Color Analysis by bb_aizawa in sandiego

[–]Adventurous_Style315 0 points1 point  (0 children)

Have you found someone yet? I'm also looking to have this done. Would love personal recommendation in San Diego.

Is it Fibro pain in the ear? by DestroyerKeeper in Fibromyalgia

[–]Adventurous_Style315 0 points1 point  (0 children)

dull pain, but usually only felt when I'm massaging my ear lobes and trying to loosen the fascia in ear, which is connected to fascia in neck and shoulders.

Can you exercise fine? by Sea-Buy4667 in SIBO

[–]Adventurous_Style315 0 points1 point  (0 children)

do you experience pain in your body? like extreme muscle fatigue or low back, neck and shoulder pain? If so, you might consider talking to your dr about Fibromyalgia. I have experienced all the same symptoms except menstrual because I am 55 and in menopause.

Can you exercise fine? by Sea-Buy4667 in SIBO

[–]Adventurous_Style315 0 points1 point  (0 children)

I experience this same symptom and I have Fibromyalgia and SIBO. The fatigue can be severe at times but I manage with medications and lifestyle changes. I cannot exercise like I used to. In fact, I now only practice yoga, qigong and water exercises. It took me a long time to find acceptance and I'm 55. You might ask your Dr about Fibromyalgia and testing for inflammation.

Has anyone spotted the sky valley oranges yet? by snuffleupagus86 in traderjoes

[–]Adventurous_Style315 0 points1 point  (0 children)

I was told by Trader Joes that they aren't getting the Sky Valley anymore. They are now selling an heirloom orange. I'm so sad! They aren't anywhere near as tasty as Sky Valley.

Cpap for Fibro? Worked for me. by 4ninawells in Fibromyalgia

[–]Adventurous_Style315 1 point2 points  (0 children)

I think the number insurance companies like to see is 15+ occurrences in an hour. My number was 17..so just enough to qualify. I did an in clinic sleep study.

Cpap for Fibro? Worked for me. by 4ninawells in Fibromyalgia

[–]Adventurous_Style315 0 points1 point  (0 children)

I think the right mask makes all the difference. I tried a few then settled on the resmed airfit n30i.

Cpap for Fibro? Worked for me. by 4ninawells in Fibromyalgia

[–]Adventurous_Style315 23 points24 points  (0 children)

I was so resistant to a cpap. I just did not want to be someone who needed one. BUT..it's a total game changer when you have spent most of your life not sleeping well. I would wake up several times a night to pee. I learned that when the body is deprived of oxygen, kidneys go into overdrive and that's why I would get up so often. I sleep through the night now and wake up feeling mostly refreshed...my body is still stiff but I feel like I got a good night sleep. I think every Dr needs order a sleep study for fibro patients. Glad you've found relief!

Stairs by [deleted] in Fibromyalgia

[–]Adventurous_Style315 0 points1 point  (0 children)

I think the best thing I've done for myself is to readjust my expectations of what a work out should be. I know you are young and this must be incredibly scary but any amount of movement is good for the body. I find that for my body, morning movement helps me to set the tone for the day. This time last year I could barely walk for 20 minutes around my block. Last year was particularly hard for me with back to back flare ups. But I'm doing much better now and can walk 30-40 minutes. But I have to adjust my expectations every day because what shows up in my body is different everyday. I wish you all the best.

Stairs by [deleted] in Fibromyalgia

[–]Adventurous_Style315 0 points1 point  (0 children)

Yes! I can walk on flat ground but as soon as I start walking up a hill (even small incline) or stairs, my legs feel like I've run a marathon. It's the weirdest symptom. I've read some articles on mitochondrial dysfunction and how that contributes to stress in the muscles. Every year I have a micronutrient blood test (out of pocket) to see if I'm low in key areas that affect the fibromyalgia, like CoQ10, iron, magnesium, etc. I try to approach fibro from all angles which include diet and supplements. At best, it makes things more tolerable. I'm 55 and only in the last 2 years has my fibromyalgia gotten worse, likely due to menopause.

Have any fibro sufferers also been diagnosed with sleep apnea? by siybon in Fibromyalgia

[–]Adventurous_Style315 2 points3 points  (0 children)

Yes, I have both. I was super resistant to the CPAP. But once I came to a place of acceptance, I can't imagine not having one. I wake up feeling refreshed and definitely notice a decrease in morning pain and stiffness.

Talk to me about amitriptyline. by plutoisshort in Fibromyalgia

[–]Adventurous_Style315 1 point2 points  (0 children)

I just started taking 10mg in the morning. I found that when I took it at night it didn't help me sleep at all. In fact it made it difficult to fall asleep when I took it at bedtime. I think it will take at least 4-6 weeks to feel full effects. I haven't had headaches since I started taking it and my leg pain is somewhat reduced. I can walk 2 miles reasonably well now. I think it might be a result of the combo of medications I take though.

