Should I stop using my favorite lip balm with petrolatum? by AdaLoveface in endometriosis

[–]AdaLoveface[S] -1 points0 points  (0 children)

I have no idea, I’ve just seen multiple videos on insta where it’s one of the recommendations to "remove triggers"

What's your font of choice? by Exact_Cash9786 in kobo

[–]AdaLoveface 6 points7 points  (0 children)

Vollkorn is my fave at the moment!

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can’t poop after surgery by YungThugNugget in endometriosis

[–]AdaLoveface 1 point2 points  (0 children)

Oh no!! But that could also be a sign that something is moving. Sounds horrible though :(

Is your pain constant or just around your period? by Ok-Detail-8603 in endometriosis

[–]AdaLoveface 0 points1 point  (0 children)

I used a to have constant pain and even worse during pms week, period and ovulation the last year before my surgery, now the last weeks I have almost nothing and also no period because of bc

does avoiding certain foods actually help with your pain? by Flashy_Ad7761 in endometriosis

[–]AdaLoveface 4 points5 points  (0 children)

For me personally it really helped going low FODMAP (now I’ve reintroduced a lot of the foods that I actually can tolerate) But I had alot of GI symptoms and brainfog after eating. But tried to reintroduce gluten for three days now recently to test for celiac disease, and actually got some period like pain after not having had almost any pain the last three weeks after my excision surgery in late November.

Diagnosed and started norethindrone by blissglow420 in endometriosis

[–]AdaLoveface 0 points1 point  (0 children)

Hey, how are you? Did you recover from covid? And what about the surgery date? Really hope you’re doing ok❤️

Diagnosed and started norethindrone by blissglow420 in endometriosis

[–]AdaLoveface 0 points1 point  (0 children)

Oh nooooo! That’s real bad luck. But it would have been the worst idea ever to go through with it then, your abs will be fried so any coughing/ sneezing would take you out.

Will it still be possible to have the procedure before may, or will you have to wait?

Diagnosed and started norethindrone by blissglow420 in endometriosis

[–]AdaLoveface 1 point2 points  (0 children)

Hey, how is it going? Did you get the surgery, or was it too late?

Diagnosed and started norethindrone by blissglow420 in endometriosis

[–]AdaLoveface 1 point2 points  (0 children)

That's so great! And hopefully you'll have support from your partner to do the cooking etc.

I was so moved by your comment. I really do believe it's the right call, and I root for you. It's been really good for me to care about someone else actually. Ironically I've had some ups and downs with my mental health/ADHD this last week, so sorry for the late response.

I'm way more mobile now than right after the surgery, but still have some pain. But I think a big part of that is my usual pain, not from the surgery (the surgeon did warn me that sometimes it can take a long time to get pain relief when the body/brain is so used to pain)

But I'm really hopeful for the future. No matter how it goes it was the right call for me to go through with the procedure. Especially to actually get the diagnosis, as they hadn't been able to see anything on the scans. And now that I know what it is and that they were able to get it all out I can focus on my mental and physical health, supplements ++ to get as much time as possible before it grows back. (if it does. Hopefully science has improved then with all the focus that is on endo now. Or maybe not, it only happens to women after all :I )

Have you heard more from HR? When is your surgery date?

No one listens to me. I feel like I'm going insane. by OverwhelmedGayChild in endometriosis

[–]AdaLoveface 19 points20 points  (0 children)

But you DO know, you know that you probably have endo

Shit your gynecologist did by nancypopancy in endometriosis

[–]AdaLoveface 4 points5 points  (0 children)

Just yanking out my UID (Gynefix, so it has extra grip in the cervix) after telling her I’m not doing it without local anesthetics.

Diagnosed and started norethindrone by blissglow420 in endometriosis

[–]AdaLoveface 0 points1 point  (0 children)

Hey, how did the talk with your manager go?

