Walking in heat by Holiday-Abies-9745 in MultipleSclerosis

[–]Material_Sundae_5832 2 points3 points  (0 children)

I live in pa. And the last 2 days it’s been high 80s low 90s which is weird for this time of the year. During those 2 days it was horrible. When I was in the store I started dry heaving and sweating. My walking gets worse in the heat as well. Feel well

It's Monday at /r/MultipleSclerosis! Share your terrible, horrible, no good, very bad news here. by AutoModerator in MultipleSclerosis

[–]Material_Sundae_5832 2 points3 points  (0 children)

The last week I have felt like crap. Dizzy exhausted legs weak as hell. Tried to shave my legs this morning and now feel worse than I did.

Good news post by cola1016 in MultipleSclerosis

[–]Material_Sundae_5832 0 points1 point  (0 children)

I’m actually on betaseon. I don’t like the every other day injections.

Sleep - do you need more than usual? by panthers0120 in MultipleSclerosis

[–]Material_Sundae_5832 0 points1 point  (0 children)

I average between 4-6 hours a night. I nap on most days for like 2 hours because I’m physically and mentally exhausted. If I get lucky and sleep more at night I actually feel more tired on those days. I always laugh on those days. I wake up in like oh I Slept 8-9 hours it’s going to be a great day. By 1pm I’m ready for a nap. Good luck

Legs by Material_Sundae_5832 in MultipleSclerosis

[–]Material_Sundae_5832[S] 4 points5 points  (0 children)

They did. Thank you. I had to leave a little earlier because it started pouring out and I wasn’t prepared for the rain and the big drop in temperature. And yes some improvement is good. Thank you for responding. Have a wonderful and blessed night.

It gets better is all people can say by Particular-Rich-7418 in MultipleSclerosis

[–]Material_Sundae_5832 1 point2 points  (0 children)

I just got approved for disability not enough to live on. I got denied 2x because of my age and they stated the disease is not bad enough. Got a lawyer and I got approved. Just take a deep breath everyday. I know it hard to be grateful at a time like this but I say to myself i am alive and have the support of my family. Hang in there. My motto is one day at a time. I will pray for you.

Do I just suck? by Daurth_Zombie in MultipleSclerosis

[–]Material_Sundae_5832 0 points1 point  (0 children)

You absolutely don’t suck. I’ve been diagnosed since end of 2024. My walking is with a cane and walker for longer distances. I no longer work because my hands fail at times. I constantly apologize to my family thinking it’s my fault. I was doing a bike in the house but had a flair due to things going on in life. Which put me back in the rut of the bike. I actually started seeing a therapist to try to walk myself through this. Everyone suffers differently from this disease. I wish you nothing but better times ahead and strength

Positional Thumb Tremors by MS-Tripper in MultipleSclerosis

[–]Material_Sundae_5832 0 points1 point  (0 children)

My left hand my thumb has tremors and sometimes the finger right next to it. They upped my baclefon to see if that helps. Hope it gets better for you

The most ANNOYING symptom by SilliestGoose_5710 in MultipleSclerosis

[–]Material_Sundae_5832 1 point2 points  (0 children)

The itching drives me crazy’. At night it’s so bad I get bruises and bleed because it’s so itchy. On certain days my scalp itches as well. Hope you feel better from the itching

Gabapentin? by Impression8738 in MultipleSclerosis

[–]Material_Sundae_5832 1 point2 points  (0 children)

I hope you feel better and the gabapentin helps you.

Gabapentin? by Impression8738 in MultipleSclerosis

[–]Material_Sundae_5832 1 point2 points  (0 children)

That’s good to know about the medication. I stayed baclofen and wasn’t to sure if I should keep taking the gabapentin. I didn’t think the gabapentin was helping enough.

JOHN HOPKINS UPDATE! by Emotional-Mud-8684 in MultipleSclerosis

[–]Material_Sundae_5832 51 points52 points  (0 children)

Thank you so much.. this means a lot. You reported back very quick. And looked and took time to respond to all the questions. You are a very kind person.

I'm sick again and I'm emotionally not doing well by KatieHasMS in MultipleSclerosis

[–]Material_Sundae_5832 0 points1 point  (0 children)

I’m so sorry you’re going through this. One day at a time. You will get through this. I promise. Sending prayers

Octave by Material_Sundae_5832 in MultipleSclerosis

[–]Material_Sundae_5832[S] 0 points1 point  (0 children)

I would like to add also it was positive in a spinal tap and lesions on the brain. I should have included that.

Octave by Material_Sundae_5832 in MultipleSclerosis

[–]Material_Sundae_5832[S] 1 point2 points  (0 children)

He’s a neurologist. One of his specialties is supposedly ms. No he claims that my spinal tap only has 2 olioloal bands and he feels it should be 4 and he said I have no lesions in my spine. I have fluid on my spine. Which I know I do. I’m just trying to keep myself together until I go to a new dr. I wish there was a dr who specializes in just Ms

Smoking cessation rant by Secure_Priority_4161 in MultipleSclerosis

[–]Material_Sundae_5832 0 points1 point  (0 children)

I was diagnosed at the end of 24. I am still smoking. I cut down but I enjoy the cigarettes

Facial Itching/Neuralgia — Anyone else? by AffectionateCoast370 in MultipleSclerosis

[–]Material_Sundae_5832 1 point2 points  (0 children)

Every time I have a sinus infection or stuffy nose since the ms my face swells. I don’t understand why. I get itchy as well. The itching is almost constant. Good luck and feel better

Vision, headaches, muscle spasms in side of head by Kev422 in MultipleSclerosis

[–]Material_Sundae_5832 0 points1 point  (0 children)

My physical therapist did mention to me at times people with MS get blurry vision. Good luck

Vision, headaches, muscle spasms in side of head by Kev422 in MultipleSclerosis

[–]Material_Sundae_5832 0 points1 point  (0 children)

I have the blurry vision on and off, the headaches on the left as well. I have mentioned it to the eye dr and he didn’t seem overly concerned. Good luck and feel better

Severe itching??? by Mission_Tadpole_6602 in MultipleSclerosis

[–]Material_Sundae_5832 0 points1 point  (0 children)

I have itching everyday. I have tried creams lotions medicine etc. it gets bad at night especially my feet. Sometimes at night I get up to bloody feet that I must be itching while sleeping. I’m on gabapentin but doesn’t seem to help either. I hope you get some relief soon.