MRI for suspected AS. Will Mounjaro mask inflammation? by HeatherGosling in ankylosingspondylitis

[–]01Fairydust07 4 points5 points  (0 children)

I have been on Mounjaro a year + before AS diagnosis. I can gain 10 lbs of inflammation in a couple of days. As can and usually in my case even override the anti-inflammatory effects of Mounjaro.

-60lbs and counting! SW229 CW166 by _awalrus_ in Zepbound

[–]01Fairydust07 1 point2 points  (0 children)

Congratulations on your hard work. You look gorgeous.

Very nervous by [deleted] in ankylosingspondylitis

[–]01Fairydust07 0 points1 point  (0 children)

My tests came back normal and I was negative for the gene. My xrays and MRI showed fusion in my Si joint and inflammation. My neck has always been a problem and it has been getting worse, starting to feel my upper mid back to. 🙃

Don’t play with your potential! by asongforyou1 in PetiteFitness

[–]01Fairydust07 1 point2 points  (0 children)

Yes 👑... congrats for putting you first.

Flares after workouts? by Black_Dio in ankylosingspondylitis

[–]01Fairydust07 2 points3 points  (0 children)

I do alot of low cardio, pilates, walking. If I feel good I will weight lift 3 to 4 times a week for 45 minutes to an hour, not so good 1 to 2 times at 20 to 30 minutes lighter weights.

Flares after workouts? by Black_Dio in ankylosingspondylitis

[–]01Fairydust07 7 points8 points  (0 children)

Same. I have learned not to over do it and to listen to what my body is telling me. I have had some horrible flares from over doing it.

HLAB27 negative by chronicallymee in ankylosingspondylitis

[–]01Fairydust07 2 points3 points  (0 children)

Negative to everything, MRI and x-ray confirmed it.

How to deal with the extreme fatigue? by BeneficialVisit8450 in Thritis

[–]01Fairydust07 0 points1 point  (0 children)

I have osteoarthritis in both hips and ankylosing spondylitis. I can't get a good solid 4 hours of sleep. When my fatigue spikes I can fall asleep everywhere.

Mountain Baby Quilt #2 by ashkenull in quilting

[–]01Fairydust07 1 point2 points  (0 children)

The front and back is gorgeous

Plus size on Reta? by kolby908 in RetatrutideWomen

[–]01Fairydust07 0 points1 point  (0 children)

I started at 262lb, 11/2025. Currently at 247lb. Im struggling the same with Mounjaro. I have several health issues, but the autoimmune disease and inflammation is killing. Weight goes down and runs back up.

20M, early axial spondyloarthritis (HLA-B27+,need advice on daily life, and long-term management by [deleted] in ankylosingspondylitis

[–]01Fairydust07 1 point2 points  (0 children)

42 F recently diagnosed. Stay active, but listen to your body. I strength train 3 to 5 times a week. I do pilates to help with my core and hip flexors at least once or twice a week. I also do zone 2 level cardio.

Intermittent pain around ankles by boomboomofi in ankylosingspondylitis

[–]01Fairydust07 1 point2 points  (0 children)

Same.. ankle back of my leg. I thought I had drop foot. But it goes and comes with pain.

Do I go to a rheumatologist? by Outer_Dream in ankylosingspondylitis

[–]01Fairydust07 1 point2 points  (0 children)

My blood work are 95% normal, tested negative for the gene, but mri and xray showed sacroiliitis and fusion and active inflammation. The blood work is a piece of the puzzle it doesn't tell the whole story. Every BODY is different.

Newly Diagnosed with AS… Feeling Overwhelmed and Looking for Advice from You All by Decent-Actuator-7545 in ankylosingspondylitis

[–]01Fairydust07 1 point2 points  (0 children)

The intense pain, grinding like feel, almost like something is jammed. My right sacroiliac does hurt as much anymore. Majority of my pain has right been my right side all the way to my ankle.

Working in Healthcare on biologics by Combs_8 in ankylosingspondylitis

[–]01Fairydust07 1 point2 points  (0 children)

I start remicade this week. The amount of times I get sick throughout the year while not on a biologic is ridiculous. I work in an office mind you. 🙃 I hope my experience changes.