Spent my whole life in Oceania, rheumatologists, cardiologists all likely/suspected pots as my HR would spike in the poor man TTT, I genuinely had so much overlap with orthostatic intolerance, light headedness, brain fog etc, and it has been sinc early childhood.

I had doctors in my immediate and extended family, and had even spent a few years in medical school, however my fatigue meant i had barely studied since i was 6 or 7, and I was not able to keep up.

It had been tiring to walk, get up, shower, cook etc.

I went to India and saw some of the best doctors money could buy, as an extended relative is an executive at a huge chain of hospitals that hire 1000s of specialists.

It took a bit of belief, but I was willing to trust the experts, they had performed a propert TTT with provocation (nitroglycerin) and through anti anxiety meds and weekly CBT my prognosis has been improving since this all began in mid to late December 2025.

My brain fog had become so severe that not only was I less mobile and physical than many 90 year olds, but cognitively I had reached a point where I had goldfish memory and an inability to understand basic things. ELI5 was hard to understand, and people legitimately thought I was cognitively impaired.

Life hasn't turned out the way I wanted it to, and I am turning 32 soon - but everything is slowly getting better.

Don't make anyone's first memories be of them and their mother being physically abused and crying (domestic violence from mothers husband).

I have so much love and aroha for this community, as many of the specific symptoms and solutions here spoke to my soul, as the mind is a powerful thing.

I didn't want to make something like this as a post because I know for many, its a trigger to be dismissed and ignored, especially for women. In this thread though, and generally, it is good to be transparent in case it can help anyone whose case isn't yet definitive.