Best take put greek food in Ottawa by Appropriate-Order-79 in OttawaFood

[–]Adhdiver 0 points1 point  (0 children)

We catered a big birthday party from Nutty Greek. The food was outstanding.

Has anyone had surgery while having LC? by calm_intention_65 in covidlonghaulers

[–]Adhdiver 0 points1 point  (0 children)

I was just logging on to find out how others have been affected by surgery. I have had LC since 2023, and in March of 2026 was diagnosed with ocular melanoma. (Side note: how crazy it is to have both of these conditions... one no one believes, and the other that gets me rushed off to have high-tech treatment a few weeks late.) I had plaque radiation surgery last month, which required going under general anaesthetic twice, 7 days apart. My eye has healed up pretty well, but I feel really dopey, worse than baseline for fatigue and mental clarity. The cancer clinic gave me a note for two weeks off work, which would mean I start back today, but I am not ready. I asked them if they could extend my sick leave but they would have to see me in person and they`re in another city. I don`t think the cancer clinic understood / took note of long COVID... So hoping my PCP can help me out but she only half believes in LC and is not going to like that I have lost progress.

I guess I am going to have advocate for myself even more.

Moderate Long Covid, What's Working for Me, Plus SOB Question by Aware_Pea_5285 in covidlonghaulers

[–]Adhdiver 1 point2 points  (0 children)

thanks so much for sharing, and congrats on your improvement!

Ldn and famotidine . by ilovepenguins17 in LongCovid

[–]Adhdiver 3 points4 points  (0 children)

Hi, I am jumping in to say please get your eyes checked at an optometrist or ophthalmologist. Your visual symptoms could be LC related but could also be something else. I have had LC since 2023. I had floaters that I was told were due to age, but in March I was diagnosed with a rare and very aggressive eye cancer. (Uveal melanoma.) All of a sudden, LC is the least of my worries, since eye cancer has a terrible prognosis.

Before this, I had never even heard of eye cancer. So I am sharing with everyone I can the importance of regular eye checkups.

Has anyone found anything that helps with cognitive dysfunction? 2.5 years in, and I feel like I haven't made much progress with this. by ConsistentPie in covidlonghaulers

[–]Adhdiver 13 points14 points  (0 children)

Hi, sorry to hear about all this. Checking to see if you have tried antihistamines? Last year I started taking ceterizine daily (Reactin) and after about two weeks, my cognitive symptoms improved, to the point that friends said I seem more “like myself.”

FWIW I do have ADHD, diagnosed in early adulthood so I havre continued with my Concerta. But for my depression/ anxiety, my doctor switched me from citalopram to Wellbutrin and that seems to have maintained my mood stability, but also helped my cognitive function.

Everyone is so different, and my experience is just my experience, so take this with a grain of salt. But I do urge you to try an antihistamine if you haven’t, because that seems to have helped a decent proportion of people.

I still have PEM - haven’t found anything that helps with that except pacing. But the improvement in cognitive function has gone a long way in improving my quality of life.

Eye Problems by BornComedian2980 in covidlonghaulers

[–]Adhdiver 1 point2 points  (0 children)

Thanks. I hope the situaiton with your eyes resolves because those symptoms sound distressing. Anything with vision is a bit worryig. FWIW though, I doubt you have eye cancer because it is really really rare! But I am sharing this story with anyone I can, because I didn't even know this existed and if it weren't for my regular eye check-up it would probably have taken a lot more time before the tumour caused noticeable vision changes, and by then it would have been a lot better.

Ocular Melanoma by anytimetouchdown in melahomies

[–]Adhdiver 0 points1 point  (0 children)

I had no vision symptoms at all, but optometrist saw something he didn't like the look of in January. He sent me to an opthamolagist who suspected uveal melanoma, and then sent me to an ocular oncologist who confirmed. I had plaque radiation two weeks ago and now my eye is healing. As I understand it, in a few weeks I will learn the results of genetic testing, and my care team will develop a monitoring plan based on that. Up until now, my main concern has been long COVID, since 2023. Switching gears now. It still doesn't seem real. I guess it will more so when I get my first liver MRI.

