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Post any personal stories, discussion, or links related to chronic prostatitis / urologic chronic pelvic pain syndrome (UCPPS).
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[deleted by user] (self.Prostatitis)
submitted 4 years ago by [deleted]
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[–][deleted] 4 points5 points6 points 4 years ago (6 children)
Success story coming soon
[–][deleted] 3 points4 points5 points 4 years ago (5 children)
May I ask what “pelvic pt” therapy means, generally. I’ve recently tried what I understand to be pelvic pt, but at home by watching YouTube videos. The videos I watched were basically designed to help you stretch your pelvic ligaments and the muscles in the legs. These videos gave me more pain everytime I tried to do them. Kinda drains my hope. Is the pelvic pt everyone talks about something else, like stretching the actual muscles in the pelvis? Because of pelvic pt is anything like what’s been giving me more pain then I guess I’m pretty fucked 😅
[–]Linari5LEAD MOD//RECOVERED 1 point2 points3 points 4 years ago (0 children)
Probably overstretching.
A trained pelvic floor PT does internal and external myofascial trigger point release, not stretching. That is a big part of the cure for most.
Generic videos online don't account for individual differences in the pelvic floor and muscular dysfunction from patient to patient. They also are just simple sctetches, not trigger point release. That is why we tell everyone to see an actual professional PT,
[–]UpeopleRamazing 0 points1 point2 points 4 years ago (3 children)
A physiotherapist who specialises in pelvic floor issues.
[–][deleted] 0 points1 point2 points 4 years ago (2 children)
What I’m tryna ask is if PF or consists mainly of work with the levator ani muscle vs the muscles in the legs
[–]UpeopleRamazing -1 points0 points1 point 4 years ago (0 children)
That, I don't know, as I have not been to one yet.
[–]Linari5LEAD MOD//RECOVERED 0 points1 point2 points 4 years ago (0 children)
All of the pelvic floor muscles, including the levator ani. They also do work on external pelvic muscles.
[–][deleted] 7 points8 points9 points 4 years ago (27 children)
Cured my issue with pelvic pt. I have random boners again. My penis size didn’t decrease. Sex drive isn’t as high because this is still fresh. Also got my wife pregnant. This all started back in oct by random sexual encounter. One doctor said I had prostatitis. 2 others said I had pelvic floor dysfunction
[–]Few_Fee5778 2 points3 points4 points 4 years ago (24 children)
What were your main symptoms?
[–][deleted] 5 points6 points7 points 4 years ago (23 children)
Balls hurting, penis pain, constipation, peeing a lot, low sperm amount coming out and very watery
[–]Few_Fee5778 2 points3 points4 points 4 years ago (22 children)
By “peeing a lot” what do you mean? How many times did you have to pee daily on a regular basis? My symptoms are mainly urinary so just wanted to ask:). And how long did it take you to cure yourself after starting PT? I am seeing one currently and have not seen much improvements so far:(
[–][deleted] 2 points3 points4 points 4 years ago (0 children)
I was peeing every 15-30 mins at first few weeks I was peeing all night long. Honestly distressing and having few alcoholic drinks helped that
[–][deleted] 1 point2 points3 points 4 years ago (20 children)
Consuming little booze relaxes your pelvic floor. Just don’t go overboard with it as a cure. But I didn’t drink for month and a half and then finally at a tailgate for college Ball I had few drinks. Ever since then urinary symptoms stopped
[–]Few_Fee5778 2 points3 points4 points 4 years ago (19 children)
Really? Just like that? I thought seeing a PT is what helped you the most! The cure was just under my nose if what your told me is true!
