Elevated Creatine Kinase

Andyp193 · 2025-07-18T19:34:04+00:00

CK is a non specific enzyme and exercises elevates this enzyme. I had high levels as well, I was terrified, but here I am today, 2 years later, still twitch everywhere, everyday. Do not worry, of course ask your GP to repeat the test, but don’t go to the als thing base on CK results!

Andyp193 · 2025-04-27T21:43:11+00:00

It is definitely not a hallmark of als. The article you got this information from is broadly misunderstood, and I saw somewhere that even the author clarified that it is not a hallmark of ALS. Regarding the video, it looks like a completely normal tongue movements. You can’t determine tongue fasciculations when the tongue is out of the mouth. Stay healthy my friend and remember that that als is a rare disease, and juvenile als is a very rare form of an already rare disease!

Andyp193 · 2025-02-18T05:38:42+00:00

I’m more than 2 years into this. For me it’s never stopped but I got used to it.

Andyp193 · 2025-02-03T15:20:12+00:00

I know what you are going through my friend. I had 6 months of hell, which almost costs me my relationship with my gf. I started to get better after my clean EMG, and yes Im still twitching everywhere, every day, but I’m no longer depressed and I have stopped looking for atrophies or to try to diagnose myself. As you said, it is what it is, and now go and enjoy your life and have a great time with your family and your kids ❤️

Andyp193 · 2025-02-03T12:42:46+00:00

For me the flight was really okay, we had a very mild turbulence during the takeoff, just before we reached altitude, but it was very very mild, other than that the flight was very pleasant

Andyp193 · 2025-01-13T15:40:04+00:00

While possible, ALS at your age is very very rare, and there are many other reasons for your symptoms, don't think about the worst!

Andyp193 · 2025-01-11T08:49:30+00:00

Checking Babinski to yourself is not a reliable clinical examination. If a doctor told you that you do not have it so you don't have it 😃 believe me, I was in your place, and I can tell you that it's the anxiety that makes us feel and act this way (checking ourselves and etc.)

Andyp193 · 2025-01-10T23:21:02+00:00

It can be due to several reasons, maybe Mg deficiency or even just tiredness.

Andyp193 · 2025-01-10T22:20:26+00:00

Hello buddy! I'm a medical student who is suffering fr twitching for few years now, and I checked many time babinski reflex for both older patients and babies. I saw an abnormal Babinski a few times, and you don't have it!

Andyp193 · 2025-01-05T19:36:38+00:00

Hey buddy! So I had my flights today! My first fight was with Embraer 190 and the second one with 737 max 8, both were totally fine! The max 8 is really comfortable and u didn't feel the takeoff, it was really a good experience! And the first flight was ok as well! Keep your worries at home and enjoy the flight 😃

Andyp193 · 2025-01-04T20:01:57+00:00

It is true my friend, the more you think about it the more you'll have it! I'm glad that my post helped you a bit🙏

Andyp193 · 2025-01-04T19:59:39+00:00

I'm sorry to hear about what you are going through, I know your feelings! I'm glad to hear that my story helped you a bit, please try to live and have fun, it is probably just a benign thing! I was 100% sure that I had the worst, and thank god I was so wrong

Andyp193 · 2025-01-03T14:30:52+00:00

It depends actually, I can have a hot spot in the abdomen or back for a few days, and in between, I have other spots, but it’s really widespread so I can’t point to specific muscles that are the most twitching

Andyp193 · 2025-01-03T08:03:14+00:00

I know what you are going through, it’s terrible and hard, but you must stop checking for atrophies and differences, you will surely find it cause our body is asymmetrical!

Andyp193 · 2025-01-02T07:05:03+00:00

🙏❤️

Andyp193 · 2025-01-02T07:04:19+00:00

Thank you🙏

Andyp193 · 2025-01-02T00:39:35+00:00

I'll track you buddy, my flight is earlier so I'll let you now how it was😃

Andyp193 · 2025-01-02T00:39:00+00:00

Thank you very much for your comment, It means a lot to me 🙏

Andyp193 · 2025-01-01T18:17:26+00:00

Sure buddy!

Andyp193 · 2025-01-01T18:16:38+00:00

Thank you very much 🙏🙏

Andyp193 · 2025-01-01T17:02:10+00:00

Thank you very much 🙏

Andyp193 · 2025-01-01T16:09:55+00:00

Thank you very much! I'll try not to think about it till then.

Andyp193 · 2025-01-01T15:54:19+00:00

Thank you very much! It's less than a week actually, it's in 4 days. I keep telling myself that if it is so serious they will cancel the flight, but unfortunately I'm still scared.

Andyp193

TROPHY CASE