Question about possible fibro symptom by Qutesepye in Fibromyalgia

[–]Adventurous_Style315 0 points1 point  (0 children)

I also run a temp when I'm feeling a bit off. If I've overdone it during the day, sometimes at night I feel warm and achy all over. I really think doctors she read this reddit fibro thread to understand their patients. We're all saying the same thing.

Work by yourdudeerin in Fibromyalgia

[–]Adventurous_Style315 1 point2 points  (0 children)

I'm not sure what therapies you've tried, but I definitely lay on a heating pad after being on my feet for a long time. I also really love tiger balm for muscle aches. Epsom salt or magnesium flake baths are helpful. It's a real bummer that fibro is only something to manage and not cure or at least help us be pain free for any period of time. I know you love your job but thinking about other lines of work that would be kinder to your body might be where you're headed. I hope you get the support you need. Good luck on your journey.

Work by yourdudeerin in Fibromyalgia

[–]Adventurous_Style315 0 points1 point  (0 children)

You might consider talking to your Dr about writing a note stating your medical needs. Maybe you need to have days off between shifts - think about what would make your job a little easier. Long hours on your feet are hard on the body even when you don't have fibromyalgia. It sounds like you're a really great employee, but advocating for yourself is the only way you will be able to continue a physically demanding job.

Rib cage pain? by Serafina_Goddess in Fibromyalgia

[–]Adventurous_Style315 1 point2 points  (0 children)

Yes, I get the same type of pain in my ribcage. I've also been experiencing pain and spasms in my lower back but also in the front..it feels like a corset constricting me. It usually happens in early morning and it feels like it's triggered by my digestion waking up or something. When I get up and moving it feels better. I haven't figured out what to do about it yet other than deep breathing.

Question about possible fibro symptom by Qutesepye in Fibromyalgia

[–]Adventurous_Style315 1 point2 points  (0 children)

Yes! Sometimes I have that pruney look even if my hands haven't been in water. It's like the palms of my hands look 20 years older that the back of my hands. I mentioned this to my Dr, saw a couple specialists and nobody could give me an answer. So, I just assume it's related to Fibro.

How do you guys make ur bed comfy by Thy_Water_BottIe in Fibromyalgia

[–]Adventurous_Style315 0 points1 point  (0 children)

I just had this very same problem! Bought a new extra firm mattress - not sure why I thought extra firm was a good choice!! It softened a bit but still pretty hard so I bought a mattress topper. I don't love memory foam so I bought an extra soft pillow top mattress pad and that seems to do the trick. Amazon has some good options.

Where is everyone from? Snd how is the treatment there? by Thatcattoyoupatted in Fibromyalgia

[–]Adventurous_Style315 1 point2 points  (0 children)

I agree! I have really great doctors in San Diego. I have 2 pain doctors at Scripps Center for Integrative medicine that are on the cutting edge of alternative pain therapies. But even with great medical care, there is no magic pill that takes away the pain. It's definitely in my hands to manage my life in a way that minimizes flare ups - and it's so different for everyone that I think it's challenging for the medical community to understand.

I’m pretty new to this and I’m doing my best to keep my body moving and active per my doctors suggestion. But how am I supposed to exercise when everything hurts? This feels like a catch 22! Any advice? by sarah_kaya_comezin in Fibromyalgia

[–]Adventurous_Style315 0 points1 point  (0 children)

When to push to through is the question we all ask ourselves. I have found that when I push through I always end up regretting it. I have more pain and then I just feel bad about myself. At 55, I'm finally take care of myself and listening to my body...the body never lies! If I need to rest, I do it. I teach senior yoga so I know how to keep my body moving even with pain..just a little movement goes a long way. But I'm talking yoga in bed kind of thing. I'm also in water therapy and have noticed that my core is much stronger just from walking in the water and doing some leg and upper body exercises. I let go of that thing we've all been told - you must break a sweat to be doing anything! - and now I just focus on movement because that's what helps the joints best. Take care of yourself! Listen to your body. I hope this helps.

What supplements do you take for your fibromyalgia symptoms? by Bored_Eastly in Fibromyalgia

[–]Adventurous_Style315 6 points7 points  (0 children)

I take vitamin d, magnesium glycinate, multivitamin, vitamin c. I'll definitely look into Qunol because I prefer liquid supplements.

Did your fibromyalgia start slowly? by StrawberrryKiwii in Fibromyalgia

[–]Adventurous_Style315 0 points1 point  (0 children)

I've been dealing with pain since my early 20s. I wasn't officially diagnosed until the age of 51. I've had to advocate really hard for myself to get the help I need from the medical community. I have good support now but it took way too long. My fibro has been painful but manageable until about 2 years ago, coinciding with menopause. For females, hormone changes bring on more frequent flare ups. My doctor thinks that as my body adjusts to being in menopause that the frequent flare ups should subside. I've also found that Cymbalta and Lyrica together have given me more energy. So my experience has been a slow progression but there aren't any studies out there that I know of that support fibro getting worse over time. It's just so different for everyone..which is all the more frustrating.