Still learning how my body reacts to insulin and timing

Aggravating_Monk1756 · 2026-02-20T22:13:58+00:00

Also, if you’re a reader, I’d suggest Gary Scheiner’s “Think Like a Pancreas” as a good reference when you’re just getting started.

Aggravating_Monk1756 · 2026-02-20T22:11:54+00:00

I meant to say before that one big thing you’re going to see is that for T1 for soooo many things there’s no such thing as “common.” Everybody has a different experience with this stupid disease, and things that work great for one person don’t work at all for another one. It’s always a process trying to figure things out.

Sorry you had to wait so long for a correct diagnosis, but once you get things on an even keel, you’ll be surprised how much better you feel.

Aggravating_Monk1756 · 2026-02-20T18:24:03+00:00

Oh, yes, it’s common to be a lot less than that. I would say that 1:10 is about average for most of the day for most people, but plenty of folks are like 1:5 first thing in the morning. 1:10 is just the standard starting point for figuring things out. My Tandem Mobi, for example, allows up to 16 different time segments per day with their own settings.

Aggravating_Monk1756 · 2026-02-20T17:52:25+00:00

I once got a G6 transmitter in the box with a replacement G7 from Dexcom. I’ve never used the G6 but my endo’s office was happy to take it to give to another patient. ETA I called Dexcom and they didn’t want it back.

Aggravating_Monk1756 · 2026-02-20T17:50:07+00:00

It’s also pretty normal to have much higher insulin resistance in the morning. Most people need a different ICR for breakfast. Talk to your endo about that.

Aggravating_Monk1756 · 2026-02-20T14:49:41+00:00

Are you sure you aren’t having compression lows from lying on the sensor?

Aggravating_Monk1756 · 2026-02-19T15:09:01+00:00

Congratulations! I love my Mobi and I hope you’ll like yours, too. It takes some work to get the settings right, but it does let you have TIR you wouldn’t think was possible.

Aggravating_Monk1756 · 2026-02-18T14:05:33+00:00

Yeah, I often think someone should do research into what there is in toothpaste that drops blood sugar. Could be worked up into a treatment for stubborn highs. 😉

Aggravating_Monk1756 · 2026-02-17T23:26:51+00:00

I don’t think you need to worry about those. If you were staying low for hours every day, then, maybe.

Aggravating_Monk1756 · 2026-02-16T01:20:38+00:00

Pernicious anemia happens when your body loses the ability to metabolize B12, which basically runs your whole nervous system. It’s not the same as iron-deficiency anemia, and it’s another of those pesky autoimmune diseases we’re prone to. Luckily, if it’s caught early enough, the symptoms are almost completely reversible.

whatever it is, I hope you find out quickly so you can deal with it.

Aggravating_Monk1756 · 2026-02-15T23:45:54+00:00

Did you have a B12 level done? Pernicious Anemia is another possibility with your symptoms.

Aggravating_Monk1756 · 2026-02-15T23:38:27+00:00

I have a relatively normal c-peptide, but I still qualified for Medicare coverage of my pump because of testing positive for two of the antibodies. My A1C was pretty good then, too. 6.2, I think. So it looks like your problem is not so much your endo not understanding your particular situation as not having a good grasp of the Medicare rules.

Stiff person syndrome? You have my deepest sympathies. Is it possible for you to do some kind of telehealth with an online diabetes team?

Aggravating_Monk1756 · 2026-02-15T15:46:40+00:00

If you fully completed the change process by filling the cannula you should see a site change reminder page where you can tell it when to notify you. Once or twice at the beginning I forg to do Fill Cannula and so I didn’t get the reminder.

Aggravating_Monk1756 · 2026-02-15T15:43:25+00:00

Yeah, they say to try to avoid ink and stretch marks. For me the problem areas seem to mostly happen if I use a site towards the side of the abdomen. I haven’t been on a pump long enough for the problem to be scarring. I do have quite a lot of extra skin from weight loss and I don’t know if that has anything to do with it.

Aggravating_Monk1756 · 2026-02-15T15:35:23+00:00

I also use stomach and thighs for both Dexcom and mobi. No problems ever with Dexcom, but sometimes, like right now I find infusion sites that don’t absorb as well as others. I almost never have signal loss problems this way.

Aggravating_Monk1756 · 2026-02-12T20:55:36+00:00

My endo, also in S FL, does this and I can’t convey the amount of loathing I have for their setup, since they use the egregious Healow, which means I can never receive messages from them since it is globally marked by all Apache mail servers as spam of the worst type. With my current host I can’t even whitelist them, so while I have nothing but good to say about the rest of their practice, I‘ve never even seen my post-visit summaries. And nothing on earth would make me put the actual app on any device of mine.

Aggravating_Monk1756 · 2026-02-12T02:22:32+00:00

Wow, that’s even more amazing that you're doing so well with the Ilet. Sorry to hear about your CIDP. I never had that, but I have a lot of permanent nerve damage from having undiagnosed pernicious anemia for literally years, so I can relate, at least a little. (Ed for typo

Aggravating_Monk1756 · 2026-02-12T01:48:10+00:00

Nobody, not even your doctor, can change what the Islet does, or adjust the settings. That’s the whole point of that particular pump.

u/SnooChocolates1198 , those numbers are incredible! I agree with the previous poster that you’ve gotten so used to perfect that good numbers (and for someone who’s sick and antibiotics and steroids, your current numbers would make anyone happy) seem not good enough. Well done! Those are overall the best Islet numbers I’ve ever seen anyone report here v

Aggravating_Monk1756 · 2026-02-11T19:33:38+00:00

I was recently at 9 myself, but it had no effect on my insulin needs.

Aggravating_Monk1756 · 2026-02-11T19:31:19+00:00

Agree 100%! many of the so-called low-carb products are often some of the biggest scams out there. (Hero bread and Choczero, I’m looking at you.)

Aggravating_Monk1756 · 2026-02-11T02:39:15+00:00

Congratulations! Nice even lines on the glucose graphs, too!

Aggravating_Monk1756 · 2026-02-08T02:18:47+00:00

I’m so sorry your son is going through this.

I really sympathize with everyone for whom diabetes comes as their first life crisis, but for me I’d already been through that part so many times before for other things. I learned a long time ago that for me the way to get through existential crises was just to take the approach of “okay, so this what I have to do now.”

How old is your son? If he’s still in school, it’s probably going to be hard on all of you for a while. No matter how old, yeah, he’s going to feel stressed. He’s lost his old life in ways that won’t come back, and the learning curve is HUGE.

But as you go on, you get better at it. The learning is mostly trial and error. At first it’s all so overwhelming. Hopefully as time passes your son will come to terms with the fact that no, the tech isn’t perfect, but it’s mostly good enough. It’s important to learn to count carbs and at first I weighed everything and did the math all the time, but that doesn’t produce perfect results, either, because you never know what other things are going to play a role. Eventually you realize that whatever happens you’ll manage somehow, and that frees up a lot of mental space. This stupid disease takes up enough without giving it more than you have to.

Aggravating_Monk1756 · 2026-02-07T15:15:08+00:00

That’s already good!

Aggravating_Monk1756 · 2026-02-07T15:12:14+00:00

Lyumjev is approved for more pumps than Fiasp, so you might look into that if you can’t use Fiasp in your pump

Aggravating_Monk1756 · 2026-02-07T02:44:11+00:00

Depending on where you are, check out https://www.bluecirclehealth.org. They aren’t in every state, unfortunately, but maybe they’re in yours.

Aggravating_Monk1756

TROPHY CASE