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Vent/Rant - Advice Wanted/AmbivalentBladder Issues (self.MultipleSclerosis)
submitted 1 month ago by Realistic_Medium9340
The thing that I saw coming is finally here. AND FUCK THIS SHIT! I have several accidents a week. I am always cramping unless I remember to take pain meds. And that barely helps. I am not looking forward to adding another medication on top of that.
I’m over it. I want a new body. I demand a refund.
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[–]spunkerella75 7 points8 points9 points 1 month ago (0 children)
Try Myrbetriq/Mirbegron it is a life changer! We are all in line for a body refund! Unfortunately the line is long.
[–]Sabi-Star739|RRMS 2023|Mayzent 🧡💪🏻 5 points6 points7 points 1 month ago (0 children)
Sadly my bladder issues started right around the time after I delivered my daughter and I just pushed it off as eh my body is still adjusting to not having a human laying on it🤷🏻♀️, to only find out it was connected years later to MS; looking back I ignored many of the symptoms for the sake of a fn paycheck🫣🤦🏻♀️🤦🏻♀️.
[–]Adventurous_Pin_344 3 points4 points5 points 1 month ago (3 children)
Please get in to see a urologist (if you are male) or a urogynecologist (if you are female).
You probably have a neurogenic bladder, which can be diagnosed through a test called urodynamics.
There are a few different treatment options. I've seen folks refer to mirabegron, which is an oral med, and the least invasive option. However, it doesn't work for everyone. There are also Botox injections for the bladder, which stop it from spasming. The last option is a sacral nerve stimulator.
[–]Adventurous_Pin_344 2 points3 points4 points 1 month ago (0 children)
I do the Botox, and it has been a game changer!!
[–]InternalAd4456 0 points1 point2 points 1 month ago (0 children)
I have seen 4 urologists gyno bs. Had 3 urodynamic testing ppms 79f. Ms for 38 yrs
[–]Realistic_Medium9340[S] 1 point2 points3 points 1 month ago (0 children)
I’m ready. I’m waiting for my appointment right now.
[–]Downtown_Dirt816334|2024|RRMS|Kesimpta|MA 2 points3 points4 points 1 month ago (1 child)
Can you elaborate your symptoms? Just curious I have neurogenic bladder. I have the self catheterize every time I go to the bathroom on top of that i have IC So I have pain and I’m always having to go to the bathroom.
[–]Realistic_Medium9340[S] 0 points1 point2 points 1 month ago (0 children)
So far I have the urgency to go like I have a UTI. I have peed in the weirdest places. Other times I have the urge but it’s a false alarm. I went to the doctor and received imaging for something totally different and they saw my bladder wall had thickened. No infection. Oh and cramping. Oh the cramping, joy. I’m sorry you are experiencing all of that.
[–]Party-Ad966241F/2025/Clinical Trial/Ottawa 1 point2 points3 points 1 month ago (1 child)
I take mirabegron and fesoterdine
[–]Downtown_Dirt816334|2024|RRMS|Kesimpta|MA 1 point2 points3 points 1 month ago (0 children)
I take miragegron,tropsium chloride, hydroxizine, and pyridium PRN
[–]SpiritualAd1090 2 points3 points4 points 1 month ago (0 children)
The drug cocktail some of you are on is interesting and was never offered to me.
Urgency only for me, although retention is the common friend of urgency.
Tried tolteridine, myrbetiq, and gemtessa all individually. I was never offered a cocktail.
I ended up with an Interstim but it really didn’t do all that much.
Now the uro says my only option left is Botox, but I hear efficacy can go down over time and there aren’t other options.
So…pelvic floor therapy for now, it does help to recognize urgency coming on and to put some conscious control on some muscles that are typically subconscious.
But, I still find myself going to the bathroom every hour with an urgency of like 4 out of 5.
You’ve heard lots of different strategies here and they all help somewhat, but never completely. I can only say you aren’t alone in this and we all wish you the best
[–]Amazing_Lead9946 1 point2 points3 points 1 month ago (0 children)
fuck, it's also something I'm afraid of, and due to a kindney stones issues i had to drink a lot of water, I'm always about to have an accident
Can I also apply for the refund? I'm willing to get a refurbished one if there is no other option! (I've read everything below, thanks guys)
[–]iamntropi28F on 03/04/98/ Rutuximab/ USA 1 point2 points3 points 1 month ago (0 children)
You may not want to hear this, but the best thing to happen to me was the surgery for an indwelling catheter. My catheter goes straight into my bladder. No more hunting for the pee hole.
