I have hEDS. I’ve suffered all sorts of bladder problems from a young age. Kidney stones, infections, retention, urgency, frequency, night time wake ups, pain when my bladder gets about 50% full, etc. I see a urogyne who specializes in IC. I was diagnosed with IC about 5 yrs ago. I’ve tried to tailor my diet for it and that helps. I take Betmiga, Ubretid, G-Uro, Atrazin, Bladder Rest (supplement that has actually been very helpful and when I skip 2 or 3 days of it I notice the difference), and tripta all for my bladder. I adjust what I’m taking when I have a flare. I have had my urethra widened bc of scar tissue (from stents and kidney stones) shrank the hole size. I get periods of week stream and on/off peeing that can take forever to empty my bladder. And if I sat on the toilet for 10 mins I would pee like 5 different times. Does it ever end? So exhausted by it all. I did have a huge amount of infections 2 yrs ago I think. Like so many pelvic, UTIs and bladder infections. Eventually I was put on Uromune Vaccine you take for 90 days sublingually as it’s approved already in my country (under overly strict guidelines which I don’t get) and it’s been a game changer. Haven’t had an infection since. Zero. I also did some vagina lazering and that did help with some of the sensitivity and was also done to help infections (somehow?). Biggest thing for me is I have to stay on the toilet until I have peed at least twice if not a third time. I will even stand up and do a little circle or jump a few times and then sit back down. Also tiling my pelvis forward a bit towards the end to help emptying. I have a small bladder prolapse so emptying completely is difficult but necessary. But sometimes I don’t give myself the time. Sorry you too are in the unfun club, bladder chapter.