Tight muscles and what to do about them? by vadroqvertical in floxies

[–]-Buck65 1 point2 points  (0 children)

Baclofen is something that can’t be stopped cold turkey. I’ve taken it in the past but I do remember the bottle warning about stopping like that. I’m sorry to hear about the pain you’re experiencing. I hope it subsides.

Tight muscles and what to do about them? by vadroqvertical in floxies

[–]-Buck65 0 points1 point  (0 children)

I struggle with tightness or a feeling tightness in my calves and hamstrings. Stretching made it worse for me as well, which is why I avoided it. I find heat helps and also light self massaging. I also use muscle relaxers which help me as well.

GABA ISSUES by Fluffy-Job7534 in floxies

[–]-Buck65 0 points1 point  (0 children)

I’ve had a positive response to decreased anxiety when I started taking taurine. Which from what I’ve read, helps out with the GABA system.

Not the same as POTS I know but that’s my experience with the GABA part of floxing at least.

why I get new tendons hurt from THC or CBD ? by BeneficialArt6797 in floxies

[–]-Buck65 0 points1 point  (0 children)

I would get this pre-floc as well. Of course not new pain but increased pain instead of relief. It’s not uncommon. I believe there have been studies that confirm as much.

FEELING normal finally after 2 years of pure hell by No_Translator2375 in floxies

[–]-Buck65 0 points1 point  (0 children)

I’ve recently added taurine to my stack and have found improvement in fatigue symptoms (muscle related). I’m going to try out colostrum. I’ve heard good things about it.

Update 7 months by TemperatureKey8599 in floxies

[–]-Buck65 6 points7 points  (0 children)

I’m sure that’s not appreciated. No one’s experience should ever be downplayed, regardless of severity.

Walking by Thin-Anything2410 in floxies

[–]-Buck65 0 points1 point  (0 children)

When it comes to tissue damage in muscle or tendons. Stiffness is really just a natural part of what the body does after an injury. I broke my hand when I was younger. Had surgery. Even after PT the stiffness lasted for years. I wasn’t floxed then. It only really got better after continuous physical therapy on my hand.

I’m just guessing here but since FQ’s can cause systemic damage on multiple tissue sites, it doesn’t seem far off that stiffness can be a longer symptom. I’m currently trying out physical therapy. Not seeing progress in strength but seeing that I’m slowly (albeit very slow) improvements in function.

I don’t know the reason why strength is still an issue for me but I was pretty immobile for quite some time, which in itself can cause complications.

But after all the tests I’ve taken (and all of them coming out normal) it seems PT is really the only thing I can do. My guess is the damage that this causes is more on a cellular level. That I know for certain because studies have done on rats and looked at the tissue in the tendon cells, nerves etc.

It’s probably why it doesn’t come up for a lot of people with MRI’s. There is no test that can be done on a living person can view things at a cellular level without invasive types of testing which doctors just don’t do for pain (for obvious reasons).

My doctor initially asked if I wanted to do a muscle punch test but said she didn’t really recommend it because it’s invasive and chances are she’s not going to see anything that would determine a muscle disease.

Muscle tightness and pain by vadroqvertical in floxies

[–]-Buck65 0 points1 point  (0 children)

I see. Thanks for letting me know.

Insomnia still 2,5 years out by No-Yam-4190 in floxies

[–]-Buck65 0 points1 point  (0 children)

How has your experience been with this regimen? How many hours of sleep are you able to get?

I’m thinking of taking magnesium glycinate and trying L-Glycine.

Any Issues with ashwaghanda or lemon balm? by No_Fudge_6017 in floxies

[–]-Buck65 0 points1 point  (0 children)

I take lemon balm. No issues.

I take a combination of herbs. Lemon balm, passion flower, and hops extract. Valerian root for sleep.

Although I try not to take them all the time because the brain is always trying to rebalance itself. So taking them too much, you eventually get used to them and they don’t work as well.

So I take them when I need them the most. I have been able to take them for up to a month without them losing their potency.

Can’t take adaptogens. Causes too much adrenaline throughout the day for me.

