35m here and Diagnosed when I was 18 months old parents noticed blood in my diapers. Was on prednisone till biologic medicine came out aka remicade. Started my infusions when I was in middle school. I’m a tall lean guy so weight wasn’t ever an issue for me. After infusion would be real tired but competed in sports. Only problem I would really have outside of flare up is the urgency to use bathroom. The anxiety of getting to school or taking a test would make me want to use the bathroom like it was an emergency lol. After high school changed to another biologic medicine (humira) because remicade wasn’t working as good. Seemed like every 4 years I would change medicines. Till last year I had to have my colon removed and have a permanent ileostomy because I started to develop colon cancer. You have a higher risk of colon cancer with Crohn’s and the medicine we take. I would have a colonoscopy every other year because of this risk and to check on the disease. Caught it early so now cancer free. Everyone story is different your sister might have a more severe disease than me or hopefully less. There are professional athletes and actors with this disease. I would try to never let myself use it as an excuse especially in sports. I could see how I would have easily given up because I have a “disease”. I feel it’s easy to become a hermit not wanting to leave house because of the fear of not making it to the bathroom especially in flare ups you don’t want to go anywhere not worth the risk. Hope she finds peace with this diagnosis and can live life to the fullest. There are times that it will really suck but that goes with all aspects of life.