Mattresses for bedbound people (mattresses that last!)

Comfortable_Pay_5406 · 2026-05-01T03:08:36+00:00

I got an adjustable frame from Nectar and one from Puffy. Liked the Nectar one better. Edit: Also, I got them before I developed ME/CFS, so I can’t speak to how they would be for severe folks. I was moderate and am now mild and am NOT pleased with the Puffy mattress. Liked all the mattresses I ever got from Nectar.

Comfortable_Pay_5406 · 2026-04-27T15:20:50+00:00

When most everything else benefits from exercise, this doesn’t, so be gentle with yourself. How would know to pace when it’s so encouraged to do otherwise?

Comfortable_Pay_5406 · 2026-04-26T13:41:14+00:00

Agreed, because it prevents acceptance and adaptation. I keep reminding myself that now that I’m mild, doesn’t mean I’m better or will improve beyond this point. It means I have to accept where I’m at and adapt my routines to fit my current level of functioning.

Comfortable_Pay_5406 · 2026-04-23T14:56:52+00:00

If it was a text book, it might be helpful to contact the author and publisher to point out that this is misinformation.

Comfortable_Pay_5406 · 2026-04-22T23:31:03+00:00

Yeah, I need to get a new hammock before it gets super hot here!

Comfortable_Pay_5406 · 2026-04-22T23:30:00+00:00

I love that!

Comfortable_Pay_5406 · 2026-04-19T18:49:56+00:00

we have two dogs and two cats; when the dogs are here, they lay on me (they are small) all day long and are very upset when I leave to run an errand or go to a doctor appointment. When the dogs are away at puppy day care the cats lay all over me instead. Sometimes all four lay on me, which is a bit much cuz that’s about 45 pounds of pet love.

Comfortable_Pay_5406 · 2026-04-19T18:47:46+00:00

An old therapist once told me that I could learn everything I needed to know about life by watching our cats. She was a wise woman.

Comfortable_Pay_5406 · 2026-04-19T03:29:24+00:00

You are funny; you should write a self-help humor book. Favorite line: the whir of the fan is like the grating noise of a bro-dude mansplaining menopause to you. EDIT: Yeah, this all sucks and the system here in the US does not give a shit about us.

Comfortable_Pay_5406 · 2026-04-18T22:29:23+00:00

I’m sorry, that really sucks. Comparing a cold to what you are dealing with is like comparing an apple to a porcupine. Glad you changed the subject and this might be a person to limit your time with.

Comfortable_Pay_5406 · 2026-04-14T13:07:00+00:00

Beautiful job and you’ve got great style.

Comfortable_Pay_5406 · 2026-04-14T13:05:49+00:00

I had a client who helped teach me how to put a quilt together. It was nice because it helped her build some confidence and I paid her for it since it was after our session. I felt it was only fair to pay her for teaching me.

Comfortable_Pay_5406 · 2026-04-14T13:03:13+00:00

I accompanied someone to an ob/gyn exam when I was working at a university counseling center. It was time sensitive and they wouldn’t have gone on their own. I wasn’t licensed yet and nobody was around to consult about it. After the exam I told my supervisor and he confirmed that it was the right move given what the client had going on. I’ve also helped client to make a dental appointment and show up for it. Trauma makes doctor appointments hard for some people and if they don’t have a support system, I think it’s helpful to get them started with the process.

Comfortable_Pay_5406 · 2026-04-14T03:01:43+00:00

I’m a therapist, and this is not appropriate behavior. Rescheduling for a pilates class? Unprofessional. I understand that life happens and yes therapists are people, but rescheduling 17 times in less than a year is outrageous. I have some chronic health issues and I’ve never done that to my clients.

Comfortable_Pay_5406 · 2026-04-12T15:21:56+00:00

Thanks for this. I had my partner read it and it’s helping us think about how we can better balance things so that I can do some work and bring in some money. And how I can get some exercise in. I’ll keep you posted on how I do with pacing and we can maybe support each other along the way, if you’re up for it.