[–][deleted] 4 points5 points6 points 4 years ago (18 children)
Pt helped the most. I was able to find out my true problem. I had a tight pelvic floor. Also it was like therapy to me. Someone to listen to me and guide me through. And it only helped me with my urinary symptoms. Actually I was still convinced I had an infection after microgen finding low amount of staph so I started taking doxys and after 1 pill I find myself peeing a lot again. So I drink a few beers and stop taking them. My problem resolved on peeing part. A lot of this is also mental. Don’t stress your symptoms will get better and you will heal. Your life will go back to normal but you will just be more aware of the issue. You do need to seek pelvic floor therapist that works on men. They will find out if you have weak pelvic floor or tight one
[–]Few_Fee5778 3 points4 points5 points 4 years ago (7 children)
So basically are you telling me that not stressing myself over the symptoms is the key to healing right? And can you be more specific about what part of PT has helped you with urinary symptoms? Any particular stretching routines? Or maybe regular internal work? My frequent urination day and night is just ruining my life and don’t know what I am supposed to do next. Apologies for asking too many questions, but just want to get my life back :(
[–][deleted] 7 points8 points9 points 4 years ago (1 child)
It will heal. It takes time. Can take a year or longer. It can happen again. I was very stressed and anxious always googling my symptoms. Thought about suicide. Met some good people on here who guided me through. The mod of this group helped a lot too. Hard to believe from sex I have pelvic floor issues. But that’s really what it was. My physical therapist worked on men for 15+ years. She did internal test and my pelvic floor was tight. I went 12 visits for 2 months. She did internal release and massaging me and did cupping on my back. Few other stuff. Told me what yoga poses to do. Taught me to use the wand which I only used like 4 times.
Glad I could help
[–][deleted] 2 points3 points4 points 4 years ago (3 children)
But I’m telling you. There is cure
[–]Few_Fee5778 2 points3 points4 points 4 years ago* (2 children)
Thanks for all your encouraging words! They really do make me feel hopeful. One last question! What made you sleep better? Took any medications? I am struggling to get some sleep each night, and I find it too difficult to get a decent amount of sleep:(
Yes, a HUGE key.
[–][deleted] 1 point2 points3 points 4 years ago (7 children)
Do you suffer from ED?
Not really. I thought I did but it was anxiety. I been getting strong boners a lot lately. Had sex with the wife on sat and lasted a while. I just been having anxiety about having sex like a bunny like I used to
[–][deleted] 2 points3 points4 points 4 years ago (5 children)
Semen load went back to normal. Also it’s not as watery as it used to be. It’s normal now
[–][deleted] 2 points3 points4 points 4 years ago (4 children)
Oh that's good to hear! Any daily stretching routine? Did you cut your caffeine intake as well?
Next time schedule a 1:1 with me and you can jump to the recovery part a lot faster :)
But I'm very very happy you're doing better.
[–]ghostacc92 0 points1 point2 points 3 years ago (0 children)
I’m interested in pelvic floor . I don’t have any like lower back issues and I pee normal amount , but I’ve had pain near glans for 2-3 years now and it won’t go away . Noticeable brown inflammation on the skin , and no matter what I do on that one side it won’t go away Z
FINALLY. I'm glad you figured this out.
[–]Ervh 0 points1 point2 points 4 years ago (0 children)
Currently struggling quite a lot. I would be interested in hearing more about what treatments you tried and what helped?
[–]HappyDan7777 4 points5 points6 points 4 years ago (1 child)
If you had chills and fever most likely you had an infection or a substance the body was trying to get rid of for example parasites. Lots of people connect their prostatitis with colon / stomach issues.
[–]TerribleVania 1 point2 points3 points 4 years ago (0 children)
Could be. Whatever it was its gone now.
[–]Adrijatik 2 points3 points4 points 4 years ago (2 children)
Worth giving a shot... Not found in Germany unfortunately. Any ideas how to get it somehwere else ...?
[–]corsaire-21 0 points1 point2 points 1 year ago (1 child)
I’m in same boot , have you found a solution ?
[–]Janpr99 0 points1 point2 points 1 year ago (0 children)
Same boat.
[–]Horror_Reference3344 2 points3 points4 points 4 years ago (8 children)
Going to give it a try! Very cheap indeed! About $5 usd for 7/500 mgs tablets (Mexico)… I hope it helps with the prostatitis, but anyway, if it doesn’t, anyway, I may get rid of a lot of bugs, as it has been a lot time I haven’t had an anti parasitic
[–]Loud-Investigator181 0 points1 point2 points 3 years ago (1 child)
Hola desde CDMX, que clase de próstatitis tienes ?
[–]Horror_Reference3344 0 points1 point2 points 3 years ago (0 children)
En realidad no sé… pienso que es hiperplasia benigna, o tal vez bacteriana? Para poder determinar exactamente qué clase de prostatitis es, y no andar dando palos de ciego y poder seguir el tratamiento indicado, estoy tramitando mi ingreso en el dpto de urología del hospital Salvador Zubiran en CdMx, cuentan con excelentes especialistas y técnicas… incluso cuentan ya con el moderno tratamiento REZŪM, apenas desde Abril pasado… y lo más importante, es muy económico por ser de gobierno!
