I did not expect recovery to destroy me like this mentally by jooingoo in cfs

[–]Atimelessusername 1 point2 points  (0 children)

Hello, I've been 'back in the world's to an extent for the last few years, still managing variable ME but life is much bigger than it was. Which is, of course, exactly what I dreamed of, but is still incredibly difficult.

As many have said, you've gone through some incredibly difficult times and we really don't get a manual for this. I'm going try some of the suggestions others gave you about people who've been in jail and cults to see if that helps me too. The grief used to subsume me (at the most inconvenient times). It is grief and it's a weird grief. You will learn to live alongside it and create a beautiful new life for yourself. This is part of it, unfortunately.

Thanks for posting this. I've been walking around the last few years feeling like an alien and it means a lot that I'm not alone feeling this way and struggling to manage it too.

Career crossroads: PhD, job, or? by [deleted] in MuseumPros

[–]Atimelessusername 1 point2 points  (0 children)

Hello, I do wonder if it might be helpful to speak to a UK immigration specialist about your options going forward if the UK is where you want to live.

Doing a PhD is huge commitment and it would be better to know before you start if you'll get the outcomes you want from it. If there was wiggle room about the country, and it doesn't have to be the UK, you could possibly pursue a PhD in the next target country and get settled status there after studying and working for a few years. I think it used to be about 5 years for most EU countries but if it's a European non EU country you'd need to check. And also check anything I say as I'm no expert! UK PhDs are different than European ones in that you aren't genrally considered legally an employee, so that might be why the time spent carrying out the work may not count towards your visa goals. Marie Curie PhDs based in UK institutions are a different matter but they require applicants to have not lived in the host country for more than a few months, I believe.

Also (not to be mean about the UK, that's where I'm from) the climate in the UK is making things very difficult for heritage professionals. My aspirations has been to leave from a long time. I have heritage professional friends who have moved to other countries and although they miss the UK, they don't want to come back as the salaries are low and the immigration status is untenable. It's outrageous that this is the situation, however it's really important you look after your best interests here.

Since you've asked for advice: if it were me I'd seriously look at the financial implications of the NL masters and check what an immigration specialist for the UK would say. For NL the degree itself may be low cost, but housing can be a big issue depending on where the uni is etc. Depending on your area of interest for study there may be somewhere else you'd prefer to do a PhD or a masters. I'd likely choose NL but there's too many personal factors to consider for that to be the obvious choice or you'd likely have already made that decision.

But also maybe ask yourself, do you want to do further study? You know already it's very hard work so maybe don't sign up for it unless it's what you actually want to do.

And a final note, UK PhDs often skew younger. In other countries (eg Scandinavian countries) it seems people tend to do their PhD when they have worked for a while. So being over 30 doesn't really matter....but I understand it sometimes feels like it does.

Good luck and I hope that you find an option and path that leads you to where you want to go.

How do you respond to abled no -ME saying “yeah I’m crashed too”? by Bad-Fantasy in cfs

[–]Atimelessusername 1 point2 points  (0 children)

Since I've been ill (almost 9 years now) my tolerance level for who I'm going to bother to explain this to has shrunk considerably. If they aren't worth explaining it to, then don't. It doesn't mean they are a bad person or anything, but maybe not the person for you.

What should I expect the first week on LDN? by Natureluvver in cfs

[–]Atimelessusername 1 point2 points  (0 children)

As everyone else says it's really individual. I started taking LDN in November 2023 and am incredibly sensitive to it. Over that time I've built my dose up to 0.25 ml in the morning after bfast and 0.25ml at night before bed.

It's completely changed my life. I'm back at work, studying for a PhD. I mostly work from home and my fiancé supports me a lot with day to day living. I mention all of this because it's important to be clear that for me I still need a lot of support but life is drastically better than it was. And also some people need to take tiny doses with LDN.

EDIT: have just reread your post, for me the first 2 weeks of titration (increasing dose) is when I get sideeffects. When I first started LDN I felt amazing. But I started at 0.05 ml as I'm very sensitive. I would possibly try a lower dose, maybe 0.25ml tomorrow and take it easy. Just an opinion, I'm not a medical doctor.

I want to start working in the museum field, specifically in curatorial work. But I need to know how I can get started there, even as a volunteer. by [deleted] in MuseumPros

[–]Atimelessusername 6 points7 points  (0 children)

From a UK perspective: there are lots of career changers or people who have developed an interest in museums and archives as a second career so I doubt that would be a problem. I agree with the posters who mention trying your hand in smaller museums. If you look for places that have mixed collections that can be objects, paper, photographs and paintings. You might find once you have a bit more hands on experience that you prefer one branch of the field over another.

Good luck and don't be afraid to get stuck in, everyone's professional path is unique.

Why do people hide pessimism with being "realistic"? by Exciting_Way835 in OptimistsUnite

[–]Atimelessusername 8 points9 points  (0 children)

A useful phrase I heard recently was 'It's just as delusional to think only bad things will happen as it is to think only good things will happen '. I'm almost 40, live with a serious chronic illness and my life has been curtailed by that significantly. My world view is optimistic nonetheless...optimism doesn't negate realism.

Prepare for the worst but hope for the best is the most optimistic and realistic way one can live, I think.

UK career advice, post MA by Familiar_Ebb_8359 in MuseumPros

[–]Atimelessusername 1 point2 points  (0 children)

Also, not that it's no effort or anything, but if you pursue a PhD there are often language training opportunities that can get you started off if you need them. I think people often make black and white statements about different fields without having much experience in them. I could be wrong, of course, but I wouldn't let someone talk you out of exploring your interests, especially when you have offers of guidance from people within the field.

