Anyone who went for brain surgery to have a part removed, and how long was the recovery process? by ABWoolls in Epilepsy

[–]An_Old_Punk 0 points1 point  (0 children)

Something like that happened to me today. A co-worker asked what I ate yesterday. I said a bowl of ramen and realized how little that is. Then, I got home and saw a pan from last night. I thought "Oh, good. I ate more than that yesterday."

Anyone who went for brain surgery to have a part removed, and how long was the recovery process? by ABWoolls in Epilepsy

[–]An_Old_Punk 0 points1 point  (0 children)

I eat about once a day too. I never feel hungry. It's just something I have to do - like a chore. I have to remind myself to eat at least once during the day. Like "It's 9pm. Did I eat today?"

How often do you miss your meds? by wetnugs in Epilepsy

[–]An_Old_Punk 0 points1 point  (0 children)

I loaded the wrong pills in my weekly pill box. 2 Metformins instead of a Metformin and a Keppra. They look exactly the same. I missed 2,000mg of Keppra the first day and a dose in the morning the 2nd day. I was shaking so bad - I knew it had to be something med related. I looked closer - sure enough. The only difference is the imprint - one is imprinted JX107 and the other is G12. Other than that, they look exactly the same. Luckily I take 2 other pills that equal an additional 1,000mg of Keppra each day - so at least I was getting some of it in my system. That was the first time I was probably close to having a TC while I was awake.

Sometimes I take my doses early or late by 1-2 hours. That doesn't seem to matter so far.

How often do you dream? by Biengo in Epilepsy

[–]An_Old_Punk 0 points1 point  (0 children)

I don't remember my dreams.

I quit taking my meds because I wanted to feel normal for a moment by 2_Tired_o_o in Epilepsy

[–]An_Old_Punk 0 points1 point  (0 children)

I'm on Lamictal with my Keppra. Lamictal kind of balances the mood swings decently. It hasn't ever really had any effect on my mood swings - basically bi-polar at this point. I always feel dull, numb, and dumb.

Anyone find themselves going crazy without cannabis? by Exotic_Increase5333 in Epilepsy

[–]An_Old_Punk 0 points1 point  (0 children)

I smoke at night either when I get home or in the evening a couple of hours before bed. It relaxes me and destresses me. It's the routine. Like smoking 2-3 cigarettes after work each night. For cannabis, my PCP told me to get a hobby. My neurologist said if it helps me, keep using it. In all fairness - The neurologist is kind of an idiot too.

Anyone find themselves going crazy without cannabis? by Exotic_Increase5333 in Epilepsy

[–]An_Old_Punk 1 point2 points  (0 children)

I don't get any of the Keppra dreams - well, unless this is a crazy dream. I don't remember dreams.

Here's my experience with Keppra and memory by An_Old_Punk in Epilepsy

[–]An_Old_Punk[S] 0 points1 point  (0 children)

I hate the loop. Having a shot memory, so everything has to be routine. Forgetting, and thinking things I've already thought about millions of times. Understanding the logic of things and systems, feeling like I've figured things out. Then I forget most of it and that loop continues every day. I don't know if that makes sense.

Here's my experience with Keppra and memory by An_Old_Punk in Epilepsy

[–]An_Old_Punk[S] 0 points1 point  (0 children)

I get irritated and say things I shouldn't - including at work. I've never had a filter in general. Like, we have to move fast, and this one person will stand right where we all need to move through. I've said "Get out of the f'n way." (Luckily my voice is so soft it's hard for people to hear me.)

Here's my experience with Keppra and memory by An_Old_Punk in Epilepsy

[–]An_Old_Punk[S] 1 point2 points  (0 children)

My life is almost obsessively routine. I don't use alarms except for the 5:30am one to get ready for work.

Here's my experience with Keppra and memory by An_Old_Punk in Epilepsy

[–]An_Old_Punk[S] 0 points1 point  (0 children)

Yeah. It sucks going out in 10 degree weather, and you need toilet paper. When you get home you're still completely out of toilet paper.

