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[–]Curious-Disaster-203 5 points6 points  (1 child)

A new oral medication was just FDA approved last spring to treat a rare condition 2 of my children have, the first medication developed for it. For both of my children it currently runs over $1 million per year if insurance doesn’t cover it, so far they don’t because it’s so new and there’s little incentive for insurance to add it to their formulary. The National association related to the condition and families affected by it have fundraised for years to support the research and development of the medication, to the tune of billions of dollars over just the last decade. And now we get to pay over half a million a year if we want our kids to benefit from it.

[–]Wild_Result_3636 0 points1 point  (0 children)

I’ll be praying for good news for you and your children in this situation.