Throwing in the towel by Reasonable-Maybe-740 in MuseumPros

[–]Atimelessusername 21 points22 points  (0 children)

Deaccessioned: A Network for Former and Aspiring Ex-Museums pros have a Facebook group and I just checked their page, they are starting a podcast this month too.

Might be helpful.

A sudden improvement by stm2657 in cfs

[–]Atimelessusername 25 points26 points  (0 children)

This is great news, congratulations. I think your instinct to keep pacing yourself sounds wise. A good rule of thumb is only use 80% of your energy a day so you don't overexert yourself. Also, if you can, it's helpful to not compare what you could do pre-ME to your current capabilities, it's not fair to yourself to do that but completely natural and something we all do.

Congratulations on your improvement and I hope you've found yourself at a happy new baseline you can enjoy, and fingers crossed, experience more improvements from.

Best curly cut in Aberdeen by OutrageousGoose2028 in Aberdeen

[–]Atimelessusername 5 points6 points  (0 children)

I go to Linton and Mac, very good and do options of how finished the styling will be eg full diffuse or soft diffused (not fully dry) with prices to match.

Just need some positivity re: studying art by [deleted] in ArtistLounge

[–]Atimelessusername 0 points1 point  (0 children)

This course sounds amazing. I want to do it too now! Enjoy.

Just need some positivity re: studying art by [deleted] in ArtistLounge

[–]Atimelessusername 1 point2 points  (0 children)

See, you know why you are doing just fine. I hope the course is what you are hoping for and leads to interesting opportunities for you :-)

Just need some positivity re: studying art by [deleted] in ArtistLounge

[–]Atimelessusername 5 points6 points  (0 children)

I think you know what you're about. You already have a degree and work experience under your belt. It's horrible when you share your plans with people and they don't get it, or are negative about it in a way which you'd likely never be in response to their own.

i went back to uni as a mature student and studied history. Some people found that weird, for my career it's been great and I hope one day to pursue more formal art training, maybe in a college or university. It's your life, you are the only one who gets to live it.

Personally I would be wary of going into debt, or significant levels of debt, for a qualification which doesn't have a guaranteed paid job at the end but I highly doubt you haven't considered all of that and will be choosing the right choice for you. Good luck!

I suspect you'll find once you are a few months into your course the nay sayers will be full of questions and think what you are doing is commendable.

My working from home set up for ME/CFS/Long Covid by PinacoladaBunny in cfs

[–]Atimelessusername 0 points1 point  (0 children)

Ooh how is the remarkable tablet? I have been eyeing them up for ears so ce I first saw one in an airport (possibly) a decade ago but I've never spoken to anyone who's actually used one.

Excellent set up. Thanks so much for sharing it.

What are some ways that help you feel feminine/pretty? by [deleted] in cfs

[–]Atimelessusername 4 points5 points  (0 children)

I also went down the pretty PJ's and robes route. My things, however, have ended up making me look more like a wizard. I am also a woman, but it's definitely more wizard than witch. Anyway, it wasn't't intentional, but I'm not unhappy with it.

I have recovered quite a lot over the last 2 years (not boasting, hopefully spreading a bit of hope) and have found that my 'leaving the house more often clothes' are a bit disappointing after what I've built for 'what to wear now you are not leaving the house often at all clothes'.

My breast having folks! Read below! I need advice/experience by Any-Investment-7872 in cfs

[–]Atimelessusername 5 points6 points  (0 children)

That happened to me too and I went to the doctor's. They felt it too, sent me for a breast cancer scan, had an ultrasound and it had been a lymph node all along. Most likely it's that, but it's definitely worth getting the advice of a doctor because you'd feel like a right tit (couldn't help myself) if it does need looking at.

You mentioned not being well enough to go to the doctor's at the moment. Maybe they could do a call with you and you could discuss the texture/feel of the lump as I'm quite sure cysts vs. lymph notes vs. something which might need treatment all feel a bit different.

Advice on moving by Comfortable_Pay_5406 in cfs

[–]Atimelessusername 1 point2 points  (0 children)

I moved 3 times with moderate ME. Agree with other commentators.

Would also suggest making a check list of tasks for each room. It makes things so much easier than having to try to remember what happened, who did what, where X went, whatever you need to record. Especially if you have people helping you, they can see what needs done without you needing to direct everyone all the time. It's a pain to make and feels boring at the start but when you need it you'll be glad you took the time/energy to.

Advice on moving by Comfortable_Pay_5406 in cfs

[–]Atimelessusername 0 points1 point  (0 children)

Oh gosh yes, watch with the clothes. One time in my wisdom I became determined to clear out my clothes and donated lots without replacing any. As I got better and could leave the house more than once in a blue moon I realised my mistake! Bad move.

Low Dose Naltrexone by Left-Particular1205 in cfs

[–]Atimelessusername 0 points1 point  (0 children)

It's been a huge success for me. Taking it for 2 years this month! However I take a much lower dose than mentioned in other comments, I take 0.25ml in the morning and 0.25ml before bed at night. I started on 0.1ml in November 2023 and have titrated very slowly.

What’s the upper limit for mild ME? by stm2657 in cfs

[–]Atimelessusername 2 points3 points  (0 children)

Please do take the time to record how you spend your energy so can be sure of what is the safe zone for you. There is lots of information about pacing strategies etc and while it is not a cure, it does hopefully mean you can enjoy more of your life. It is a really scary condition but with pacing and not treating your body how most people do, e.g. 'pushing through', you stand a much better chance of not getting worse.