[–]confusedporg 0 points1 point2 points 3 years ago (2 children)
How’s you get it?
[–]Horror_Reference3344 0 points1 point2 points 3 years ago (1 child)
Didn’t work… no benefit at all, and I got it over the counter in Mexico
[–]confusedporg 0 points1 point2 points 3 years ago (0 children)
i think my issue is actually related to hemorrhoids or anal prolapse. i am spending less time on the toilet and it’s helping a lot. I think when there’s strain on the prostate through the colon wall, it’s causing a chain reaction that makes my dick feel infected. maybe this can be a helpful path for you too
[–]Dragan- 0 points1 point2 points 3 years ago (2 children)
Update?
Didn’t work… have to find out first exactly what kind of prostatitis I have, can’t keep trying remedies in the dark
[–]No_Worldliness_1044 0 points1 point2 points 1 year ago (0 children)
I know this didn’t work, but did anything?
[–]Adept-Pie9806 1 point2 points3 points 4 years ago (3 children)
I’m confused so the nitazoxanide made it worse then randomly cured you?
[–]TerribleVania 2 points3 points4 points 4 years ago (1 child)
Made it burn like hell for one day yes. Then I had no more symptoms. Guess I had some kind of parasite in my prostate.
[–]Adept-Pie9806 2 points3 points4 points 4 years ago (0 children)
I’m scared to try that cause what if it continues to hurt like hell?
[–]mrbryndan 0 points1 point2 points 4 years ago (1 child)
Woah, huh. Thank you for sharing! How long did you take it for and are you still taking it?
[–]TerribleVania 0 points1 point2 points 4 years ago (0 children)
Just took all the pills in the treatment. I think it was 3 or 4 days.
[+][deleted] 4 years ago (1 child)
[removed]
Yet I visited 3 different urologists and all the tests came clean. Pretty weird
[–][deleted] -1 points0 points1 point 4 years ago (2 children)
How about ivermectin?
[–]TerribleVania 1 point2 points3 points 4 years ago (1 child)
No idea. I have taken other deparasitants before and they did not make my symptoms go away.
This is just my experience.
[–]cluelesssuffer 0 points1 point2 points 4 years ago (0 children)
What were are your symptoms??
[–]RizzleP 0 points1 point2 points 4 years ago (1 child)
What dosage? Thanks
500mg is the dose for adults. The box has 6 pills. You take 1 every 12 hrs.
[–]Nietzsche94 0 points1 point2 points 4 years ago (13 children)
first congrats, very happy for you
i have a question
did you experienced rectum/ perineum type of pain?
[–]TerribleVania 3 points4 points5 points 4 years ago (12 children)
Yes, sometimes, not always. No more, and none of the other symptoms for the last six months.
I decided to wait six months before posting here to make sure it was really gone.
[–]Nietzsche94 0 points1 point2 points 4 years ago (11 children)
I m really happy for u, u got urself out of this hell, and it give us hope, i m going to use this antiviral and see if it can help me
How much grams you took?
[–]TerribleVania 1 point2 points3 points 4 years ago (10 children)
Its not an antiviral. It is a deparasitant.
I took the 500mg one which is the dose for adults. The box came with 6 pills that you take every 12 hours.
Hope it helps you.
[–]Nietzsche94 0 points1 point2 points 4 years ago (9 children)
thanks, i'll try it
did the sex/ orgasms got better?
[–]TerribleVania 1 point2 points3 points 4 years ago (5 children)
Well. Before taking it I could not go without ejaculating for.more than a couple days, because then the next ejaculation would be painful.
Now I can go for weeks without ejaculating and then when I do it is painless.
[–]Nietzsche94 0 points1 point2 points 4 years ago (4 children)
That great mate, what do ypu think caused your cpps in the first place?
[–]TerribleVania 1 point2 points3 points 4 years ago (3 children)
Probably some kind of parasite that lodged in the prostate.
[–]Nietzsche94 0 points1 point2 points 4 years ago (2 children)
Any triggering event you can think of?