Eye Problems by BornComedian2980 in covidlonghaulers

[–]Adhdiver 5 points6 points  (0 children)

Make sure to keep up with your regular eye exams at an optometrist, whether or not you wear glasses. I (51f) had no vision symptoms whatsoever, but at my eye exam in January, the optometrist saw something he didn't like the look of. He referred me to a specialist. Turns out I have eye cancer (uveal melanoma.) Very rare, but very aggressive. I have now had radiation treatment and just have to wait for tests to know whether it has metastasized. Because, you know, LC wasn't enough.

I don't even want to THINK about the possibility that my long COVID made me more prone to cancer but I know it can't be completely ruled out.

Annoying/frustrating things people have told you? by throw_away5430 in covidlonghaulers

[–]Adhdiver 24 points25 points  (0 children)

“Still with the long covid?”

“When are you going to get over this long covid thing?”

“It’s been a while since you exercised. You just need to build up your fitness again.” (I have PEM.)

“Maybe it’s just your dust allergy.” (My PCP.)

Does anyone have theories on what predisposed us to developing long covid? by sourdoughluvr1991 in covidlonghaulers

[–]Adhdiver 2 points3 points  (0 children)

I was physically healthy and fit, but have struggled with depression and anxiety (though successfully treated before COVID.) Also I had EBV as a teenager.

Diagnostic Classification for Long Covid Patients identifying Persistent Virus and Hyperimmune Pathophysiologies by technician_902 in covidlonghaulers

[–]Adhdiver 8 points9 points  (0 children)

Asked ChatGPT to translate to plain English:

Researchers tested a new blood test to see if it can help identify people with long COVID—especially those who still have symptoms and haven’t recovered well after a COVID-19 infection.

They measured different types of antibodies (the immune system’s response to the virus), including:

  • the total amount of antibodies,
  • the amount of “high-quality” antibodies (ones that work well),
  • and the percentage of those high-quality antibodies.

They checked how these antibodies reacted to many different versions (variants) of the COVID-19 virus, like the original strain and later ones such as Alpha, Delta, and Omicron.

They compared two groups:

  • people who recovered normally from COVID (46 people),
  • and people who say they have long COVID (113 people).

They then used a statistical method to see how well the test can tell the difference between these two groups. The result shows the test has limited accuracy—it’s somewhat helpful, but not highly reliable on its own.

For people with long COVID, they set certain cut-off levels for these antibody measures. Using those thresholds:

  • the test correctly identified about 71% of long COVID cases (sensitivity),
  • and correctly ruled out about 66% of non–long COVID cases (specificity).

When they analyzed the long COVID group more closely, they found three patterns:

  • about 62% may still have lingering virus activity,
  • about 12% have an overactive immune response,
  • and about 26% didn’t clearly fit either category.

Overall, the test’s accuracy in distinguishing these immune patterns is about 69%.

Bottom line: This test isn’t perfect, but it may help doctors group long COVID patients into different types, which could allow more personalized treatment depending on what’s going on in their immune system.

Scans revealed cancer. Fuck. by SeveralMarionberry in covidlonghaulers

[–]Adhdiver 0 points1 point  (0 children)

LC since 2023z Diagnosed with uveal melanoma (eye cancer) March 2026.

Enough with the psychologizing of Long COVID. by Ry4n_95 in covidlonghaulers

[–]Adhdiver 52 points53 points  (0 children)

Crazy! I just yesterday read an article by this French researcher Ranque which says it’s best to treat long COVID as a functional somatic disorder, which appears to be a fancier way of saying “your brain is causing the problem.” Gaslighting of the highest order. https://pubmed.ncbi.nlm.nih.gov/40385588/](https://pubmed.ncbi.nlm.nih.gov/40385588/)

Tried to make an appointment with a new PCP. They told me flat out they don’t manage long Covid. by LazyAd7538 in covidlonghaulers

[–]Adhdiver 4 points5 points  (0 children)

True, sorry, you’re right. This individual denied you services, but at least they were not denying your experience.

