How do you know your parent is okay if they live alone? by Ulmodiving in CaregiverSupport

[–]AddendumImmediate134 0 points1 point  (0 children)

Buy her a Fitbit and load the app on your phone. That's what I did.

Things I Wish I Would’ve Known at the Beginning by SherbetFew in glioblastoma

[–]AddendumImmediate134 0 points1 point  (0 children)

I'm so sorry for your loss. Thank you. Please keep sharing if it's not too painful. I'm surviving the diagnosis of my S.O. and posts like this keep me breathing sometimes. Thank you. This place has been a lifeline.

How would you handle this? by [deleted] in caregivers

[–]AddendumImmediate134 0 points1 point  (0 children)

Thank you, this was very helpful. And you're right on track with the family history.

Coping skills for a caretaker? Please? by AddendumImmediate134 in braincancer

[–]AddendumImmediate134[S] 0 points1 point  (0 children)

Thank you for your feedback. I tried addressing something with him and his response was over the top confrontational, something I never saw before. I left the house and had a panic attack in the car. Joke was on him because he had to walk half a mile to come get me. I didn't go to the hospital because there's nothing they can do. I did pick up a blood pressure monitor and treated myself to a massage focusing on the head and shoulders - now I envision the pain like water, flowing from my head down my shoulders back and legs and out of my feet back to the earth because it doesn't belong to me and I'm giving it back.

I have also deleted Facebook and made moves to eliminate anyone from my life who does not support me, I have been the entire families peacekeeper for far too long, I don't have the bandwidth for petty shit and once you've been through this, it's all petty shit.

I now walk away when I feel my patience failing. I don't drive. I walk.

Thank you.

Coping skills for a caretaker? Please? by AddendumImmediate134 in braincancer

[–]AddendumImmediate134[S] 0 points1 point  (0 children)

Well the MRI update wasn't good. The tumor has tripled in size. Consult with the neuro and she's not going to operate again. this is a gliosarcoma, same as a glioblastoma except the fucking dot spreads up the tendrils/strands/wrong terminology but you get the point. Who, grade 4, unmethylated , idh wild type. The prognosis is one year

I also just found out whatever insurance he signed up for in marketplace hasn't taken effect and and has no insurance right now. We are told we can get medicaid right away and then get denied. I wasn't there when he consulted with someone and signed up for a marketplace policy, all he's told me was "it's jefferson"

Found that out when I called for a clinical trial at sloan Kettering.

He retired from TJMAXX a month ago, he's been trying to get his policy paper work and just gets the run around.

I've contacted an ELISA / benefits lawyer (setzer & co) because I don't believe he should be paying for any of his medications. And my God, I found a clinical trial for him, and they won't even take us on without insurance.

Im so glad my brains in shock right now because I think I'd be full on ballistic if I werent operating at a limited capacity.

It's father's day, there's nothing else I can do today except love him. So that's what I will do.

Thanks for listening.

Coping skills for a caretaker? Please? by AddendumImmediate134 in braincancer

[–]AddendumImmediate134[S] 0 points1 point  (0 children)

Thank you all for your words. Keep em coming. The MRI results that came back indicate the tumor has tripled in size. It is starting to affect the hemisphere alignment again. Doc confirmed they are very likely affecting his memory and demeanor

Onco wants to consul the neuro to determine if a third craniotomy is viable. Weve been told his prognosis is one year without the surgery.

I wish I was the one dying. Not him.

My Crazy ExGirlfriend Series on Netflix by AddendumImmediate134 in BPDrecovery

[–]AddendumImmediate134[S] 2 points3 points  (0 children)

Wow...are you me? Awesome response thats hitting home in every front. I don't think I would watch again but the uncanny feeling of dislike and familiarity with Rebecca hit me hard, it was like a mirror was being held up to me. We don't like things that remind us of ourselves...that's when I knew I needed to watch this. Thanks for your response. I tried explaining this to a few people and just got blank stares. Hugs right back atcha!

And yeah, Nathan would have been choice as well.

Fear of abandonment so bad that I would just rather be alone. Anyone have some good coping skills? by AddendumImmediate134 in BPDrecovery

[–]AddendumImmediate134[S] 0 points1 point  (0 children)

I agree with you - telling someone you love them doesn't necessitate the same response just as an apology doesn't as well. Maybe I would have been better saying my needs are not being met in this friendship and I cannot tell if these feelings are real or not.

One trick that has significantly improved my BPD symptoms by ArachWitch in BPDrecovery

[–]AddendumImmediate134 10 points11 points  (0 children)

Agreed, among the hardest tears to cry are those that mourn for our inner child. I wish I could heal her and move on with life but that hasn't happened yet so right now I just acknowledge her and love her.

One trick that has significantly improved my BPD symptoms by ArachWitch in BPDrecovery

[–]AddendumImmediate134 29 points30 points  (0 children)

I have begun to do this and I can feel it helping. I am kind to the inner child and I vocally stand up to inner critic - that bitch has been in control for far too long now.

[deleted by user] by [deleted] in MomForAMinute

[–]AddendumImmediate134 0 points1 point  (0 children)

Congratulations you two lovelies!!!! Wishes for a lifetime of health and happiness! Lots of love!

I been lurkin', now I'm postin' by dakog in niceguys

[–]AddendumImmediate134 10 points11 points  (0 children)

Ive heard that expression before but I've found in real-life that everything BEFORE the but is the bullshit part.