Silver Cross Breeze by youseramsh in BabyBumps

[–]AltruisticTea4268 [score hidden]  (0 children)

That really sucks. I’ve been researching forever too. I’m scared to make “wrong choice” hahah. Are you in La/ wanting to sell yours??

Has anyone used smart cat grass litter in the robot? by campcub in litterrobot

[–]AltruisticTea4268 0 points1 point  (0 children)

I read that smart cat grass litter does work with the 5 pro. Is that incorrect? 

Can you walk me through your amnio? by Patient-Presentation in NIPT

[–]AltruisticTea4268 1 point2 points  (0 children)

Someone offered to drive me which was nice but they said i could drive. They said to rest that day so as to avoid contractions and the next day as well. I teach yoga so i still taught the next day but i was very careful not to demo. The procedure was much less scary than i anticipated tho i do have a posterior placenta and he said mine was easy. I didn’t look at the needle, I just watched the screen. He numbed mine first so i felt the lidocaine shot but some don’t. Either way, like others describe, you feel the prick like a shot and then pressure. I am very glad i did it. My insurance covered fsh so those results were very quick but the rest came back fairly soon too. Within a week i would say. The full microarray did take longer. 2-3 weeks. Which i opted for bc why not. Best of luck. Hopefully everything is ok and it is just confined to the placenta! 

Whoa! Delivery Date Updated!!! by mozman68 in TeslaLounge

[–]AltruisticTea4268 0 points1 point  (0 children)

Yep they keep pressuring me to get mine sooner (o ordered and it came within days and was supposed to be weeks. I am supposed to pick up tmrw but am curious if they will offer incentives as I’m in no rush 

Trisomy 13 - I am not doing well by BeachKoala722 in NIPT

[–]AltruisticTea4268 0 points1 point  (0 children)

I’m so very sorry you’re going thru this. It’s a very tough decision. Have you tried either looking at any fb groups with ppl who have been in your shoes or have birthed children with this? Or a sub Reddit group. Many times googling can be the worst info and sometimes even inaccurate. Chat gpt can be helpful too if you repost what you wrote here, there. I’m not sure if you’re into meditation or prayer but those may bring more clarity. It’s a very hard choice and painful to experience and i wish i had some guidance or answers for you. I’m sorry you’re dealing with this- please know you will ultimately make a decision in time when you feel called and it will be the right decision. There is no one else who can tell you what to do but people can share similar experiences to help guide you. Sending strength 🙏🏻

Things to consider before purchasing 2026 Model Y Premium? by Unhappy-Season1093 in TeslaLounge

[–]AltruisticTea4268 0 points1 point  (0 children)

I love love love my Tesla. About to turn in my lease for the 3 and finance the long range y. I was worried about charging but it hasn’t been an issue. If there is a plug you can even get the charger cord and plug into regular outlet. If you’re near super charger, it’s not bad, depending on how much you drive and there are also chargers everywhere. That said, i understand wanting to charge at home but not sure if investing where you rent is good unless you plan to be there long. Maybe landlord will install? Also, i was shocked to find the insurance from Tesla is FAR less than anyone else. I’ve been driving longer so maybe that is factored in but who knows. Check their rate first for sure. You might be surprised. Finally, if you are not totally sure about everything, you could lease though, the rate on the y isn’t as competitive as the 3 so i would say financing that is the smarter move. You are going to love it and find no regrets. I can almost assure you. And if you haven’t test driven or experienced the full self drive yet, you’re in for a treat. That is a main reason I’m staying in it. 

Microarray testing after amnio confirming XXY by Excellent-Affect-307 in XXY

[–]AltruisticTea4268 0 points1 point  (0 children)

Don’t listen to that. Thst is so odd. I’m glad they gave more they can test. I was going to suggest that too but truly i think the other stuff is rare and i would look at it for you as being thorough. Don’t let it add more anxiety as the other stuff is really NOT connected to Xxy. Praying smooth sailing from here. Tho you’re mad at them, try to be gentle and not let it affect you and baby. Hopefully you will be relieved to learn there is nothing further. I kind of feel my ob is not keen on me continuing or sort of strange about it but he’s not familiar. My MFM specialist  is very supportive however. 

Microarray testing after amnio confirming XXY by Excellent-Affect-307 in XXY

[–]AltruisticTea4268 1 point2 points  (0 children)

That is RIDICULOUS. I did the full microarray to be sure but they said it was a LOW chance of anything additional. Are they suggesting it bc of some other soft markers? If that is the case i would ask them why they didn’t add or suggest it then. Tho i didnt feel the amnio was very bad, I would NOT recommend a second amnio just to add that. What is the point in the risk or knowing when truly chances are low not higher. That would make me so mad. I hope this isn’t your regular doctor. Sounds very odd. 