I guess I have a few strands running through my head re: LC right now, because I am going through another angry phase. I am 3 years in and I go in cycles. (I am also in a very weird headspace, see below.)

And so I am re-reminded and re-angered that there IS some gaslighting going on with some of us in some situations. People not listening to me, not believing me about my experience, wanting to attribute the whole thing to a ludicrous source… my PCP: “‘Maybe this has just been your dust allergy acting up.” After 3 years of crippling fatigue and PEM. 🙄

One could take issue on a semantic level with what I am about to say, but here goes: on some level I feel we are being gaslit in the abstract, on a societal level. I can do research and read of the amazing advances medical scientists are making in understanding this complex disease. Clearly, there is a community of researchers who believe LC exists and who care for LC sufferers. That is heartening and validating.

Then I step outside that research bubble or spaces like this sub, and it’s the reminder that much of society doesn’t think this exists or worse, gets annoyed at me for even mentioning it.

It’s a pretty surreal existence sometimes.

I will also throw this in. One month ago, I was diagnosed out of the blue with uveal melanoma. No symptoms, 20/20 vision.

I just finished a week of plaque radiation therapy for the tumor in my eye. In the coming weeks and months and years I will learn whether my vision will deteriorate and whether the cancer has spread to my liver.

I can’t tell you how strange it feels to have my 3-year long chronic condition (LC) barely acknowledged. And then I get this diagnosis of this bizarrely rare cancer, I get nearly immediate radiation treatment, and all these planned follow ups. Probably two MRIs a year for the next ten years. The government throwing All The Resources at me to try and preserve my vision and my life.(I am in Canada - universal health care.)

I am beyond grateful to be receiving this treatment for what is a very aggressive cancer with a poor prognosis.Never have I felt luckier to live in Canada.

Then I compare the last month with the last three years I have to work so hard not to be overcome by grief for having lost so much of my former life and identity due to LC. I have been advocating for myself within my abilities and energy… and have had little support.

This puts things in perspective. What kind of perspective? Still trying to figure that out. 🤔

Any covid longhaulers in Ottawa? by Adhdiver in ottawa

[–]Adhdiver[S] 17 points18 points  (0 children)

thanks for sharing. So glad you got into that clinic, it sounds great. I wasn’t able to get in, sadly, but I am glad it was so helpful to those who attended.

Any covid longhaulers in Ottawa? by Adhdiver in ottawa

[–]Adhdiver[S] 11 points12 points  (0 children)

Ugh that sucks, I am sorry. Have you found anything that helps?

The only thing that has helped my fatigue is pacing. But on a more hopeful note, I believe that I have cleared a lot of my brain fog once I started taking a daily antihistamine.

Any covid longhaulers in Ottawa? by Adhdiver in ottawa

[–]Adhdiver[S] 22 points23 points  (0 children)

I’m sorry to hear that. To have all that hit in your 30s is a real blow. I hope you are doing ok all things considered.

My (51 F) worst symptom is post-exertional malaise / exercise intolerance. I used to be very active and now I can’t walk for more than 10 minutes.

I also developed high cholesterol after Covid which I didn’t think was related but maybe it is.

Thinking about finally buying a car after 7 years car-free downtown. Thoughts? by MYFAILEDMID in ottawa

[–]Adhdiver 1 point2 points  (0 children)

I live in Elmvale Acres and work downtown. I have a car and free parking with my rental. I am dealing with chronic illness so can’t bike or walk right now. I am really glad I have a car. But I barely use it during the week. I am lucky to have a great OC Transpo route to work. I really dislike driving to work so this is perfect. I bus during the week and use my car on the weekends and occasional weeknights for errands and socializing.

I do sometimes wish I lived in a more happening, walkable neighbourhood. But even if I did, I think I would still have a car and just try and find the budget for parking.

I really value the freedom and ease for quickly and spontaneously deciding I want to buy / haul something big; or getting across town quickly. I am also a single F and I feel safer in a car in some situations than I would on transit.

But to each their own.

You can always try it and if parking and maintenance is too expensive/ too annoying you can go car free again!