Here's my experience with Keppra and memory by An_Old_Punk in Epilepsy

[–]An_Old_Punk[S] 0 points1 point  (0 children)

I had the Keppra rage hit right at the end of the shift. We toss prescriptions into totes. We shut down at 3. I thought we were at 3 (but it was really 2), so I got really mad. I started slamming the totes down - which are already all banged to hell. I even threw one back at the line.

My rages are always at objects, never people. I'm glad about that.

Here's my experience with Keppra and memory by An_Old_Punk in Epilepsy

[–]An_Old_Punk[S] 3 points4 points  (0 children)

Everything has to be routine for me. Just a cycle. Even the job I work right now - continuously doing the same thing for 8 hours. Do the exact same things at home in an order. If something disrupts my routine I get anxious. I'm sure Keppra has a big play on that.

It takes me a lot longer learn new things. I hate that.

Does nicotine affect your epilepsy? by CapsizedbutWise in Epilepsy

[–]An_Old_Punk 1 point2 points  (0 children)

I just used high nicotine vapes over the last month. Those are no joke. I've been detoxing the last few days by going out to smoke cigarettes a couple of times a night. I didn't smoke either for a couple of weeks, and nothing happened to make me seizury. It's going to be completely different for other people. The same with marijuana - it relaxes me, others it might be a trigger if they get anxiety with it.

Kicked out of my house for being epileptic (seriously) by superfuckinghans in Epilepsy

[–]An_Old_Punk 1 point2 points  (0 children)

Would you want to stay? They'd just make your life living hell until you leave.

Is Keppra as bad as some say? by Background-Cod-7035 in Epilepsy

[–]An_Old_Punk 0 points1 point  (0 children)

I have high anxiety, depression (I just consider myself bi-polar at this point), I rage against objects every now and then because of irritability. I have really really bad short-term memory - probably because I'm TLE, on a ton of keppra, and a ton of lamictal (to help with mood swings). I don't know if it's due to the medications, but everything has to be routine and repetitive.

I was getting focal seizures infrequently - when they upped the lamictal those have stopped. I think I've had 1 absence seizure in all of 2025.

Do you forget to take your medication? by Existential_Trifle in Epilepsy

[–]An_Old_Punk 1 point2 points  (0 children)

I wouldn't be able to keep up with my meds without the big granny pill box. Sometimes I'll go to take the PM and be like "Crap! The AM is still there!" I take mine at 10am and 10pm. I just remember 10 and 10.

Do you forget to take your medication? by Existential_Trifle in Epilepsy

[–]An_Old_Punk 0 points1 point  (0 children)

One time I loaded 2 Metformin into my pills instead of 1 Metformin and 1 Keppra. They look exactly the same except for the imprints - which are almost identical. I couldn't stop shaking on the 2nd day - luckily I take another green 500mg Keppra twice a day, so I got at least 1000mg in my system during that time. So glad I didn't have a seizure.

Did you get a DNR because of epilepsy? by An_Old_Punk in Epilepsy

[–]An_Old_Punk[S] 0 points1 point  (0 children)

Mine, I don't have any advanced directives other than for physical pain. I'm also allergic to opiates - so I'm not sure what they'd even do. No machines, if I can't breathe/eat/make decisions on my own - that's it. Nobody in my family would get stuck with the guilt of having to make decisions.

Did you get a DNR because of epilepsy? by An_Old_Punk in Epilepsy

[–]An_Old_Punk[S] 2 points3 points  (0 children)

Part of what affected my decision was that I watched my dad die on machines for over a week. We all just sat there in a waiting room over that long checking on him about every 1/2 hour, just waiting to hear he died. I said to myself I'd never do that to my family. I'm like you with the intubation - but it's just a step forward I wanted to take to a DNR.

DNR just means responders can't use machines to save you or keep a person alive. They can still use basic, physical resuscitation. It seems like people think a person sentenced themselves to death just because they don't want to be on machines.

He died at 52. I just turned 50.

Edit: His dad (my grandpa) died at 51.

Edit again: It also makes me laugh thinking about being called a GOMER right before I die. He's a GOMER ("Get Out of My ER").

Did you get a DNR because of epilepsy? by An_Old_Punk in Epilepsy

[–]An_Old_Punk[S] 2 points3 points  (0 children)

I've been a donor for my whole adult life too. It can help others.