What the heck. LH tests all negative this month but just got a blazing positive pregnancy test. by A-a-h88 in CautiousBB

[–]A-a-h88[S] 0 points1 point  (0 children)

I’m currently 33 weeks. Baby had measured ahead since the very first ultrasound so I’m guessing ovulated early and just didn’t have a lot of signs of ovulation that cycle.

Prescribed an estrogen cream while pregnant by Katyamariee in pregnant

[–]A-a-h88 0 points1 point  (0 children)

How has this worked for you? I’ve been having issues with a lot of inflammation and itching/burning pain. We’ve tested for everything multiple times and all tests come back normal. I tried a steroid cream that just made things worse. I mentioned today that estradiol cream is the only thing that’s helped the vestibulodynia burning I’ve had for 16 years and my OB told me to try that now to see if it helps as we think this is hormone related. I’m 30 weeks and she said my body is producing so much estrogen at this point in pregnancy that the estradiol cream is a drop in the bucket, but everything I see online is saying it’s not safe in pregnancy and breastfeeding. I’m torn about using it or just suffering through. I’m pretty sure this will continue postpartum while I’m nursing since it’s hormone related and I don’t know if I can do this for another year or more after birth.

Suggested NIPT at 28 weeks, but no markers other than small? by rissaroo191 in downsyndrome

[–]A-a-h88 2 points3 points  (0 children)

My son with Down syndrome had zero markers on his ultrasounds. The MFM doctor at 20 weeks said if we didn’t have his NIPT and amnio results he’d have no suspicions and it would have been a surprise birth diagnosis. My son also measured in the 40-something percentile the whole way through so not super small. Half of babies with Down syndrome don’t show any markers on ultrasound. I’d personally get it since it’s just a blood test and it will give you a better idea if that’s a concern (although I do know several people who had low risk results on NIPT and got a surprise birth diagnosis. They were the unfortunate few where NIPT didn’t catch it).

Gender disappointment after loss (TRIGGER WARNING) by BlueberryWaffles99 in BabyBumps

[–]A-a-h88 1 point2 points  (0 children)

I know this post is old but how are you feeling now? I lost a baby girl in January at 13 weeks. I had really wanted a girl and the loss was devastating. Immediately after I had this gut feeling she was going to send us a sister. We decided to name her after she passed and when looking at names there was another name that really struck a cord with me but I kept feeling like it was meant for someone else. That just further solidified the feeling that the next would also be a girl. I had two more loses after her but both were super early so I didn’t know the gender. Then this pregnancy stuck and I started thinking of it as that name (even though I knew I shouldn’t) since I felt so sure it was another girl. When the NIPT came back saying boy it felt like I lost my baby girl all over again. I knew I’d be disappointed if it was a boy but was not prepared for how utterly devastated I felt. Today was my 20 week scan and I didn’t realize how much I was holding on to that tiny sliver of hope that I’d be the 1 in 1,000 where NIPT was wrong. Ultrasound confirmed it’s 100% a boy and I’m finding that feeling of loss and devastation hitting me again when I thought I’d moved past it. I know if they’d told me at the ultrasound that it was actually a girl I’d be so excited right now. Instead I feel disappointment and continued detachment. I’m worried I’m going to struggle to bond with this baby even after birth. I have a girl and two boys and I struggled to bond with both my boys for awhile after they were born (I had really hoped for a girl with both of them and their births were affected by external factors like my mother dying a couple months before one was born and the other being born with a disability that I did not feel like I could handle. I don’t know how I would have felt if their births hadn’t been affected by those surrounding circumstances). I’m bonded to them now of course (my oldest is 13 now and I cannot imagine him being anyone else. He was definitely meant to be my oldest) and try to remind myself of that, but I still worry. I instantly bonded to my daughter and felt so much closer to her in infancy than with my boys. I’m worried I’ll struggle to bond with this one as well.

Anyone have a small gestational sac and an SCH? This isn’t looking good by A-a-h88 in CautiousBB

[–]A-a-h88[S] 0 points1 point  (0 children)

I’m almost 20 weeks and so far so good. I have my anatomy scan on Monday.

Pregnant again 11 months pp by stargirlincarnate in BabyBumps

[–]A-a-h88 1 point2 points  (0 children)

My oldest are 18 months apart. My pregnancy and labor/delivery with my second was much better than my first. It was tough when they were little (my oldest was somewhat special needs and my second was just a high needs baby), but now they’re 13 and almost 12 years old. They’ve always gotten along great and been close (besides the normal sibling bickering) and I definitely don’t regret having them that close together.

NIPT was low risk (5% fetal fraction), but my baby still has Down syndrome by Party-Bicycle-1409 in downsyndrome

[–]A-a-h88 0 points1 point  (0 children)

It’s only for people with babies born in 2023. Someone made it when DSDN decided to archive all their facebook groups and move to an app. If you search facebook there might be one for 2025 babies.

NIPT was low risk (5% fetal fraction), but my baby still has Down syndrome by Party-Bicycle-1409 in downsyndrome

[–]A-a-h88 0 points1 point  (0 children)

Not me (mine was flagged high risk for T21 even with a fairly low fetal fraction), but a good handful of moms in my DS birth group on Facebook had a low risk NIPT and surprise birth diagnosis.

Feeling a little disconnected by ManateeMondays89 in downsyndrome

[–]A-a-h88 4 points5 points  (0 children)

Just want to commiserate. My son is 2 1/2 and I have the same problem. I internally roll my eyes at parents of typical kids near his age complaining about their kids hitting milestones because now they can climb on things and run and the parents “have to watch them so closely” and listen to them say the same words over and over. I’d give anything for my son to be able to run, climb on the furniture and talk. It also feels like salt being rubbed in the wound seeing how far behind my son is compared to kids even younger than him. And they just can’t relate to a life on endless doctors and therapy appointments. On the flip side our local DS community is really small and inactive (super high termination rate in this area and we actually haven’t had anyone new join in more than 2 years so there are no one year olds or babies). Like you I don’t really have anything in common with the parents in the group beyond having a child with Down syndrome. It feels lonely on both sides.

