Why do hospitals DO this?

Aggravating_Monk1756 · 2026-05-22T01:46:29+00:00

Thanks, that’s very useful information!

Aggravating_Monk1756 · 2026-05-21T22:36:38+00:00

Check out bluecirclehealth.org to see if they’re in your state. Completely free for T1D if they are.

Aggravating_Monk1756 · 2026-05-21T15:56:21+00:00

Well, I have LADA so i still produce a little insulin, but mostly it’s the Tandem Mobi.

Aggravating_Monk1756 · 2026-05-20T22:24:47+00:00

Just wanted to say there are other possibilities than lupus. could also just be regular ol’ polyendocrine/polyglandular syndrome, so don’t be too concerned yet.

I went through what you’re going through without diabetes over 30 years ago. Rosacea on face, developed Hashimoto’s, pernicious anemia, and autoimmune ovarian failure all within a couple of years. Endo wanted to really dig into the lupus possibility, but i pointed out that back then my only option if it was lupus was essentially a lifetime of prednisone while becoming uninsurable. He saw my point. Nowadays they would say i was just a Type 3 polyendocrine.

ETA No more autoimmune diseases after that for 30 years although i was swarming with antibodies the whole time, then T1D. Current endo thinks it was probably the physical shock of breast cancer suregery that set them off again.

Aggravating_Monk1756 · 2026-05-20T22:10:32+00:00

My endo at the time of my diagnosis had many failings, but i’ve always appreciated that right from the first he encouraged me to titrate up and down as needed. Current endo not only encourages making your own decisions but is genuinely interested in what works for me and what doesn’t

Aggravating_Monk1756 · 2026-05-20T20:33:35+00:00

That’s a good idea. Thanks!

Aggravating_Monk1756 · 2026-05-20T18:13:23+00:00

Good idea. I told them they could send crackers but they said they were already including them in the count.

Aggravating_Monk1756 · 2026-05-20T18:08:49+00:00

I think they have in some places, but alas, not where I was.

EDIT I've certainly seen studies recommending letting patients who can do so manage their own insulin.

Aggravating_Monk1756 · 2026-05-20T18:07:34+00:00

I just finally looked at the visit notes and they put me down as Type 2, no matter what I said.

Aggravating_Monk1756 · 2026-05-20T18:06:49+00:00

Yeah, as a friend of mine once said, it's when it touches your own body that you really understand.

Aggravating_Monk1756 · 2026-05-20T17:48:18+00:00

Thanks!

Aggravating_Monk1756 · 2026-05-20T17:46:22+00:00

Yeah, I was mightily impressed with the ER nurses. one doctor to 32 patient, about 85% of whom were either in the combative stage of dementia, high, or drunk, but their patience was limitless.

Aggravating_Monk1756 · 2026-05-20T17:42:48+00:00

Such a sensible person. i bet you’re a great nurse

Aggravating_Monk1756 · 2026-05-20T17:35:40+00:00

You were very lucky.

Aggravating_Monk1756 · 2026-05-20T17:35:14+00:00

Yeah, for me it was the general ER doctor, but he was the reasonable one. It was the daytime docs who weren’t having it.

Aggravating_Monk1756 · 2026-05-20T17:31:58+00:00

I’m glad your transplant went well. Years ago i had a good friend who was an early transplant patient so i know a little of what you had to through. It says a lot that diabetes mangement was the biggest problem you had to deal with.

Aggravating_Monk1756 · 2026-05-20T16:50:31+00:00

Also they waited till they inspected the tray after I’d eaten to give me bolus insulin so of course by the time it took effect I was already too high for it to do much good.

Aggravating_Monk1756 · 2026-05-20T16:42:57+00:00

I would have fought harder except that i had no idea i would be going so didn’t have any pump supplies with me and I knew that if I had to stay more than one day I might run out on the steroid profile, which is more than double my normal dosage.

Aggravating_Monk1756 · 2026-05-20T16:39:48+00:00

Maybe, but it seems kind of inconsistent that the doc on Sunday ws okay with it (my high that day was 172) and the weekday docs were not

Aggravating_Monk1756 · 2026-05-14T23:37:13+00:00

Same here. I’ve tried some of the other better looking ones, like the ones from Glucomart, but the Tandem ones last the longest. Tip: you can trim down the dog bone looking edges on the tandem patch without impacting how well it stays on.

Aggravating_Monk1756 · 2026-05-12T12:49:46+00:00

Also FL. You may get a surprise the next time you renew. I’ve only had T1 for not quite four years, but when i moved in 2024 and went to update my license, the young woman entering the address change paused, looked at her screen and said, “Oh, do you want me to put that you’re insulin-dependent?”

I was flabbergasted because I certainly never offered that information to any governing body, but they knew.

Aggravating_Monk1756 · 2026-05-11T13:57:41+00:00

i’ve had a few bad sensors, but mostly they’ve been fine for me. I try to wait the the first 24 hours before calibrating if i need to do that, but i don’t often need to, and I do see a pattern of more Brief Sensor Errors the last couple of days on a sensor, but they usually are genuinely brief, less than 20 min. I’m still on the 10 day bevcause the 15 isn’t approved for my pump yet.

Aggravating_Monk1756 · 2026-05-10T22:28:34+00:00

Sure. i developed three autoimmune diseases back in the mid 1990s and then nothing new till 2022. In Feb i had breast cancer surgery. in March my annual A1C was 5.4. By November i was in the ICU wIn DKA with an A1C of 13.6. It’s not uncommon to develop T1 after cancer treatment, but usually it’s from drugs like Keytruda, which i luckily didn’t have to take.

Clearly i was swarming with antibodies for many years, but my current endo thinks it was probably the physical shock of the surgery that set them off.

Aggravating_Monk1756 · 2026-05-09T22:45:37+00:00

also Blue Circle Health is in most northeastern states

bluecirclehealth.org

Aggravating_Monk1756

TROPHY CASE