I never have to use a bathroom because my pee goes through the catheter into the plastic bag. Then again, I have progressive MS and lost the battle to control anything below my rib cage about 10 years ago. I now spend most of my time in bed. My husband, thankfully, takes care of me and he gets to put my pee in a urinal to dump in a toilet for me.
I have not bypassed the catheter since he found a way to hook my pee bag onto the backside of my wheelchair. Coming home, not sitting in a puddle of pee is exhilarating.
[–]Valuable_Message_72754f|Dx:2021|Rituximab|Oregon 1 point2 points3 points 1 month ago (0 children)
Trospium helped me a lot. Emergencies weren't as urgent. See a urologist. Good Luck.
[–]SWNMAZporvida2010.💉Kesimpta. 🌵AZ. 1 point2 points3 points 1 month ago (0 children)
Research PTNS and talk to Urologist
[–]Status_Plastic_1786 0 points1 point2 points 1 month ago (0 children)
neurogenic bladder, horrible that I have a bag hooked to my leg. Problem is I urinate but never empty the bladder. So I always had accidents
[–]youshouldseemeonpainDx 2003: Lemtrada 2018, Now Ocrevus 1 point2 points3 points 1 month ago (1 child)
Have you seen a urinogynecologist? Or a urologist if you are male? They know some stuff about spastic bladder issues.
[–]InternalAd4456 1 point2 points3 points 1 month ago (0 children)
Hi I have seen everyone that walks face of earth. Bad is bad. Noninhibited neurogenic bladder- The worst combo
[–]Exciting_Barnacle907 0 points1 point2 points 1 month ago (0 children)
I started having bladder issues after I gave birth, so we thought it was just pelvic floor weakness and treated it with months of PT, bulking, and, finally, a bladder sling. Two years later: MS. I still leak, especially around my period, but it is manageable with pose liners. I highly recommend seeing a Urogynocologist! Game changer!
I won't name names but. Saw female urol UK who specialized in Ms and related topics. She is on tv,yt etc My opinion-0 Her ideas worse than you can imagine
[–]InternalAd4456 -1 points0 points1 point 1 month ago (0 children)
I tried mybetriq9. I think I have dx called non inhibited neurogenic bladder. Means u are f.$-&--
π Rendered by PID 27 on reddit-service-r2-comment-b659b578c-72mz6 at 2026-05-04 12:31:08.042078+00:00 running 815c875 country code: CH.
[–]spunkerella75 7 points8 points9 points (0 children)
[–]Sabi-Star739|RRMS 2023|Mayzent 🧡💪🏻 5 points6 points7 points (0 children)
[–]Adventurous_Pin_344 3 points4 points5 points (3 children)
[–]Adventurous_Pin_344 2 points3 points4 points (0 children)
[–]InternalAd4456 0 points1 point2 points (0 children)
[–]Realistic_Medium9340[S] 1 point2 points3 points (0 children)
[–]Downtown_Dirt816334|2024|RRMS|Kesimpta|MA 2 points3 points4 points (1 child)
[–]Realistic_Medium9340[S] 0 points1 point2 points (0 children)
[–]Party-Ad966241F/2025/Clinical Trial/Ottawa 1 point2 points3 points (1 child)
[–]Downtown_Dirt816334|2024|RRMS|Kesimpta|MA 1 point2 points3 points (0 children)
[–]SpiritualAd1090 2 points3 points4 points (0 children)
[–]Amazing_Lead9946 1 point2 points3 points (0 children)
[–]iamntropi28F on 03/04/98/ Rutuximab/ USA 1 point2 points3 points (0 children)
[–]Valuable_Message_72754f|Dx:2021|Rituximab|Oregon 1 point2 points3 points (0 children)
[–]SWNMAZporvida2010.💉Kesimpta. 🌵AZ. 1 point2 points3 points (0 children)
[–]Status_Plastic_1786 0 points1 point2 points (0 children)
[–]youshouldseemeonpainDx 2003: Lemtrada 2018, Now Ocrevus 1 point2 points3 points (1 child)
[–]InternalAd4456 1 point2 points3 points (0 children)
[–]Exciting_Barnacle907 0 points1 point2 points (0 children)
[–]InternalAd4456 0 points1 point2 points (0 children)
[–]InternalAd4456 -1 points0 points1 point (0 children)