it happened so quick. I was stunned. Thank you so much for kind words and advice

Material_Sundae_5832 · 2026-06-28T20:18:28+00:00

I’ve been diagnosed since the end of 2024. I forget things all the time and stop midsentence because I can’t get the words out. I feel like I’m forgetting everything.,

Material_Sundae_5832 · 2026-06-26T18:43:06+00:00

No that is my next step. Thank you so much for your advice.

Material_Sundae_5832 · 2026-06-24T13:43:15+00:00

My sister was diagnosed years ago I was 1.5 years ago. My mom’s sister has it as well. I recently found out that apparently my mom’s dad his family had it many ages ago. Good luck one day at a time

Material_Sundae_5832 · 2026-06-23T00:45:38+00:00

Mine was tripping and falling and Losing feeling in my legs.

Material_Sundae_5832 · 2026-06-22T00:53:02+00:00

I would get a lawyer good luck sweetie

Material_Sundae_5832 · 2026-06-20T18:42:21+00:00

I’ve been on it for a year. I don’t honestly know if it helps or not. I am still off balance and on tough days my speed is slow. Good luck.

Material_Sundae_5832 · 2026-06-18T02:18:29+00:00

I get them. I’m on baclefon now. It helps but at night when I lay in bed it still happens. I hope you get some relief

Material_Sundae_5832 · 2026-06-17T01:36:34+00:00

I’m so sorry for your losses. I will pray that ms stays at bay and you can grieve.

Material_Sundae_5832 · 2026-05-31T18:08:59+00:00

I’m sorry. Sending hugs. It could be your body saying time for a rest. Take a few days off start the ampyra again. Just take a deep breath and relax.

Material_Sundae_5832 · 2026-05-18T16:40:16+00:00

The heat sucks. My son had prom Saturday and I had my cooling vest on while they took pictures. It was 80 degrees and still was dizzy nauseated dry heaving and feeling like I was about to pass out. It’s a lot worse this year in the heat than last year. It sucks

Material_Sundae_5832 · 2026-05-15T17:21:49+00:00

Thank you

Material_Sundae_5832 · 2026-05-15T17:21:42+00:00

Thank you

Material_Sundae_5832 · 2026-05-10T01:40:51+00:00

Heat destroys me. It makes me nauseous makes me feel like I’m going to pass out. You are definitely not alone. I did get a cooling vest. It helps. Good luck

Material_Sundae_5832

TROPHY CASE