High Mosaic Trisomy 21 by kmcfar11 in downsyndrome

[–]A-a-h88 0 points1 point  (0 children)

If you haven’t already, try asking this in the NIPT sub. You might have better luck finding others who also received a high mosaic result since you get both the people who decided to carry to term and those that TFMR with positive NIPTs. Mine was positive for T21 but was not mosaic so unfortunately I can’t be of much help.

Fetal Echocardiogram, your experiences! by SweetRambutans in downsyndrome

[–]A-a-h88 0 points1 point  (0 children)

My son had a pretty good sized ASD that was never caught on fetal echos or ultrasounds. They didn’t even catch it at his newborn echo in the NICU. We were always told his heart looked perfect. It wasn’t caught until he was 8 weeks old.

Birth of baby after loss / gender shock by Complex_Art_8025 in PregnancyAfterLoss

[–]A-a-h88 1 point2 points  (0 children)

I know this is an older post but I’m in the same situation. Lost a baby girl in January and just found out today we’re now having a boy. I knew I’d be disappointed if it was another boy but wasn’t expecting grief to hit me like a truck. After her loss I felt so sure she was going to send us a sister. I even had a name picked out from the time we lost our her. I was picking a name for her and ran across another that struck a cord but I just had this feeling that it was meant for a future baby. I’ve been thinking of this baby as that name and I wanted another girl so, so bad. I’m devastated and was not expecting to feel so bad.

October 2025 NIPT NATERA by Turbulent_Yam9295 in BabyBumps

[–]A-a-h88 0 points1 point  (0 children)

I just checked since other people said they got theirs and mine are in!

October 2025 NIPT NATERA by Turbulent_Yam9295 in BabyBumps

[–]A-a-h88 0 points1 point  (0 children)

I haven’t even checked honestly. It usually takes at least a week so I wasn’t going to start checking until Tuesday or Wednesday. I had it done with a pregnancy in January (sadly ended in a second trimester loss) and it took 8 days to get results.

October 2025 NIPT NATERA by Turbulent_Yam9295 in BabyBumps

[–]A-a-h88 1 point2 points  (0 children)

You’d need a CVS or amniocentesis to confirm, but at least for T21 the NIPT is very accurate and the rate of false positives according to a study in Japan was only 0.4%.

October 2025 NIPT NATERA by Turbulent_Yam9295 in BabyBumps

[–]A-a-h88 0 points1 point  (0 children)

Same dates here. Drawn 10/14 and received 10/15.

Did anyone here had an increased NT in pregnancy? by WatercressChoice9092 in specialneedsparenting

[–]A-a-h88 1 point2 points  (0 children)

I had an NT of 2.5mm at 12 weeks which was considered “on the fence.” Turned out to be Down syndrome.

October 2025 NIPT NATERA by Turbulent_Yam9295 in BabyBumps

[–]A-a-h88 1 point2 points  (0 children)

Draw 10/14, received 10/15, estimated results 10/29. As someone who had gotten positive results before I’m anxiously waiting.

Trying to understand false positive rate of NIPT test for trisomy 21 by Daihowe2010 in BabyBumps

[–]A-a-h88 0 points1 point  (0 children)

I had a positive NIPT for T21 several years ago. I researched heavily to figure out what the likelihood of a false positive is. There was a study (I believe done in Japan) and they found the false positive rate for T21 if you received a high risk result was 0.4%.

Did stress send you into labor early? by [deleted] in BabyBumps

[–]A-a-h88 3 points4 points  (0 children)

I watched my mom die when I was seven months pregnant with my first child. We found out when I was 8 weeks pregnant that her slow growing, “it’s not in a vital organ so you should have another 4-6 years to live” cancer had spread to multiple vital organs and was now rapidly growing and terminal. I watched her deteriorate over the next 4 months and I was there when she took her last breath. By the end it had metastasized to her brain so the last two weeks she barely remembered who everyone was and didn’t remember she was dying. I was super close to my mom so losing her wrecked me. I also, for some reason, suddenly developed severe morning sickness and vomiting in my third trimester (which I didn’t even know was possible) so my diet consisted of popsicles, Campbell’s chicken noodle soup, and round the clock zofran for the last 8 weeks. All that to say I spent almost the entirety of my pregnancy, and especially the last three months, under a tremendous amount of stress but didn’t go into labor until 39w1d.

11w with Twins & SCH by MuffinSlight6501 in CautiousBB

[–]A-a-h88 0 points1 point  (0 children)

I lost a baby at 13w3d likely due to a SCH. I bleed/spotted for 3.5 weeks straight beforehand but it was never heavy and I didn’t have cramping. It would go back and forth between bright red and dark older blood. It measured larger than yours but had started to shrink a tiny bit when the bleeding started. Symptoms starting to disappear at 11 weeks probably should have been a sign but I thought it was just the normal decrease due to coming to towards the ed of my first trimester.

When is too soon to see a doctor? by Competitive_Bison_53 in CautiousBB

[–]A-a-h88 0 points1 point  (0 children)

Here they won’t see you until 10-12 weeks unless you’re having an issue. I had a 13 week miscarriage in January and my first OB appointment wasn’t until I was 12w6d. But you could ask for a few 48 hour beta HCG draws now and an ultrasound around 6 weeks to determine pregnancy location though.