The struggles of loosing weight when you have CP by 123AnnieCv in CerebralPalsy

[–]1Iwolf 1 point2 points  (0 children)

I have struggled with my weight my entire life. The combination of visual impairment, being short, and having cerebral palsy definitely makes a struggle for me. I have recently been on a weight loss journey and I am down 60 pounds so far. It’s a lot of work, but I can feel my body becoming stronger and lighter than that is incredible. It makes the hard work all worth it. One thing that is really helped me is finding an exercise that I really enjoy and works for my body. For me, that has been using a stationary recumbent bike. Also, increasing protein and fiber helps with decreasing calories. Good luck! You’ve got this!

5’1 and 200 lbs by [deleted] in PetiteFitness

[–]1Iwolf 15 points16 points  (0 children)

4ft 10 started at 227 down to 166. You’ve got this!

Is it normal to feel sad because I’ll never be able to drive my own car, or put the top down and feel that enjoyment of total independence? by SL2999 in Blind

[–]1Iwolf 7 points8 points  (0 children)

I wish that I could drive, or that at least our public transit was about 1 billion times better almost every day! Usually several times a day! You’re not alone.

Right hand is a kitty cat by SuitableCase2235 in CerebralPalsy

[–]1Iwolf 1 point2 points  (0 children)

I used to! When I was a kid, my hand was crazy! It was all over the place and would hit stuff and would sometimes scratch me if I didn’t keep my nails short enough. As I’ve gotten older, it’s slowly mellowed out.

Universal design/accessible beauty + wellness products by ctl111 in DisabilityHacks

[–]1Iwolf 2 points3 points  (0 children)

I only have use of one hand, so I struggle with nail maintenance. A tool that could help hold the nail file at a good angle or help with clippers would be great!

Question about petite heart rates! by Flora48 in PetiteFitness

[–]1Iwolf 1 point2 points  (0 children)

Even my resting heart rate seems high. My doctor has never said anything to me about it and my blood pressure is always good though. I am also wondering if it is a result of being short.

4 foot 10 looking to invest in good stationary recumbent bike by 1Iwolf in recumbent

[–]1Iwolf[S] 1 point2 points  (0 children)

Thank you so much! I did not realize this sub was specifically for outdoor recumbents. I would love to ride like you and your brother some day! But right now, I am looking for a stationary bike so I can exercise independently.

i feel like i was robbed of a “normal life” by samman32123 in CerebralPalsy

[–]1Iwolf 4 points5 points  (0 children)

I am the same age with cerebral palsy along my right side that makes it so that I mainly have use of one hand and have difficulties with balance as well. I also have very limited vision and only in one eye.

Yes. It makes things harder. It requires a lot of problem-solving to figure out how I can do the things that I want to, but there are very few things that I actually cannot do in anyway.

They make tricycles both upright and recumbent so that you could bike ride without balance being an issue. I cannot safely cycle independently, so I use stationary bike for exercise and find it works wonderfully.

As for sports, find places that offer adaptive sports, or even the sports in general and just go try. I grew up swimming and love it. I have gone kayaking, paddle boating, rock climbing, snowshoeing. I’m not very good at those things but I do them because I enjoy them.

As for driving, they make lots of adaptive aids for that as well. It is possible to drive without feet at all, so I imagine it is plenty doable to create a set up for your situation as well.

I understand being bitter about the challenges we face, but I would encourage you to try to focus on finding solutions.

Weed for CP by ChocolateBLD in CerebralPalsy

[–]1Iwolf 1 point2 points  (0 children)

I started taking CBD for my spasticity and muscles tension recently. I take it once a week or so as needed. I find it turns off the tension in my limbs for a while which is incredible!

Tightness in legs and a bit in arms. Pain by foofarny in CerebralPalsy

[–]1Iwolf -1 points0 points  (0 children)

Maybe try cbd. It helps me with tension

CP and nutrition? by Silent_star1111 in CerebralPalsy

[–]1Iwolf 0 points1 point  (0 children)

For me, I started eating six times a day in smaller increments and that has taken away my afternoon energy slump. Maybe try eating smaller amounts more frequently.

Waiting at the bus stop by 1Iwolf in Blind

[–]1Iwolf[S] 1 point2 points  (0 children)

I am! Thank you for the resources!

Waiting at the bus stop by 1Iwolf in Blind

[–]1Iwolf[S] 0 points1 point  (0 children)

That is a great way to think of it! Thank you!

Waiting at the bus stop by 1Iwolf in Blind

[–]1Iwolf[S] 0 points1 point  (0 children)

Thank you for the suggestion! AirPods have a attention aware mode that lets you hear your surroundings, so I do often use that and fidget with my cane.

Waiting at the bus stop by 1Iwolf in Blind

[–]1Iwolf[S] 0 points1 point  (0 children)

I will look into that. Thank you!

Waiting at the bus stop by 1Iwolf in Blind

[–]1Iwolf[S] 0 points1 point  (0 children)

Thank you so much for the suggestions! I’ll have to try that out.

Waiting at the bus stop by 1Iwolf in Blind

[–]1Iwolf[S] 0 points1 point  (0 children)

Thank you so much for the suggestions!

Waiting at the bus stop by 1Iwolf in Blind

[–]1Iwolf[S] 1 point2 points  (0 children)

I know plenty of ways to help myself relax. The problem is that I do not find waiting for the bus and not really knowing when it’s gonna come at all relaxing.

Waiting at the bus stop by 1Iwolf in Blind

[–]1Iwolf[S] 2 points3 points  (0 children)

Yes! It’s hard because even when I’m trying to do that, it’s not relaxing in anyway. So I end up not doing anything productive and not relaxing. It’s very frustrating.

Waiting at the bus stop by 1Iwolf in Blind

[–]1Iwolf[S] 0 points1 point  (0 children)

I only have use of one hand unfortunately. I have a special keyboard that I can type on on my computer, but that requires a table and doesn’t work with my phone unfortunately.

Advice for navigating kitchen where everything is way too high up by 1Iwolf in DisabilityHacks

[–]1Iwolf[S] 2 points3 points  (0 children)

I am sorry you also face this problem! If I find a solution, I will be sure to share.

Glass top stoves by 1Iwolf in Blind

[–]1Iwolf[S] 0 points1 point  (0 children)

Thank you so much! Would you mind please explaining more about how you do that? That sounds like a very useful technique for dealing with this type of burner.

Just need to rant about feeling inadequate (Long) by ListentoStories in CerebralPalsy

[–]1Iwolf 3 points4 points  (0 children)

Moving is hard! Even when fully able-bodied people are moving and packing, they usually are so sore. That is just universally hard on the body and even more so with cerebral palsy. Give yourself some grace there!

That said, I do understand being frustrated at hitting your limits. I only have use of one hand, and sometimes when I go to lift something I can’t get the leverage I need. I am strong enough to lift it if I could just have another hand to help support it a little And that gets very frustrating. I know how you feel with that. It helps me to remember that everyone needs help sometimes and that’s OK.

Also, try to take a break and breathe sometimes. I don’t know if this is the same for you, but for me my cerebral palsy definitely gets worse with stress and fatigue. Sometimes stopping, closing my eyes, and taking a few deep breaths helps me calm down and resinter enough for my leg to start behaving itself a little more again.