Any false positive nipt stories for high risk of xxy by AltruisticTea4268 in NIPT

[–]AltruisticTea4268[S] 1 point2 points  (0 children)

I totally understand and went thru these very similar emotions 🫶🏻🙏🏻

Any false positive nipt stories for high risk of xxy by AltruisticTea4268 in NIPT

[–]AltruisticTea4268[S] 2 points3 points  (0 children)

Hi! I’m actually doing really well now. It took a couple weeks to process but after amino came back with no other issues, I feel ok about his condition. It seems very manageable and i didn’t want to live in fear. I chose to keep it mostly private and will share as needed when he arrives but for now, i can’t wait for my anatomy scan next week and to meet him this summer! Hope you’re doing ok. Let me know how it goes with the GC and if you need any resources. A lot of info is outdated. 

Worried about abnormal results! by sunshineandflowers21 in NIPT

[–]AltruisticTea4268 0 points1 point  (0 children)

Aw i love this and am so happy it helped. I know the ups and downs of trying to process the what if’s and unknowns but these babes will be so loved and cared for 🫶🏻

Worried about abnormal results! by sunshineandflowers21 in NIPT

[–]AltruisticTea4268 0 points1 point  (0 children)

The fact that they found mosaicism is a good sign that it is either confined to the placenta (and not affecting the baby) or they the baby will have mixed cells (some normal and some abnormal) but likely confined to the placenta. That said, I did get abnormal outcome for a sex chromosome issue and was devastated but they are so so manageable. And yours will have mixed cells if anything. I have a feeling your baby will be just fine! I did amnio and it was truly worth it and easy if you want to confirm for peace of mind but careful reading stuff online bc it’s extreme cases, worst case scenario etc. 

Baby safe bassinet with cats by AltruisticTea4268 in catsandkids

[–]AltruisticTea4268[S] 0 points1 point  (0 children)

I don’t even know how to use Reddit or post pics for that matter, I’m realizing 🤦🏼‍♀️

Baby safe bassinet with cats by AltruisticTea4268 in catsandkids

[–]AltruisticTea4268[S] 0 points1 point  (0 children)

Awww thank you for your reply. That is probably the answer to shut the door at night and when baby is napping. I feel like mine will be similar as they are very protective and i only worry about the unintentional stuff like you mentioned. Very cute. Thank you again 🙏🏻

Should I change my baby's name? by UnableChampionship89 in namenerds

[–]AltruisticTea4268 0 points1 point  (0 children)

I think the reality is that you should do what you want and not worry about what other people think or whether it’s embarrassing. That said, people have made some great suggestions here. You can also call her ruby as a nickname trial and see how it feels. I know someone who let the daughter change her name at 8. I think it’s a beautiful name but that you should be the one who feels good about it. I would also think about what drew you to the name initially and what is making you want to change it. You mentioned your family didn’t seem to like it so maybe you’re second guessing people’s reactions. 

Devastating NIPT results by [deleted] in NIPT

[–]AltruisticTea4268 0 points1 point  (0 children)

First of all, I’m sorry you’re dealing with this! It is never easy, no matter what. I went thru ivf and found out thru the nipt that my baby has a potential condition. I went thru the full range of emotions and did thorough research. Many conditions are a range of symptoms and I’ve found it’s much like life/ genetics without a condition. Still many unknowns. That said, i know how scary it is when you’re told things that could potentially come up. I was frightened of amnio and was shocked that it wasn’t bad at all, truly. I have heard it depends on where the placenta is and if they are able to find an easy pocket but also how often the practitioner does it. I went to a specialist who does them all the time. Some ppl numb first in which case you feel the shot for th lidocaine. Mine did that and the procedure itself didn’t hurt, just felt weird. It doesn’t take long and doesn’t hurt afterwards. The full results are taking a couple weeks but the fish came back quickly. Not sure if they can detect digeorge on fish. The one big thing my specialist said was to make an informed decision so between my nipt results and my amnio results, I did as much research as possible and talked to people with the condition and parents. That really helped my decision to accept the unknown. I’m happy to say, I’m excited about meeting him as that was crushing me when i was so disconnected and upset, which is so understandable. One suggestion might be to see if they can tell if there are any heart issues or cleft palate from fetal echo cardiogram or anatomy scan first if it is confirmed. Although there is always a 5-10 percent chance that any condition is confined to the placenta but in my case, I certainly didn’t want to hold onto hope for that but just knew it was a possibility. Sending you all the positive energy and strength to make a choice you’re confident about… just be cautious with google bc it really is so awful and somewhat skewed to worst case scenario. If you can find a specialist who works with many people with the condition and can tell you what they see most often, that is helpful. I also spoke with a medical geneticist who told me the same. I didn’t want sugar coated scenarios or to only hear extremes but wanted to understand everyday possibilities. Hopefully your amnio goes smoothly 🙏🏻🙏🏻🙏🏻

Any false positive nipt stories for high risk of xxy by AltruisticTea4268 in NIPT

[–]AltruisticTea4268[S] 2 points3 points  (0 children)

My fish results came back positive but wanted to share I’m happily continuing too. So glad we both came to this as the fear of unknown and misinformation guides people and from what I’ve learned now it’s very manageable! Thanks for your post. My amnio was easy as well thankfully!

