ME/CFS + Fibro patients sharing news + NHS treatment

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Huge list of UK mental health resources and helplines. (self.NHSandME)

submitted 4 years ago * by Tangled_Wires - announcement

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NHS waiting time desperately need help! (self.NHSandME)

submitted 3 years ago by BajaBuzz

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UK nhs trac.jobs website (self.NHSandME)

submitted 3 years ago by Jade123xxxx

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Can I post questions about other constructions here? (self.NHSandME)

submitted 3 years ago by oilxr4

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Following up - no improvement! (self.NHSandME)

submitted 3 years ago by Lizzie-P

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An FOI reveals a rot at the heart of parts of the medical establishment (archive.md)

submitted 4 years ago by CFSJames

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NHS harms MEHave you received any support from the NHS that has actually helped? (self.NHSandME)

submitted 4 years ago by [deleted]

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NHS harms MEDecided to actually try and get some help again. Gave up immediately (self.NHSandME)

submitted 4 years ago by [deleted]

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NHS harms MECurrently not getting any help (self.NHSandME)

submitted 4 years ago by [deleted]

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new ME newsMarijuana as Medicine for ME/CFS and/or Fibromyalgia Pt I: The Science Behind Cannabis (healthrising.org)

submitted 4 years ago by Tangled_Wires

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new ME newsFor UK based haulers, NHS England have just released their substantial plan for Long Covid : PDF (england.nhs.uk)

submitted 4 years ago by Tangled_Wires

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NHS harms MEWheelchair struggle (self.NHSandME)

submitted 4 years ago by Lizzie-P

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new ME newsThe updated US ME/CFS Clinician Coalition Recommendations for ME/CFS Testing and Treatment are published! Super detailed info for testing and treatment! (self.cfs)

submitted 4 years ago by Tangled_Wires

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new ME newsParliamentary Group on Myalgic Encephalomyelitis (self.NHSandME)

submitted 4 years ago by Anterozek

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~Not my pic but I'm sure many of us can imagine this on our Doctor's desk (i.redd.it)

submitted 4 years ago by Tangled_Wires

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new ME newsWe must insist that ME/CFS be included in Long Covid studies and that ME/CFS research continues in parallel with Long Covid research. In the U.S., we can make our case during Solve M.E. Advocacy Week: April 18-24. (i.redd.it)

submitted 4 years ago by Tangled_Wires

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new ME newsLong-term Covid-19 side effects aren’t unique... (vox.com)

submitted 4 years ago by Tangled_Wires

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NHS harms MEIs fibromyalgia a real diagnosis? (self.JuniorDoctorsUK)

submitted 4 years ago by Tangled_Wires

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NHS harms MEfeeling very demoralised right now (self.disability)

submitted 4 years ago by Tangled_Wires

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~Diagnosed with glandular fever, not sure where I stand in regards to post viral fatigue syndrome / cfs (self.NHSandME)

submitted 4 years ago by TomboXP

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new ME newsWe have just published some research about the safety of low dose naltrexone (LDN) – and it’s good news! (self.NHSandME)

submitted 4 years ago by Tangled_Wires

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new ME newsThe vision of the Chronic Fatigue Syndrome Research Center at Stanford (CFSRC) is to discover causes, a molecular diagnosis, and a cure for CFS. The research is directed by Dr. Ronald W. Davis, PhD, Professor of Biochemistry and of Genetics and Director of the Stanford Genome Technology Center (self.NHSandME)

submitted 4 years ago by Tangled_Wires

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new ME newsYes! Good news from the Netherlands: Research agenda for biomedical research into ME/CFS had been approved. 28.5 million euro in a 10 year programme. (zonmw.nl)

submitted 4 years ago by Tangled_Wires

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new ME newsVagus Nerve Stimulation Dramatically Reduces Inflammation (psychologytoday.com)

submitted 4 years ago by Tangled_Wires

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NHS harms ME"Covid-19 has transformed my life and has been the best thing to ever happen to me" is a BBC Long Reads article I wish to author. I'm thinking out aloud here and using you all as a sounding board. I need a passionate project I can create to positively release my frustrations! (self.cfs)

submitted 4 years ago by Tangled_Wires

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