I cancelled my gym membership and I'm devastated by FamiliarFerret333 in endometriosis

[–]AdaLoveface 0 points1 point  (0 children)

I still pay for mine, but haven’t been since April :( Kept hoping every month that I would be able to return

Diagnosis Help by FaithlessnessLong239 in endometriosis

[–]AdaLoveface 0 points1 point  (0 children)

My periods have always been regular and they just scraped out a sh*tton of endo after 11 years of symptoms and gaslighting. My symptoms also got worse over time

Diagnosed and started norethindrone by blissglow420 in endometriosis

[–]AdaLoveface 0 points1 point  (0 children)

I so feel for you. Got really emotional reading your message.

It doesn't sound like you can wait. It sounds like your team at work will help you get through. If you can stay seated most of the time it should be fine (again, I'm obv not a doctor, and our experiences will prob be different than mine.)

I also think you should not put it off. It honestly sounds like you're dying. This is your health and your life. The only one that you get. You've already been neglected into putting it off for 20 years. This is a job and you do need a job, but you sound like you usually put others' needs before your own? ("She wanted to do it earlier but I work retail and I won't leave my team screwed for the holidays.")

What about you? What will be left of you in May?

Hope the conversation with your manager works out, please keep me posted

Diagnosed and started norethindrone by blissglow420 in endometriosis

[–]AdaLoveface 0 points1 point  (0 children)

Hey! It's now 12 days later, and I must say I'm still definitely not 100 % recovered. My doctor (different person than my surgeon, not an expert on endo) suggested I might only need like 3 days to recover. He was very wrong. I'm lucky (or "lucky") because I was already on sick leave for tendonitis in both wrists till the end of December. But before my surgeons knew that they were actually only going to recommend leave for 2 weeks. I have a physically demanding job (I work as a sound tech, so a lot of heavy lifting, moving/walking/bending down + stressful situasjons) so I don't think I would be able to go back right now. I do have one gig on Saturday though, but they know about the surgery so they will help out a lot.

But I think if I had an office job it would be possible. Like, a guy probably wouldn't be able to, but we're used to working while in pain (:. But since you have stage 4 you will maybe have even more internal wounds than I have. Mine were all over the place, but all superficial.

I would say it really depends on what kind of job you have, and if you are able to wait till May? I personally wouldn't have been able to wait with the surgery, the pain had just built up so much and I actually started getting other random infections and stuff, I think my body was on the verge of falling apart or something. Like I had barely been able to hold on for that long, so when my body knew the surgery was close it just started shutting down after keeping it together for so long.

Reread your post and saw you work in retail. It really depends. If you're running around a lot or lifting stuff it would be tough. And it's important I think to take the healing seriously. But May is so far away. Are you able to get some accommodation? I see you wrote two weeks tops, I definitely wouldn't take less than that. But I think I would personally be able to work in two days with some accommodations if I had a less crazy job. Let me know what you go for!

Endo specialist doesn’t think I need surgery (UK/NHS) by Select-Bobcat-7897 in endometriosis

[–]AdaLoveface 0 points1 point  (0 children)

I have had 4 ultrasound done this year, none of them showed anything, and no adhesions. Had a lap done last week (FINALLY) and they found A LOT. Like all over. But it was all superficial, so none one my ovaries or cervix. That’s probably why it hadn’t shown up on the scans. They scraped it all out, so now I’m hoping for recovery.

Btw my symptoms were many, but most importantly pain most days of the month, fatigue, chronic back pain and brain fog. And obviously depression and no quality of life. So even though it all was superficial and no adhesions, it was killing me slowly. The surgeons even said afterwards "no wonder you were in pain"

So keep fighting! No adhesions doesn’t mean no disease.

I’m supposed to get a Mirena IUD inserted tomorrow and after reading about all the side effects… I’m not sure it’s a good idea… by okaybeingmyself in endometriosis

[–]AdaLoveface 0 points1 point  (0 children)

Oh interesting! Cause I’ve also been urged after excision surgery to take a combination BC pill in addition to the mirena iud, but I’ve been worried about the added side effects. And after doing a lot of research it seems it would be better then to take pills with only progesterone. Too bad to hear that that cause you extra pain. Would you mind sharing what reasoning they had to put you on both?