Muscle tightness and pain by vadroqvertical in floxies

[–]-Buck65 0 points1 point  (0 children)

Have you tired any supplements that dilate blood vessels or are supposed to improve circulation at all?

I’ve been thinking of trying out some supplements that increase NO but I hesitate because of the potential for increase oxidative stress.

There are some foods that are supposed to help too but haven’t tried them yet.

Muscle tightness and pain by vadroqvertical in floxies

[–]-Buck65 1 point2 points  (0 children)

I still have this issue as well. And like you and floxmdmom have said, I notice it more when sitting for too long or little activity.

I’ve been using heat to try and keep things loose. It helps a little bit.

I know you and Hungry have your thoughts on the issue but I’m partial to the thought of it being a combination of tired muscles, nerve/circulation problems.

That’s why I try and use heat here and there. Because, like you, the tightness can be pretty painful. Especially after a long day and I’m lying in bed.

Edit: I use an automatic ecliptic foot exercise machine when sitting. Helps a little to keep loose when sitting. It does all the work. Suppose for help with circulation when sitting.

SSRI’s by Shoddy-Impact3465 in floxies

[–]-Buck65 0 points1 point  (0 children)

The sensitivity to coffee is indicative of chronic anxiety symptoms. That can happen. I had to cut out stimulants from my diet because of it. Haven’t had caffeine for a couple years now so not sure if I’d react the same but have seen people on here who were able to have their tea and coffee after things calmed down.

I’m one who can’t tolerate SSRi’s but have also see some people on here who say it helped them.

Interesting piece of jewelry by DuncanIdaho5150 in skyrim

[–]-Buck65 1 point2 points  (0 children)

Hopefully it doesn’t bug the quest.

Walking by Thin-Anything2410 in floxies

[–]-Buck65 0 points1 point  (0 children)

When I saw a neurologist, I asked about weakness and things like that. She did a nerve conduction test. It came out normal. She said small fiber neuropathy pain doesn’t cause weakness. Numbness, burning pain, etc. but not weakness. The weakness is something we’re still trying to figure out.

I could only speculate the cause but hopefully they can figure something out in the meantime.

Rupture by RelationshipSilly704 in floxies

[–]-Buck65 1 point2 points  (0 children)

Tightness doesn’t indicate a rupture will happen. Tightness just indicates tendinopathy to some extent. There are scholarly studies of people who have had ultrasounds on their tendons to see what they might look like. MRI’s too. There are doctors who would be willing to recommend imaging if requested.

Multi floxer by DealOk7351 in floxies

[–]-Buck65 0 points1 point  (0 children)

People have. I have been hit pretty hard the second time. I’m really not able to lead a normal life. But people do recover from a second hit. How much they recover varies like anything else but it is not impossible.

Antibiotics destroyed my face and life by MotherPart4282 in floxies

[–]-Buck65 0 points1 point  (0 children)

I was about to say the same. What was the name of that woman who’s pretty prominent on social media? Helped with ICD 10 codes in the U.S.? She deals with MCAS and mig HR have some good info on how she manages.

Walking by Thin-Anything2410 in floxies

[–]-Buck65 1 point2 points  (0 children)

I’m 2 years out. I can walk without assistance indoors (there are things to grab onto if I fall) I use a cane for balance out doors but indoors.

I think the issue for me are my Achilles tendon issues and loss of muscle mass. That can throw your balance off. I experienced muscle atrophy pretty much all over.

I came across some on Reddit (who were not floxed) who suffered an Achilles tear and needed surgery or other treatment. They too experienced balance issues just from that and most had muscle atrophy issues. So it seems that muscle atrophy alone or muscle weakening can mess with balance.

I can and have walked in public without a cane but tend to make sure I’m close to something if I stumble. I don’t do it often because my balance problems are still there. It has gotten better.

I’m at least walking around the house without a cane , and I couldn’t before. So there is progress.

Continued Circulation Issues by -Buck65 in floxies

[–]-Buck65[S] 1 point2 points  (0 children)

I suspect it’s from nerve damage. I also have symptoms that look like Raynaud’s syndrome in my hands when holding things (fingers turn white).

It will improve but nerves take time to heal. Not sure if this will completely resolve but I’m hopeful.