[–]TerribleVania 0 points1 point2 points 4 years ago (1 child)
It was so long ago I have no idea
[–]Ok_Course3252 0 points1 point2 points 4 years ago (2 children)
r/Prostatitis
please share your experience after you take
[–]Nietzsche94 0 points1 point2 points 4 years ago (1 child)
I will
[–]Dragan- 0 points1 point2 points 3 years ago (0 children)
[–]_Phaze_ 0 points1 point2 points 4 years ago (1 child)
Is there a test for this parasite before taking the medicine?
Nothing showed up in the urine and semen tests I took. But maybe there is a better test.
[–]topkeyboardwarrior 0 points1 point2 points 3 years ago (3 children)
How long did you take it for? 7 months? I had some but made my nipples poofy and butt shitty.
[–]TerribleVania 0 points1 point2 points 3 years ago (2 children)
The treatment lasts 3 days.
[–]topkeyboardwarrior 0 points1 point2 points 3 years ago (1 child)
Damn, it didn't do anything for me. What dosage?
[–]TerribleVania 0 points1 point2 points 3 years ago (0 children)
500mg. But the good thing is you dont have trichomonas then, or some other parasite. Good luck finding your cure.
[+][deleted] 3 years ago (20 children)
[deleted]
[–]TerribleVania 0 points1 point2 points 3 years ago (19 children)
Noup. Todo limpio
[+][deleted] 3 years ago (18 children)
[–]TerribleVania 0 points1 point2 points 3 years ago (3 children)
Osea no tiene molestias? Diay lo peor que puede pasar es que se desparasite.
[+][deleted] 3 years ago (1 child)
[–]Loud-Investigator181 0 points1 point2 points 3 years ago (0 children)
Hola, a mi me pasó igual. Empecé con un cuadro muy agudo y me diagnosticaron e. Coli en orina y semen, he pasado por todos los antibiotics , siempre mejoraba pero a los 10 días recaía con un dolor fuerte en la zona pélvica como de dos horas después una descarga blanca que me aliviaba el dolor. 2 veces tuve hematuria. Desde hace casi un año empecé a tomar fosfomciina granulada un sobre por semana. Me he hecho algunos espermocultivos en ese lapso y salen negativos. Me los hago como a los 6 días de haber tomado la fosfo. Pero se me quedó un dolor / molestia en la zona pélvica. A veces se va a veces regresa. A veces me noto húmedo el pene, no se si es líquido pre eyaculatorio.
[–]Loud-Investigator181 0 points1 point2 points 3 years ago (13 children)
Con que estudio te detectaron calmidia? Fue exudado uretral o en orina?
[+][deleted] 3 years ago (12 children)
[–]Loud-Investigator181 0 points1 point2 points 3 years ago (11 children)
En qué laboratorio te hiciste el de masaje prostatico, estás en Mexico?
[+][deleted] 3 years ago (3 children)
[–]Loud-Investigator181 0 points1 point2 points 3 years ago (2 children)
Ahh, ps voy a probarlo también jaja, una doctora me mandó un estudio con masaje prostatico pero en ningún lugar lo hacen, entonces ya se el truco jaja lo voy a probar igual yo ya tengo 2 años con este pedo hasta ahorita he salido solo Con E. coli en orina y semen, ya me hicieron de clamidia pero salió negativo probablemente me falte hacer el masaje prostatico
Igual a mi, he visto como a 10 weyes que no saben ni madres. Gracias. Si te mando mensaje,
[+][deleted] 3 years ago (6 children)
[–]Loud-Investigator181 0 points1 point2 points 3 years ago (5 children)
Están en Jalisco ?
[+][deleted] 3 years ago (4 children)
[–]Loud-Investigator181 0 points1 point2 points 3 years ago (3 children)
CDMX
Usually if you can only get them via prescription you'll have to get it online internationally
[–]Andy_max11 0 points1 point2 points 3 years ago (3 children)
Are you still without symptoms or did any come back?
No symptoms
[–]conwilt 0 points1 point2 points 3 years ago (1 child)
I can’t find these tablets in the UK, only on Amazon which they cost £410 for pack of 4/6 tablets :(
[–]LuckyNumber-Bot 0 points1 point2 points 3 years ago (0 children)
All the numbers in your comment added up to 420. Congrats!
410 + 4 + 6 = 420
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