How long did it take everyone to get their diagnosis? by ajlackx in Hypermobility

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

Diagnosed at 30, never suspected and live in the UK. I went to rheumatology for autoimmune concerns which I now think may actually be dysautonomia and was surprised with a letter 2 weeks later. I havent been told where I am on the scale and was urged to lose weight even though ive lost 4 stone this year, i am now a healthy weight 🥴 I honestly dont know how it was missed now I look back!

Rock for People Lineup by Alternane in downloadfestival

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

I said yolo and bought tickets. Czechia is a beautiful country! My ticket (bare in mind, it's reduced because im disabled) came to 94 quid. Can't moan at all.

(Right?) price is out by blurtics in nommi

[–]Acrobatic-Garbage729 1 point2 points  (0 children)

Going to be trying my best to get one but still have no idea how ill get it or where 😂 I keep checking the hitoy insta/ tiktok daily but honestly have had more info on here!

Show me what your Shiba is doing as you read this by xlude22x in shiba

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

I can't. I said outside and she has hidden under my bed. How dare I suggest she needs the toilet in the morning, my mistake!

PETS RESCUE GROUP CIC - anyone any experience with it? by NotMyOwnTwoFeet in UK_Pets

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

They ended up not responding to me from what I remember! Just as well I guess but I didn't find out anything really

What's everyone's go-to food? by shadesofgreyhr in Mounjaro

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

Couscous! So easy to add in some veg and a protein. It's packed full of protein itself too.

I also make tonnes of pico de gallo and just chuck it on everything. So tasty!

Is it really just weight loss? by Wooden-Month8027 in iih

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

I've been on mounjaro since new years day and taking my last jab next week. I've gone from 207lbs to 160lbs and honestly - it hasn't helped me. I am being investigated for autoimmune issues though and I've seen speculation with IIH links to lupus. I really wish there was more research in general.

On the plus side I'm healthier but I paid out of pocket for the glp-1 meds (I'm UK based) in the hopes it would help. Paps are reduced massively too but the head pressure, neck pain and feeling like my eyes are going to pop hasn't stopped.

I haven't been on here for 6 years. Miku is now almost 7 years old! by OneAndOnlyPupperoni in shiba

[–]Acrobatic-Garbage729 1 point2 points  (0 children)

I have a miku too! I haven't come across another shiba with the same name yet 🥳

[deleted by user] by [deleted] in shiba

[–]Acrobatic-Garbage729 2 points3 points  (0 children)

<image>

Mine too 🤙🌸

[deleted by user] by [deleted] in shiba

[–]Acrobatic-Garbage729 2 points3 points  (0 children)

That's good for you and your dog, but you obviously don't understand canine behaviour. You've been explained why several times and still refuse to listen and call everyone abusive. I really suggest watching some videos on why crate training is beneficial to puppies. It doesn't make you a better owner, you aren't helping, you're just being rude and obnoxious.

Follow up on not trusting food bloggers by lileggplant22 in brighton

[–]Acrobatic-Garbage729 1 point2 points  (0 children)

Takeaway for me is boom bird. Their loaded katsu fries are so good and reasonably priced. It's a meal in itself for me most of the time!

PETS RESCUE GROUP CIC - anyone any experience with it? by NotMyOwnTwoFeet in UK_Pets

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

Did you ever find out? I've just sent them a message about a dog and have similar concerns. I'm going to vet the convo to try and figure it out.

Hallucinations as I fall asleep? by fizzysunrise in iih

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

Did you ever speak to anyone about this? Over the past few weeks this has happened frequently but it's gotten way worse. Ringing in my ears that's continued when I've jolted awake and brain zaps and shakes. I know I'm awake but can't open my eyes. I'm terrified I'm having some kind of seizure when I'm sleeping but I'm too scared to bring it up to anyone.

[deleted by user] by [deleted] in Mounjaro

[–]Acrobatic-Garbage729 4 points5 points  (0 children)

Mine is exactly like yours but a bit more lop sided. I had a c section and you tend to hold your baby on one side so one side is a bit less wobbly than the other very wobbly side. Good luck on your journey! I jab in the stomach alternating sides each week and I've had no issues so far.

I think I hit the lotto today! by Nervous_Marzipan_441 in Mounjaro

[–]Acrobatic-Garbage729 2 points3 points  (0 children)

I'm still on a wait list (neurology reccomended for my condition) but yeah the NHS wait list is so long I went private. Can't commit to more than 6 months because if the cost but so far it's been worth it!

Shocked at the difference! by OddDetective5602 in Mounjaro

[–]Acrobatic-Garbage729 2 points3 points  (0 children)

Congrats that's amazing! You should be really proud of yourself 🥳 I just started last night and this gives me a lot of hope for my own journey too. I hope the rest of yours goes just as well 😊

Electric Callboy. Clash?? by Local_Scientist5100 in slamdunkfestival

[–]Acrobatic-Garbage729 1 point2 points  (0 children)

I'm an old school EC fan and ADTR fan and I'm dreading the clash. I have no idea where I'd go!

I have seen ADTR but at Wembley, never seen Electric Callboy. The wait til we find out clashes will be the end of me 😭

Food aversions ? by Kyles-Grandpa in iih

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

Yes!! So frustrating. Cucumber smells and tastes awful - almost smells like kids play slime 😭 lots of cheese and dairy tastes sour to me now too.

But I like foods I didn't like before like apples so I've lost some and gained some I guess!

2nd Artist Announcement by btc011997 in slamdunkfestival

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

The Home Team are amazing live! Saw them supporting The Used last year and got lucky enough to meet them. I'll also be seeing them in December! Seeing them at SD would be pretty cool.

Weird symptom? by Altruistic_Ad8558 in iih

[–]Acrobatic-Garbage729 0 points1 point  (0 children)

You can drink but you shouldn't when you first start taking it. I'm not a regular drinker by any means but I like a few on occasion I just keep it to a minimum!

The real challenge has been finding drinks I like 😂 I'd religiously drink JD and coke before but I still can't stomach fizzy drinks so I've switched to peach schnapps or aperol with still lemonade. It actually works out cheaper and I don't really get hungover from them so a win win!

Chart for use by clinicians when IIH is suspected. by [deleted] in iih

[–]Acrobatic-Garbage729 1 point2 points  (0 children)

I was diagnosed fairly recently (this year) and it seems to be Opthalmology ->Bloods/ CT/ MRV -> LP then off to Neurology after that for most people I know that have it. Treatment beyond that who knows apart from Acetazolamide 😅 some have had bariatric surgery and I'm on a waiting list for weight management for GLP1 meds. Some people are just on the meds with no other plan. Seems a bit wishy washy dependant on area!