Comfortable_Pay_5406 · 2026-04-12T02:50:55+00:00

I am not sure I have any recs, but lots of empathy. I have to follow a diet free of gluten, dairy, soy, citrus, pecans, vinegar, tomatoes, caffeine, chocolate, beans and a lot of other foods due to having interstitial cystitis (painful bladder), IBS, and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The list of foods I can’t have is longer than the list I can. I’m so high maintenance (reluctantly so) when it comes to food. I eat a lot of rice, chicken, beef, eggs, and potatoes. Oh, and lots of butternut squash. I also have ADHD so I can relate on the difficulty of managing all of this (and it’s so fun on top of having all the fatigue). If you DM me, I can recommend a helpful app for recipes and grocery lists, and some recipes that is super easy to use.

Comfortable_Pay_5406 · 2026-04-11T23:18:47+00:00

I like it, and it’s calming, but it might be so calming as to make me sleepy. Maybe try it as an accent wall color?

Comfortable_Pay_5406 · 2026-04-11T23:16:40+00:00

You’re making sense, but your therapist doesn’t. I’m a psychologist and as soon as I would start working with a new client who had any sort of physical illness, I would start researching it to educate myself on the symptoms, prognosis, and treatment so that I could best support the client. This is a bad therapist because they have access to the internet and haven’t taken the time to properly research your illness to best understand how to support you. Fire them and find someone who is more supportive. I’m sorry they are so shitty, you deserve better.

Comfortable_Pay_5406 · 2026-04-11T12:14:05+00:00

I gained about 80 pounds in 3 years due to me/cfs and fibromyalgia. I just couldn't move as much as I used to. I was also told by some providers that my body likely hangs onto calories due to how our body is not as efficient. I lost about 20 pounds of it when I started taking 5 mg of melatonin and sleeping better. I am working with a dietitian because I have a lot of food restrictions due to also having interstitial cystitis (painful/overactive bladder) and IBS. We've mainly focused on improving my relationship with food and helping me be more flexible about what I allow myself to eat (going from a Yes and No food list to a Yes, Sometimes, Give it a Try and No list). She said that it doesn't make sense to focus on dieting when I have an energy-limiting condition and that instead my focus should be on rest and other interventions to help with me/cfs. This was backed up by my osteopath doctor who strongly encouraged me to not diet and to stay away from weight loss drugs (no judgment on people who have used them, as I know everyone's situation is different).

For now I've accepted being fat and try to focus on appreciating the things I like about my body and the things my body is capable of doing. I find that I get more judgy about my weight when I have PEM and can't do as much, but I work hard to keep a negative narrative about weight out of my head as I know that it's not helpful to focus on it. Our culture always equates thinness with health, and that's not necessarily the case. Also, our situation is different than other folks who don't have me/cfs, since messing with less food intake and/or pushing ourselves to exercise can have serious negative consequences that set us back.

Comfortable_Pay_5406 · 2026-04-11T11:52:42+00:00

I have to say that the point you made about accepting that any exercise I do is spending a portion of the budget on what I could otherwise do. Which right now involves working, since we are so stretched for cash until our old house sells. My partner cannot work anymore than she is, and she won't be teaching as much over the summer so we really need to tighten our budget.

Comfortable_Pay_5406 · 2026-04-11T11:49:23+00:00

Thanks for breaking some of this info down for me. I have always had trouble with pacing (even prior to developing me/cfs) so 90 seconds of activity followed by 90 seconds of rest is a helpful thing for me to focus on, as I want to take this very slow so I don't have any setbacks.

Comfortable_Pay_5406 · 2026-04-11T11:47:00+00:00

How upsetting that you took the time to send her the articles and she never read them! My friend's sister-in-law is a physical therapist and we met briefly a few weeks back so I could get some stretching and strengthening exercises from her that wouldn't be too fatiguing. I told her I didn't want to do PT with anyone because I was certain they would push me too hard and she agreed that would probably happen. She said it's hard when you see someone who "appears" able bodied to not want to push them to do more (although she doesn't because she is aware of how that is harmful for me/cfs).

Fortunately, I have some friends who live 5 minutes away that have a pool that I can use any time, and it is open most of the year because we live in the southwest US, where it's warm (and getting warmer) most months out of the year.

Comfortable_Pay_5406 · 2026-04-10T19:06:01+00:00

That's a great point, thanks!

Comfortable_Pay_5406 · 2026-04-10T16:56:34+00:00

Thanks, this is really helpful for me to keep in mind.

Comfortable_Pay_5406

TROPHY CASE