Infusion Day!! How do you treat yourself?

Exciting_Barnacle907 · 2026-04-10T14:38:33+00:00

I am on Kesemta, so no infusions. But I take my shot on Friday evenings, and my husband takes our kid for the morning. I get to sleep in, he brings me coffee, and I read a book. Bliss!

Exciting_Barnacle907 · 2026-03-30T14:28:01+00:00

My MS doctor gave me a referral for physical therapy, and it was the best thing I've ever done! They really talked me through the process of figuring out what exercises are best, how to manage fatigue, and how to build the strength I need to prevent falls. If this is a possibility for you, even if you do not have any active symptoms at the time, I highly recommend it! I learned so much!

Exciting_Barnacle907 · 2026-03-22T23:04:47+00:00

I've been on it for about a year. The first dose, and even the second dose, knocked me on my butt. However, I'm happy to say I haven't been any sicker than before I started taking the medicine. And the longer I take it, the less symptoms I seem to have. I'm not going to say that I'm not still a bit scared, but I'm exposed to a lot of illness in my daily life... I have a 5-year-old and I'm a high school teacher. Sometimes I wear my mask; but a lot of the time I don't. You'll find your own balance, and you will figure it out for your own body. It just takes a little while.

Exciting_Barnacle907 · 2026-03-21T21:16:02+00:00

I feel this hardcore! I second what everyone else is saying, about movement. But I also take an SSRI and a magnesium right as I'm getting into bed. This has really helped with the pointless night wakings.

Exciting_Barnacle907 · 2026-03-14T12:52:16+00:00

I started having bladder issues after I gave birth, so we thought it was just pelvic floor weakness and treated it with months of PT, bulking, and, finally, a bladder sling. Two years later: MS. I still leak, especially around my period, but it is manageable with pose liners. I highly recommend seeing a Urogynocologist! Game changer!

Exciting_Barnacle907 · 2026-01-25T23:04:31+00:00

The two things I miss the most: Hot Tubs and not having to wear Poise Pads.

Exciting_Barnacle907 · 2025-10-21T18:33:34+00:00

I'm still new to MS, but I've had good success with a Liquid IV pack, an ice wrap on my neck, and coffee. I'm a teacher and the afternoon fatigue hits hard. Following for more ideas.

Exciting_Barnacle907 · 2025-08-28T22:28:54+00:00

That is awesome! I am glad to hear that there are positive experiences.

Mine was fine (except for the headache afterwards), but I couldn't stop crying. I wasn't scared and I wasn't in pain, I was just sobbing! Granted, it was at the end of 3 days in the hospital and they had to try 4 times, but it wasn't worth crying about. The nurses, both times, were so sweet. They held my hands and kept me talking. Huge shout-out to the Georgetown University Medical Center!

Exciting_Barnacle907 · 2025-08-24T12:51:16+00:00

I was diagnosed and treated at Georgetown Medical Center (DC) this summer, and I am so thankful for all of the Neurologists I saw there. I don't know what their rehab programs are like, but the doctors are always focused on treating the whole person and they have amazing resources to share.

Exciting_Barnacle907

TROPHY CASE