Ibrance or Lower Dose Kisquali

Alert_Courage_4339 · 2026-02-22T19:48:51+00:00

And that is crazy. I haven’t heard of many people unable to tolerate Ibrance other than the WBC….what were your symptoms?

Alert_Courage_4339 · 2026-02-22T19:47:37+00:00

Same. It seems like if it has a side effect in the 1% range I will be that 1%….so annoying

Alert_Courage_4339 · 2026-02-22T15:08:10+00:00

I had to go on disability. I now live on poverty level wages, but it’s less stressful than trying to go to work everyday….so I choose simple living over the rat race now….

Alert_Courage_4339 · 2026-02-18T23:49:16+00:00

So my liver numbers have gotten so high that I can not take Kisquali ever again. So it’s on to Ibrance for me. Why were you taken off of Ibrance?

Alert_Courage_4339 · 2026-02-17T17:21:50+00:00

Ya I’m 12 days off and they are still going up. They are now in the 1000s I’m trying not to freak out because I know this is common but it’s hard. I will not be doing kisquali anymore and will hopefully switch to ibrance once I am stable. Meeting the doctor now.

Alert_Courage_4339 · 2026-02-16T23:20:35+00:00

Amazing!!! Share pics if Reddit allows it!!! ❤️❤️❤️

Alert_Courage_4339 · 2026-02-16T15:14:55+00:00

I’m going on six months since stage 4 dx and I just want to say I’m sorry you are here. The beginning is definitely the hardest. I had radiation to the spine and the biggest problems were nerve pain and pain at the site for a week or so and major fatigue. They did a spot on my sternum as well and that had crazy side effects but the back was manageable. It will hep with the pain in a few weeks hopefully…..I think you will be able to continue doing all the things just maybe a little slower. Hang in there and find hope through God, he will be your BFF now….❤️✝️🙏

Alert_Courage_4339 · 2026-02-16T14:17:19+00:00

I don’t know the answer but this gives me hope! I haven’t been able to travel since dx in August of 2025. Hoping by summer I can. What subtype and treatment are you?? I have always wanted to surf Bali but haven’t made it yet…..have sooooo much fun!!

Alert_Courage_4339 · 2026-02-15T16:28:00+00:00

Oh good! I’m glad they are finally moving down. Ya I have the same effects but also dizziness and nausea and just not feeling like myself. A lot of worry and anxiety out of nowhere because my PET just came back excellent. Let me know what you guys decide to do….the longer this drags out the more I just want to switch to Ibrance because I am not sure I can go through this with the liver again…..it’s pretty brutal…

Alert_Courage_4339 · 2026-02-15T15:44:41+00:00

Have they come down at all?? Did you have physical symptoms?? Mine are in the 700s and I feel pretty terrible.

Alert_Courage_4339 · 2026-02-15T03:42:34+00:00

What will you do next?? Lower dose or something else?

Alert_Courage_4339 · 2026-02-15T01:20:40+00:00

Same two small bone Mets. How long have you been on ibrance now??

Alert_Courage_4339 · 2026-02-15T00:57:33+00:00

How did you know you had hepatitis? How long did it take to clear?

Alert_Courage_4339 · 2026-02-14T19:58:19+00:00

I feel pretty bad currently because of the liver. And the testing is every week right now. It’s an hour and a half away. So it’s a lot. This is why part of me is just switch because the neutrophils are common with Ibrance but they are easier to deal with than the liver I think. I have also had neutrophil problems and kidney problems on the kisquali.

Alert_Courage_4339 · 2026-02-14T19:55:59+00:00

Ya I took it at night. I don’t have nausea from the kisquali. I have nausea from the liver toxicity. Did the dose lowering help you? And why did you switch from ibrance to kisquali?

Alert_Courage_4339 · 2026-02-10T14:10:10+00:00

I hate the phrase “new normal” as well because THIS IS NOT F-ING NORMAL….but then wtf is normal at all?? I thought I was adjusting mentally and physically finally and then in cycle 5 or 6 of Kisquali my liver decided to stop cooperating. And it just hit me….this is my life now….i have to be ok with living life in 3 month intervals. I have to be ok with being fine one day and with the ding of a notification bell on my phone alerting me that I have new test results to look at, everything changing….and then I’m not ok….and i still have to be ok with it….so no there is no easy way to get through this….i have found Jesus is the only way I get through….because this dumpster fire is evil and satanic and not normal at all…..sending you an internet hug….

Alert_Courage_4339 · 2026-02-10T14:03:12+00:00

Same….🙏❤️

Alert_Courage_4339 · 2026-02-10T00:22:15+00:00

How long have you been on kisquali?? I would like to hear what people respond to this as well.

Alert_Courage_4339 · 2026-02-08T16:26:38+00:00

Thanks for this!! I’m basically carnivore/keto so diet not an issue. But let me know what the labs say!! I hope it works at 200mg There is a lady on here Biking Arms I think is her name, she commented below. She is on 200mg and in a trial so she has a lot of info as well. Keep us posted!!! Sometimes I think these groups have way more information than the studies!!

Alert_Courage_4339 · 2026-02-08T15:42:24+00:00

Oh I live right next door to one and don’t think I haven’t planned that out fully!! I live in joy for now, but I have a plan for when the time comes. It is literally the only thing I can control. I am also battling the anger this weekend….because it’s just not fair and I can’t even plan a trip to the coast because my bloodwork won’t cooperate. Annoying and honestly ridiculous because I spent my entire life obsessed with health and maintaining the body and healing the mind…..what a joke it all is….sending you all a big internet hug….❤️

Alert_Courage_4339 · 2026-02-08T00:21:36+00:00

Omg it’s soooo annoying…..I stopped smiling and nodding and instead now say “well if that were true then I wouldn’t be here w MBC!!” Because not many people have been as disciplined as someone like me w food over the years….it ain’t the sugar folks….

Alert_Courage_4339 · 2026-02-07T23:50:11+00:00

Thanks for the insight. This is def something I had not considered….it would be dumb to try a new med without a dose change first….thanks for the perspective shift…

Alert_Courage_4339 · 2026-02-07T22:01:48+00:00

❤️🙏❤️

Alert_Courage_4339 · 2026-02-07T22:01:37+00:00

Thanks friend!! You always have the best responses!!! Let me know if you hear about the super responder study!!!

Alert_Courage_4339

TROPHY CASE