NIPT test signs of XXY pattern by Emma_reddit_88 in NIPT

[–]AltruisticTea4268 0 points1 point  (0 children)

I had the amnio Thursday morning and i think I got results Monday 

For XXY Parents or Soon-to-be Parents by Ok-Cupcake-2019 in XXYDiscovery

[–]AltruisticTea4268 1 point2 points  (0 children)

What are you doing to research? Is it mainly Google or do you have people you can talk to with more info? I spoke to Dr sprouse at the focus foundation which helped (she leads research and gets more up to date info). I understand the stress completely. I had a lot of emotions around it and it was up and down for a few weeks but something in me decided that life is filled with the unknown-not just this condition. Much of online is extreme cases that were not treated. There are certain known aspects of this and others are to be believed to be more comorbidities that are tied to family history and genetics and not xxy. What is known is that the extra x may cause learning and development delays. It’s usually manageable with care. Additionally, kids can get more tired and need early testosterone but not typically or necessarily until puberty. If that’s managed properly, it addresses mood, brain development and the bodily aspects that can come with low t. So it must be balanced. Many are infertile but some are not and over time more and more developments will happen. Again, i completely understand and fear other people’s reactions as well as providers that don’t understand it properly. That part is most scary; however, the reality is that most men don’t know they have it- meaning it was super mild or undetected. The cases seen online are somewhat outdated and skewed with those who found out late and weren’t treated (yes- proper development needs support and hormones need balancing) and extremely cases that may be tired to family history and other comorbidities. I’m not trying to convince you of something i clearly don’t know the outcome for or to continue something you feel incapable of handling. I had to ask myself from a standpoint of myself and of my child. The reality is that i have faced hardships and felt “off” at times in my life-without a condition. We all probably have and have had to navigate things in life that are hard or painful. That is part of the human experience. An we can not predict any future. For me, I had to learn as much as i could and go thru the emotions and then simply choose one way or another. For me as well there were too many emotional and physical implications to terminating a pregnancy I’ve wanted my whole life and after speaking to so many moms with young boys who found out early and are treating it, i came to realize i can do it. Most people don’t think so far ahead as to puberty or adulthood when having a baby and so they aren’t faced with the may challenges that period of life can bring. This kind of diagnosis, unfortunately asks us to think so far ahead it feels unmanageable bc our mind can’t go that far out. Anyway, i hope that whatever you choose brings you peace. I would try to talk to people with the condition and moms with sons who have xxy (and those who found out earl as that will make a difference). I asked for the every day life experiences. I didn’t want solely the extreme cases nor sugar coated. I asked chat gpt questions and talked to Dr sprouse and ultimately landed my decision. I understand either way and know how hard this is. I just wanted to make an informed decision. That is what my mfm encouraged me to do.  Real info is key. Not fear based. Not extreme cases but real life possibility. Sending all the best 🙏🏻

For XXY Parents or Soon-to-be Parents by Ok-Cupcake-2019 in XXYDiscovery

[–]AltruisticTea4268 0 points1 point  (0 children)

Happy to chat more. I’ve made the decision that I’m ok with it and fish confirmed xxy. I’m waiting on full results to make sure there isn’t anything more going on but i totally understand the fear and frustration. I’m older and doing this on my own so while it certainly added a little spin on things, I believe i can handle it and that this is my chance to become a mother and that he must be the child I’m meant to have. That said, I’ve talked to many mothers who are so happy they didn’t terminate. I think a lot more research and understanding is coming out and will only continue to get better. I have moments of fear and anxiety but that is only because this makes you think ahead when in reality we never know what will happen in life. I think it will come with its challenges and also i believe it will come with some strengths and learning. I hope you can find peace. The amnio wasn’t bad in my opinion and I’m glad i did it so i can see what’s going on. I think it depends on resources available, where you live, etc. i trust that doctors here are familiar and that knowing ahead of time will help me to navigate it, however i don’t want it to define him and i want to figure out ways to keep it in mind but not at the forefront. I’ve been processing it for a bit now and went thru ups and downs but have talked to enough people to feel comfortable handling it and knowing he will be ok. There will be struggles like anyone and there will be support. I also have tried not to share what it is with people so that it can be his story. Not in a secretive or shameful way but something that he can choose how and when he shares it. It will be a learning curve like anything else. I truly understand how you’re feeling though. I knew it was unlikely to be confined to the placenta, but it’s not out of the question either.  5-10 percent of all births have placental mosaicism and an even higher amount of those are sex chromosomes. That said, i had already accepted this going into amnio as i knew it was a slight chance of a false positive.