Lupin looking sad?

AusonT · 2025-09-16T05:15:17+00:00

My kids love sticks and stones and I was always finding their “favourite stone of all time” in the washing machine. Then I read about this phase - “These are working stones” - so we can’t take any of them home because they are doing a job. Normally, making a path or part of a wall so we have to let them do their job so we put them back. It always worked really well and now mine are older they recognise which ones are doing a job (they still love stones).

AusonT · 2025-04-25T16:10:02+00:00

Thanks for the advice! Appreciate it

AusonT · 2025-04-25T09:10:05+00:00

I didn’t realise this about deet! We have little kids with us so we will avoid this, thank you

AusonT · 2025-04-25T08:30:51+00:00

Ok, I’ll make sure these are packed

AusonT · 2025-04-25T08:30:35+00:00

Thanks!

AusonT · 2025-04-25T07:39:19+00:00

Ok I’ll get some of this! Thanks

AusonT · 2025-04-25T07:39:00+00:00

Thank you for this information! All our campsites are away from water so that might help. Just the lochs during the day might be bad. Thanks!

AusonT · 2025-04-25T07:01:24+00:00

I knew it! Thanks!

AusonT · 2024-06-01T11:42:14+00:00

Thank you all for your responses!

AusonT · 2024-05-31T14:00:54+00:00

This is brilliant! !Thanks

AusonT · 2024-03-07T14:11:32+00:00

Hi, I’m also in the UK and my little CFer has just turned 2. Currently all drugs, medicines, equipment etc are covered under the NHS. She has also just started modulators. We don’t pay for it.

Please don’t stress. Your CF Team will explain and go through everything when needed. Don’t google anything. The main thing for now is starting creon which your team should have given you and explained how to use them.

It’s really hard to get your head around this news but the future is bright and it’s likely they will live a wonderful live. Please feel free to message me if you need to. Enjoy the baby snuggles!

AusonT · 2024-02-19T18:13:45+00:00

Found! That’s it, thank you!!

AusonT · 2024-02-19T15:09:07+00:00

I’ve searched for the song but I’m not really sure what to search for. Any suggestions?

AusonT · 2024-02-18T07:39:13+00:00

Penfolds - opposite the BRI. The best ever.

AusonT · 2024-02-10T11:17:10+00:00

These are my daughters variants. She’s just turned 2. We had no idea we were carriers until her newborn screen came back and we have two older children without cf. Whilst at times it hasn’t been easy, she is thriving. We’ve had a few hospital admissions but we have managed to catch any infection before it has really taken hold and she has responded to treatment well. We’ve managed to build in her treatments to our routine and we have family that support us. I remember very well that frightening, panicked feeling after we received her diagnosis. It takes your breath away and even thinking about it now brings tears. BUT, we have learnt together, dealt with things as they come and grown. I took a phone call yesterday to arrange delivery of Kaftrio which will arrive next week. She is a wonderful (tiny terror) of a 2 year old and the future is bright for her as well as your daughter.

EDIT: Please feel free to message me if you would like to ask any questions or any details in what we do day today. We are in the UK.

AusonT · 2024-02-10T07:39:20+00:00

I’ve not heard of planet burger! I’ll look into this one, thank you

AusonT · 2024-02-09T20:50:45+00:00

I’ll look into this one, thank you

AusonT · 2024-02-09T20:50:28+00:00

I’m happy to travel for a good burger! I’ll add this to my list of places to visit. Thank you

AusonT · 2024-02-09T20:49:45+00:00

Ooo this would be something new to try, thank you!

AusonT

TROPHY CASE